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Jan 21, 2017 Latest post:
Nov 22, 2017
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
From the beginning Brody has been a surprise blessing to our family. After using fertility drugs to have our first two boys Brody was a special gift from God. Brody has always been a happy, smiley and laid back little guy. With everyone he meets he leaves a lasting impression with his delightful personality and contagious smile. On November 6th, 2016 we were at Grandma and Grandpa's farm taking family pictures; it was a normal happy day for Brody. That evening he vomited once then again when we got home. Daddy was taking him out of his car seat to get cleaned up when he went unresponsive. Brody was taken by ambulance to St. Joseph's Hospital in Chippewa Falls and diagnosed with what they thought was diabetes. Plan was to transport him to Rochester after a head CT. It was that moment when we learned that he had a baseball sized tumor in the middle of his brain. He was then airlifted to Rochester. Once he arrived he had a drain placed inside his brain and was put in a comma. November 8th Brody went into surgery to have the tumor removed not knowing if he would even make it out alive. Brody came out of surgery like a pro and the amazing neuro team was able to get the whole tumor out! November 10th the pathology came back with devastating news that he had a very rare, very aggressive and hard to treat AT/RT brain cancer. Next came the hard decision for which treatment plan to go with. His type of cancer is so rare that there isn't a lot of research or information out there. After much thought and debate we decided to stay with Mayo Clinic and follow the evidence based protocol. The treatment would include two rounds of Induction Chemo followed by three rounds of Consolidation Chemo and finish up with 6-7 weeks of Proton Beam Radiation. The first two rounds would be 3 weeks long, one of those weeks being inpatient the other two going back and forth to Rochester. The next three rounds will include 3 weeks inpatient chemo and stem cell transplant. He will need to be closely monitored so that he doesn't reject his stem cell transplant. Once the five chemo rounds are complete he will have to undergo radiation, With the love and support of our family and friends we will make it through this. Brody is brave and strong!