Bev Leone

First post: Jan 23, 2019 Latest post: Dec 26, 2019
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

 Right after Thanksgiving I was diagnosed with Myelodysplastic Syndrome, it is a group of cancers that affects the bone marrow. I went to the Emergency Center thinking I had an increased heart rate and found out the heart rate was due to my hemoglobin of 5.4 (normal is 12-16).  My bone marrow biopsy showed that I had MDS and that a Stem Cell Transplant was the way to go. When you are told you have a year to live if you do nothing the decision is more easily made!!

I am working with Dr. Ogaily a wonderful hematologist and Karmanos Cancer center. Karmanos is doing the work to contact a match on the registry so I am excited and hope that they say yes. They told me I matched with 3 people which made me feel better. 

At this point I have had 7 units of blood and the week after I get a transfusion I feel really good. I have been having a wonderful time with my family and my friends during this time before I start my Stem Cell Transplant treatment and will use this site to let you all know what is going on with me.