Nov 28, 2017 Latest post:
16 hours ago
Thanksgiving... A week ago, seems like a lifetime, my daughter comes to me with a rash on her ankles. We dismiss it as a mild rash probably from playing in the grass outside. My kids and grass don’t mix. Just realized how funny that sounds. Each day she shows me as it slowly moves up her leg. Small red pen like dots. Weird I thought as we packed up the car to head to the mountains for Thanksgiving. A sad time for me remembering my father who suddenly passed two years ago at this time. Peace and quiet, and lots of food. So I ignored this warning, gave her some Advil and we went. Thanksgiving morning she came again, this time with blood blisters in her mouth. We’re no strangers to canker sores and Ash is a nervous cheek biter. Weird these were black, not red or white like usual. All very gross. So we agree she is probably having an allergic reaction to he new eczema cream. Since the holiday we would call her dr in the morning. We also agreed our emergency plan if the reaction triggered her asthma.
Friday after Thanksgiving, her pediatrician urges us to come in right away. They are only open half day. Casey drives like a 95 year old lady but this day it was NASCAR . After what seemed like forever we arrive at the pediatrician who immediately orders a blood test after seeing all the bruising on her legs and blood blisters in her mouth. Bruises I thought were from a recent scooter accident, but that was a week earlier and now they seem to have multiplied and gotten worse all over her legs. More since the day before.
2 emergency rooms later that day we are told she either has leukemia or aplastic anemia. And she’ll need blood transfusions and many tests. Including a bone marrow biopsy where they put her under, scheduled the following morning.