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12/7/2016 Latest post:
In November 2010, Ashtyn (3yrs.) started having these "episodes" that were unexplainable. He had EEG after EEG with no luck catching anything. We also noticed a change in Ashtyn's behavior, he would get angry and become very aggressive. In April 2012 Gillette finally caught this Episode on a EEG. Ashtyn was diagnosed with Intractable Temporal Lobe Epilepsy that day. He has been on 8 AEDs plus the Minnesota Medical Marijuana program. There's always a honeymoon period, but never seizure free. In August 2016, we went back to Ashtyn's original Dr. in Rochester, Dr. Wirrell. She wanted another MRI (last one was in 2012). Low and behold this MRI showed a tumor in the left Temporal Lobe, where Ashtyn's seizures originate. Doc believes this tumor has been growing in there since birth! August 11th we met with Dr. Wetjen, he suggested a whole left Temporal Lobectomy. Yes, he will be removing all of Ashtyn's left Temporal lobe. With an 85% change of being seizure free, we have to do it. December 13, 2016 we will head to Rochester for another MRI. Then Wednesday, Dec. 14. Ashtyn will undergo his brain surgery. ( I can't believe I just said that!) Doc said it will take 2 Hours. Then 1 night in ICU. We will be in Rochester a total of 3-5 days after surgery. We could use all your prayers for a successful surgery and recovery! ❤️️❤️️🙏🏻🙏🏻 Here's to a seizure-free life without AEDs! 🎉🎉