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May 2020, our beautiful, smiling little girl began the fight of her life.
We (Daniel & Sarah, parents) noticed a rash on Avery's legs. It was a weird rash, but nothing too concerning. 48 hours later she developed a fever. A negative COVID-19 test led us to believe this was just a nasty, run of the mill, viral infection. No big deal.
Fast forward 9 days: Avery is being loaded into a helicopter and transported to John's Hopkin's All Children's Hospital. She is sleeping 14-20 hours a day with a steady 105-degree fever.; our little ball of energy is febrile, dehydrated, and obviously deteriorating. Thus begins an unexpected and unwanted journey for our little family.
I (Daniel) thought I had experienced pain in my life but seeing my daughter in such agony on a daily basis has truly been heartbreaking. Avery is a fighter and the girl has grit. Stick with us-- Sarah & Daniel-- as we navigate a new chapter and continue fighting the good fight.