Lucas Schauf

First post: Nov 6, 2017 Latest post: Mar 11, 2018

I have struggled with if, when, or how this information could or would be shared, but at this point we know we could use all the extra prayers we can get. 
From the beginning Michael and I have been open and ecstatic about expecting a child and sharing in the joy that comes with it. My pregnancy has been pretty textbook from the start and at 20 weeks we had his anatomy scan. Nothing abnormal was seen, but this wiggly little boy didn’t cooperate very well so we were sent to a specialist so his heart could be seen more clearly. That was the day our little world changed. 
Baby boy has been diagnosed with a critical congenital heart defect, Pulmonary Atresia/VSD/ MAPCAS. Along with a chromosomal micro deletion. As of now we know a few things for sure: we will deliver at Children’s Mercy in KC, and that he will have open heart surgery soon after birth and likely continued surgeries to get a full repair. So much will depend on: birth weight, O2 levels, and continued weight gain.  
We will be taking things one day at a time and appreciate any extra prayers as we continue this journey. We can not wait to be this little warriors parents and know God is going to take care of him and us. ❤️
“The pain that you’ve been feeling can’t compare to the joy that’s coming.”-Romans 8:18

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