The first entry on this site was created when we first learned about Bob's AML. I imagined that I would keep this site updated, but soon was overwhelmed and time-challenged so, I fell off the bridge. (that's a play on words: fell off "caring bridge..") Since Sept 2019, we have had so many ups and downs (both of us). By May of 2020, we thought all of the chemo had brought Bob to full remission. In May, I was able to have a hip revision surgery on my older replaced hip that I dislocated twice (in Oct of 2019 and again in Feb 2020.) Bob helped me recover from that surgery. We stayed home to try to stay safe from Covid. By late August, Bob's numbers and genetic tests confirmed that the AML was back. He started more chemo, oral or IV every day until late March when the tests showed his AML was reduced but would not reach remission. That is when our absolutely wonderful Wake Forest oncology-hematology doctor (Dr Bhave) told us about the SIERRA study at Chapel Hill. We met with the Chapel Hill team, and started our journey here.
Bob told me that I needed to explain the time gap between my first enty and now...
Hope it isn't too much information. Love Marti
September 24, 2019: Good Morning Family and Friends,
We hope to keep all of you updated on our family's journey through Bob's Leukemia treatment, and remission and cure. Bob has AML. Acute Myeloid Leukemia. How did we find out? During the summer, he and I thought his rheumoid arthritis was having its worst flare up. This progressed throughout the summer, with much communication with his RA doctor. From mid July, August and early September he continued to lose weight, was easily fatigued and his joints hurt. Two weeks ago he had blood work at the RA doctor. On Thursday, after hearing that the RA doctor recommended seeing a hematologist, we headed straight to our family doctor. (Dr Steven Helman at Tanglewood Adult Primary Care in Clemmons). He told us up front that Bob's numbers said AML. With his help, we were heading straight to Wake Forest Health Comprehensive Cancer Center to meet with their Oncology-Hematology department. We have had a crash course in this disease. With guidance from a team of caring specialists, Bob has begun a treatment that includes a clinical trial.
I hope this isn't too much. As time permits, I will continue the story of the past two weeks, and keep posting as we go forward. The entire family is beyond grateful for your love and prayers. Marti