9/2/2017 - I have been diagnosed with Myelodysplastic Syndrome (MDS) as of Thursday, 8/31. MDS can occur when blood-forming cells in the bone marrow are damaged. This damage leads to low numbers of one or more type of blood cells. MDS is a very rare blood and bone marrow disorder and in my case, caused by the chemo treatment I received for breast cancer in 2009. I have been referred to the Colorado Blood Cancer Institute (CBCI) for further treatment options. In the mean time, I have decided to move forward with a very "light" type of outpatient chemo that will hopefully prevent MDS from developing into acute leukemia. The oncologist at Kaiser believes this cancer is treatable, but not curable at this point. Other treatments like a bone marrow transplant and different types of chemo have been discussed as treatment possibilities. I am waiting to hear from CBCI about scheduling an appointment to discuss these further.
9/8/2017 - Courtney took me to CBCI today and the doctor said a bone marrow transplant might be an option for treatment. He states this would be a cure, not just a treatment however, there are many risks with a bone marrow transplant and the recovery in the hospital. Quality of life, comorbidities and mortality is unpredictable. Nothing can really happen until I complete 2 months of the outpatient chemo (starting 9/11) to see if my bone marrow blasts come down enough for the transplant.
9/19/2017 - My oncologist and CBCI doctor have decided that 2 weeks of this very light chemo will be most beneficial for lowering the bone marrow blasts to where a bone marrow transplant is a possibility. The lower the blasts levels, the (hopefully) better transplant outcome. I started my second week of this chemo yesterday and doing well. I am tired for the rest of the day after treatment, but in general feeling ok. I will have 2 weeks off of chemo and then start the second round of 2 more weeks. After that, I will have another bone marrow biopsy and see where the blasts are. Thanks for all the love and support!
For more information on MDS, visit: https://www.cancer.org/cancer/myelodysplastic-syndrome/about.html
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