Nov 10, 2021 Latest post:
Nov 18, 2021
LIFE-SAVING TREATMENT FOR BRAVE RYU 🌷
My 11 month old son was diagnosed with Spinal Muscular Atrophy Type 1, a rare and severe genetic disease that causes progressive muscle weakness and wasting. He's still admitted at PICU since March 14. He needs the world's most expensive drug called ZOLGENSMA, worth $2.1 million dollars. Without it, he may not reach 2 years of age.
Please help us raise funds for his life-saving treatment. Even a small donation could help reach the fundraising target. And if you can't make a donation, it would be great if you could share the fundraiser to help spread the word.
PS. We don't know both of us (my husband) are carriers of this horrible disease. He's our first child, and both sides of the family doesn't have any history of SMA.