Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
Bill was diagnosed with ALS in May 2019. His symptoms started with muscle twitching (fasciculations) in his arm which he had evaluated and after multiple tests he was told it was ALS.
What is ALS, Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease (after the baseball player who was diagnosed with it) is a progressive neurological disease that causes degeneration and death of the nerve cells in the brain and spinal cord. These nerve cells are responsible for controlling voluntary muscle movement-including things like walking, talking, chewing, and breathing.
The progression of ALS differs between each patient, and not all patients experience the same symptoms or speed of progression, but it is generally divided into three stages: early, middle, and late. (lonestarneurology.net)
As many may or may not know Bill and Robin have become very involved in their local ALS Chapter. Participating in the annual ALS Walk since Bill has been diagnosed with ALS. The first walk they participated in was in 2019 and a group of supporters followed behind them sporting their red and white t-shirts and smiles for the event. With COVID-19 the 2020 Walk did not take place and the following year (2021) They were back at it making it as one of the top fundraising teams for the event.
Fundraising is a year-round event, if you are looking for ways you can support Bill there is a link in the “Ways to help” section with a link to Bill’s fundraising site for the Annual ALS walk that will take place this year on November 19, 2022. You can choose to donate or to join the team! By joining our team, you can walk with us in spirit, or you can walk with us in person at the event.
**still under editorial censorship check back later for further progress**