Jan 10, 2009 Latest post:
Mar 22, 2013
Welcome to our CaringBridge site. It was created to keep friends, family and everyone else who ever wondered about Brandon, updated.
Be sure to read in the journal, view the photo gallery, and drop a line in the guestbook. There will be only occasional updates about Brandons memory, as it is really hard to write about.
Brandon was diagnosed with Duchennes Muscular Dystrophy at the age of 6, August 2001-officially in September 2001. It took a beating on his body, making him reliant on a power chair for getting around. He has lost most movement to his arms and legs. He relied on us to do almost everything due to his weak muscles. He was a fanatic over cooking. We would tease him that he would make Chef Ramsey look like the Pillsbury dough boy! He would have made the most amazing chef if only the disease would have left him alone. He still loved to try and make stuff, although his arms just couldnt stir up the batter, cut things, or flip things anymore. He was a real good inspector though! He LOVED his video games as they were his way of feeling "normal". He mastered going on line and dominating at these games with other. He met some who shared this disease.
Since his dad was in the army, Brandon got to live in many different places. When we got to Texas, we decided that we loved it, and had planned to stay forever. Brandon was happy, and had access to sidewalks and streets that he could easily access with his chair. He loved his school, and the entire school LOVED BRANDON! He was like a celebrity at school! We decided that we wanted to make Texas our home for good. We built a completely wheelchair accessible home for Brandon (and us). Just when we let our guard down and thought things had slowed down, Brandon took a turn for the worst, and left us.
DMD is a horrible and cruel disease, and I can only pray that some day we will have a cure or at least a treatment for it so that no one else will have to go through what we and many other families have. It destroys the one you love slowly, and you have no choice but to watch it.