Bernard Preiner Bernard "Joe" Preiner

First post: 11/6/2016 Latest post: 3/19/2017
When I was a small boy I had a dog. He had one ear, one eye, no teeth three legs and no tail. Guess what his name was. "Lucky" That's how I feel.

On
8/22/16 I had a pre-op electrocardiagram for an upcoming prostate
operation. Dr. Tyler Peterson the cardiologist, said it looks like you
may have an errant amyloid protein settling in your heart because your
heart walls are twice a thick as they are suppose to be and that may
explain your atrial fibrillation [irregular heart beat]. However, there
are several amyloid proteins and we cannot be sure which one you have
until we preform more tests. However, You may have 4 months to live
unless we start you on a blood thinner, a diuretic, and chemo
immediately and that will extend your mortality for 1 to 1.5 years and
if you survive we will continue the treatment. Pick us up off the floor! I'm not really sick I'm 73 [old] and a little run down from a bladder infection.

After
30 appointments at Rochester Mayo I watched on the monitor as he went
into my heart 5 times and took out 5 snippets of heart tissue and said I
had a light chain amyloid that will never be killed by chemo, unless we
consider a stem cell transplant which could increase my life expectancy
10 to 15 years and put the amyloid in to remission. He went on to say
most people that come to the Dr. with light-chain amyloid have a life
expectancy of 7 months because there are no obvious symptoms until
fatigue drags you down and you go to the Dr. to late. Back to Lucky! My thanks to Tyler Peterson for playing heads up ball.

Dody
and I studied every thing we could and decided to opt for the stem cell
transplant as the best option with only a 2-5% chance of mortality
because I was diagnosed extremely early in the disease process. I was
handed off to a hematologist, Dr.Kourelis of the research and treatment
team for amyloidosis at Mayo. This was after another 30 or so
appointments and tests.

In the last month I have had 4 chemo
treatments which consisted of 15 new pills and a cocktail shot
determined by a blood test each week with no ill effects. Lucky! 

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