Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We also decided to start this site and may transfer information into a blog format so that more people can access the information. We feel as though we are called to spread the word and hope that no other parent has to experience what we have and no other child will have to deal with this situation for the rest of their life. We appreciate your support and words of hope and encouragement. Thank you for visiting.