Baher Malek

First post: Apr 23, 2014 Latest post: Apr 22, 2024
Tribute video to Baher's testimony and life : 
https://vimeo.com/798020669

  http://www.indystar.com/story/life/home-garden/2015/06/21/indy-dad-loses-memory-independence-faith/29058633/
Baher Malek was admitted to the hospital Tuesday, April 22, 2014, after having unexplained seizures. He had been experiencing flu-like symptoms and doctors expected to arrive at a diagnosis of meningitis or viral encephalitis. Despite exhaustive testing and a brain biopsy, no diagnostic cause was ever determined.  Most likely cause remains  viral encephalitis or a post infectious autoimmune encephalitis, due to parvovirus - a relatively benign & common virus causing "Fifth's Disease". After 7 weeks of continuous seizures (status epilepticus) requiring a pentobarbital coma,  along with a brain hemorrhage, Baher began to awake, breathe off the ventilator, and begin a long journey towards -  what we now know to be - a very limited recovery. These have been years characterized by frequent mental anguish and confusion, yet he never forgets to articulate the foundation that sustains a life: Hope in Jesus.  The miracle that  we have witnessed is that long days of mental toil and a continuous need for re-orientation are always rooted within a consistent  framework of love and concern for his family and precious Trust in the Lord.  We have many stories of how our Heavenly Father has provided for His children, even though it has been (and remains) so painful.   After months and years of hospitalizations, Baher still suffers from medically refractory seizures that require numerous sedating medications, complicated by amnestic syndrome. He lives with severe short-term and long term memory loss due to great damage to his hippocampus and temporal lobes which creates a baseline of  confusion and repetition.  Despite the severe TBI he sustained, his verbal skills are tremendous and faith is strong. His rehabilitation and healing remain a very dependent journey in God's good hands and will be complete when He finally sees His Savior.   Since 2016, Baher has been cared for at Spring Mill Meadows Nursing facility on 86th street where he maintains his wonderful sense of humor with bingo wins, visits from those he loves and practicing Christ-like  compassion for other residents as he himself receives care.  
Baher and Bess, have four adorable children: Clara, Benjamin, Zachary, and Theodore.
 
Thank you to everyone who has given to the family over the course of this journey.   Your generosity has been overwhelming, and the family is extremely grateful.  We are deeply thankful for the friends who continue to remember Baher and our family in prayer and are cheered by those who bestow visits on this dearly beloved  father and friend. 


Baher went home to be with His Lord and Savior (and to a clear mind) on Feb 2nd, 2023 after seven months in hospice at Methodist Hospital.  
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