Oct 20, 2017 Latest post:
Dec 21, 2017
Brady Joe is the 2 1/2 year old son of Shelbi and Joey Cobb. During infancy he was diagnosed with Laryngomalacia. At the age of 7 months his condition did not improve like most infants. He was then sent to a specialist at Vanderbilt in Nashville, TN where he was also diagnosed with subglottic stenosis. Brady's specialist at Vanderbilt tried many procedures of balloon dilation, laparoscopic steroid injections, and several surgeries known as supraglottaplastys. But with no success, he had decided that Brady would need a complete reconstruction of his airway (single stage laryngotracheal reconstruction with rib graft). Brady Joe went to Vanderbilt childrens hospital on July 24th for what we all thought would be a serious surgery, none the less, but would be able to return home in 3 to 4 weeks. Brady's surgery on July 24th, went great, but everything else following went wrong. Brady's 7 day intubation become a long 30 days. On day 3 post surgery, Brady developed pneumatosis and then necrotizing enterocolitis (his intestines where beginning to die). After testing positive for Candida infection in his intestines, which had burst by this time he under went emergency surgery to remove half of his small intestines as well as illoceal valve and repairing over 14 sections of his large intestines. Since then, he has also been diagnosed with anemia, delirium, and portal vein thrombosis which was found by CT scan checking his intestines, only by the grace of our timely God. He is now completely dependant on TPN and LIPIDS for his survival. He also has a feeding tube, but even nearly 2 months after surgery he still can not tolerate no more than 10 ml per hour. His hair has began falling out, his nails are very brittle, his teeth have began deteriorating. Genetics team came in because now they are at the point of needing to determine the"why?". Genetics team did a chromosomal array testing which came back abnormal at chromosome 12p11.23 which is ARNTL2 (depletion of CLOCK gene), absolutely nothing to do with his prior conditions that the doctors here at Vanderbilt are aware of. They do believe though there is an underlying issue as to why all of this is happening to Brady. I know this may seem totally confusing as far as conditions and etc. to everyone, believe me it is very well confusing to his mommy and daddy but also to the doctors as well. Our God is still working even when we may not realize and by his grace on 10/13/17 Brady's mom was able to talk to Dr. Oz about Brady's case while he was visiting the hospital. She quickly got his attention when she said he was a 2 1/2 year old who developed necrotising enterocolitis out of no where. This just isn't heard of. He told her that she needed to contact the NIH ( National Institute of Health) as soon as possible. Brady's mother is now working on getting Brady into a study with the NIH as soon as he is released from hospital in Vanderbilt, in hopes that one day they will find the medical diagnoses for him and a treatment plan.