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Aug 2, 2018 Latest post:
Aug 27, 2018
Beatrice was born in November 2013 and shortly after was diagnosed with VUR (kidney reflux). After several hospitalizations and break through UTIs she had bilateral ureateral reimplantation surgery in September 2014. Feeding and overall development continued to be a struggle. Eventually she was diagnosed with Ehlers-Danlos Syndrome (EDS) which has caused many issues for her (FTT, SPD, anxiety, developmental delays, dyspraxia to name a few). She continues to have feeding and growth issues despite having a G/J-tube.
Inspite of all of this, Beatrice is a sweet, loving and funny girl who’s smile and giggle can light up a room.