We were thrilled to find out we were adding to our little family in January of this year, but soon found out that this baby's journey was going to be a bit different from those of our other two. In April at our normal 20 week sonogram, we found out that sweet baby has a pretty rare birth defect can CDH, or Congenital Diaphragmatic Hernia. CDH occurs in about 1 in 2500-5000 pregnancies. A hole forms in the diaphragm when it forming, which then allows for abdominal organs to herniate into the chest cavity. Basically, organs that should be in the tummy work their way up to the chest and steal valuable real estate from the heart and lungs, which is obviously an issue. CDH can run a very wide spectrum, and must be addressed after birth with surgery to correct the defect, again not as easy as it sounds. At our meeting with the neonatologist, she suggested we do a Caring Bridge to update people on baby's progress as we embark on this process.
CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.
