On Tuesday the 15th of May I went in for an ultrasound to find out the gender of my little girl. I couldn't be more excited about it, and we're finally going to be adding a little girl in to the mix of crazy little boys.
However, Doctors also discovered on the scans that she has a VERY RARE congenital malformation called Ectopia Cordis, which is 1 in 130,000, it is a condition where the heart is positioned on the outside of the thorax. Unfortanetely, the odds are not in our little girls favor, as with this condition she only has a 10% chance of survival. There is a chance that she may not make it through to term as well. I am going to do whatever it takes for our little girl, but it is going to be a long road. She is otherwise very healthy according to tests we have already completed and scans doctors have seen, and she sure is a wiggle worm too! I will be transferred to Mayo and she will be delivered at Mayo where a team of doctors has successfully completed this surgery before.
My place of employement has been very willing to work with me on this, however, once I am off for leave, I could be gone up to a year (or longer) and it will not all be paid. However, expenses do not stop coming in, and there will be a lot of travel, medical bills, and other bills that still need to be paid during this time spent with my little girl at Mayo.
I ask that you pray for my daughter and pray that she has the team of doctors that she needs to live a long and healthy life. https://www.gofundme.com/6frru-hope-for-dylan
I want to thank everyone for their love and support through all of this.