Woman in red.

Barbara Richter

First post: Jan 9, 2013 Latest post: Jun 27, 2019

On December 27th, 2012, I was diagnosed with Waldenstrom's Macroglobulinemia.  A rare form of cancer involving my bone marrow.  Only 1,500 cases are diagnosed each yr. in the U.S.

If you want more information, you can go to, Journal and click on, "oldest to newest", which gives all the details how this started, or go to "newest to oldest". for current entrys.

My presenting symptom was a sudden onset of extreme pain in my feet in the P.M., peripheral neuropathy. I was referred to a neurologist by my Family M.D.  A blood test identified an IGM Proteins in my body, which were abnormal to have.

I was then refered to a Hematologist/Oncologist.  I had numerous scans and blood tests.  A bone marrow biopsy confirmed my diagnosis of Waldenstrom's.  I have 50% involvement in my bone marrow. It affects my platelets, white blood cells and red blood cells.

My first chemotherapy was on Jan. 9, 2013.  I will have chemo. every 3 wks. until June 5th.  Then every other month I'll be on maintenance chemo. for 2 yrs.  The goal is to get the IGM level down, so I can become healthier than I am.

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