Audrey Canetto

First post: 5/10/2017 Latest post: 9/7/2017
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Audrey entered the world on Sunday, April 30th at 2:18 in the morning. The birth was nothing like I could have imagined but was exactly the most perfect experience I could ask for.  Audrey's daddy Seth got to announce "it's a girl" and cut the cord. However, shortly after we had some grave concerns. "Her ears look low" and "I think her chin is small- we better call the special nursery nurses to evaluate her." Are the things we heard. 
And just like that I realized that's Audrey's perfect enterance was just the beginning of our a long journey ahead. One that looked much different from what we had expected/anticipated/ thought.  The 'special nursery nurse' or NICU nurse who was assigned to Audrey was kind and once it was assessed that Audrey wasn't in immediate danger they allowed her to stay in the Deliver Room with me for about 2 hours after birth so we could bond and have skin to skin time. Having her taken away to go to be assessed was the hardest thing I had ever had happen to me. I sent Seth with her to be with her because I still couldn't move my legs. My nurse was kind and said I should get some rest but all I did was cry until I could just barely think I could stand to go to the bathroom so I could go see my little Audrey. 
The next couple hours consisted of us being told Audrey has an extremely rare genetic mutation and that they believe it to be Treacher Collins Syndrome (TCS).  They wanted to keep her in the NICU over night to be sure her airway stays open. 

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