Baby Charron CDH Journey Baby Charron-CDH Journey

First post: Jul 18, 2016 Latest post: Aug 25, 2016
For those of you who don't already know Kyle and I went in for our 20 week ultrasound to find out what we were having and in that appointment Dr. Philpot told us that we would be having a baby BOY! Not a big surprise to us because of the fact that my side is pretty much made up of boys.  A few minutes passed and Dr. Philpot continued to tell us that she felt like something didn't look right on the ultrasound and she wanted her colleague to come in to help diagnose.  After a few LONG minutes they started to explain to us that our baby's stomach was up by his heart.  They went on to explain that it would be called Congenital Diaphragmatic Hernia which is where the diaphragm didn't fully develop and there is hole where the stomach and bowel moved up. She then said that we would be needing to get to UNMC in Omaha to get confirmation of the diagnosis.  We went to UNMC the next week where it was confirmed.  Since the diagnosis I have had an ultrasound done every month with UNMC in Kearney and then this past week Kyle, my parents, and I a made trip to Omaha to meet with everyone that would be taking care of us. It was a day full of appointments with the Cardiologist, Neonatologist, Surgeon, OB Doctor, and Fetal Medicine Coordinator. From here on out I will be going to Kearney for non-stress tests and ultrasounds two times a week and then I will be moving down to Omaha at 36 weeks so I am closer to hospital for delivery.  I am due August 24th but their plan is to induce me a week before that.  I will deliver at UNMC and then when he is born and stabilized he will be transported via ambulance to Children's where he will undergo surgery in the first few days of his life.  Then we will be staying in the NICU for however long it takes to get him healthy.  The doctors have said anywhere from 1-3 months on average because we don't know until he is born how his lungs have developed.  Even though this journey has definitely not been what we imagined when we found out we were expecting it has been easier knowing we have such a great support system with our families, friends, and community. This is how we will update everyone when we can.  All we ask is for your prayers :)

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