Jul 30, 2009 Latest post:
Feb 19, 2022
DEAR FAMILY AND FRIENDS,
THANK YOU ALL FOR YOUR LOVE, SUPPORT, PRAYERS AND CONCERN FOR OUR BABY JAELA. JAELA IS DIAGNOSED WITH HURLER'S SYNDROME MPS 1 AND WAS AT CHILDREN'S HOSPITAL IN LA FOR HER BONE MARROW TRANSPLANT IN 2008. PLEASE FEEL FREE TO SIGN MY GUESTBOOK.. THANK YOU ALL AND GOD BLESS YOU ALL..
Mucopolysaccharidosis type I (MPS I) is a rare disease in which the body is missing or does not have enough of an enzyme needed to break down long chains of sugar molecules. These chains of molecules are called glycosaminoglycans use to be called mucopolysaccharides. As a result, the molecules build up in different parts of the body and cause various health problems.