Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
At little Avery Mae’s 20-week growth ultrasound a small bright white spot (calcification) was found near her liver, her long bones were measuring 3-weeks small and the placenta was inflamed. From that point on, our journey changed direction a bit. Since that growth scan we’ve done every test imaginable (genetic/screening/amnio/viral/etc.) and thankfully everything has come back normal. However, our care providers are still deeply concerned and believe that Avery contracted a viral infection at some point early on in the pregnancy. They’ve explained to us time and again that Kasey would have had no clue she was even sick and there’s nothing that could have been done to prevent this from happening. Thankfully, Kasey was already being seen at the Maternal Fetal Health Center at KU Med due to her past medical history, so we knew we were in good hands. After all of the tests and additional ultrasounds, we’ve been told Avery will be in the NICU and initially in isolation until they can confirm a diagnosis. Because of this, we’ve decided to transition care to Children’s Mercy Hospital, just down the road, so that Avery can have every possible resource she may need right at her fingertips (and we won’t have to hold our breath during a hospital transfer). We don’t know what is coming our way once she is born, but we are thankful for you as we walk through whatever may come.