Nov 27, 2021 Latest post:
Dec 26, 2022
Note: if you want to donate, please reach out to Michelle or Robert for more information. Note that tributes go directly to CaringBridge, instead of to our family to help defray medical expenses.
In July 2020, Beulah deVera-Schmitz, or Bu or Beuls for short, was diagnosed with definitive amyotrophic lateral sclerosis - known more commonly as ALS or Lou Gehrig's disease.
For anyone who has met my sister-in-law, they will agree that her infliction with ALS is an unmitigated tragedy.
Within a very short time, from when Beulah was diagnosed with ALS disease, her abilities to function have been stripped away. Beulah’s condition has deteriorated quite rapidly. She lost her ability to walk within 6 months after the initial diagnosis. Within the last 4 months, Beulah has lost all control of her arms and hands, and now her breathing is affected due to the disease. She is essentially locked in a non-functioning body with a brilliant, perspective mind.
There are no answers for how one contracts ALS, and 90% to 95% of ALS cases have no known cause. However, without exceptions, ALS is a terminal disease with a terrible life and a painful death.
Beulah was admitted to the ICU at Mt. Elizabeth Hospital (in Singapore) on October 22nd, when she suddenly lost her capacity to breathe. Several days later it was clear that a tracheostomy tube would be required so it was inserted, which now leaves her unable to speak or eat. She remains in the ICU at Mt. Elizabeth Hospital.
This is a catastrophe because Beulah is bright, engaging, and is still in the prime of her life.
We created this site in order to share information with all of you to keep you up-to-date on Beulah's condition. We have been so overwhelmed with all of the outpouring of love, support & prayers that we have received from all over.
With Love, Judy Thinking of Robert, Michelle, Nicole