Welcome to Arthur's CaringBridge website. As many of you know, Arthur, our courageous young warrior, was born with an extremely rare congenital bowel and bladder disease called Megacystis Microcolon Intestinal Hypomotility Syndrome (MMIHS) due to a genetic mutation on the ACTG2 gene. There are roughly 200 reported cases in history. He is quite literally one in a million(s).
We are ready to tell more of Arthur's story and garner support for Arthur and our family as we continue to walk through the journey of raising an amazingly resilient child with a chronic and, at times, critical illness. We plan to use this site to keep our family and friends updated on his current and upcoming trials and tribulations, as well as to catch any new "Warriors4Arthur" up to speed on our adventures until now.
Alex and I appreciate your support, positivity, love, good vibes, and prayers. We will let you know when Arthur is in the hospital and back home again. You can best support us during those times by lifting Arthur and our family up in prayer or by simply keeping us in your thoughts. Please be patient if at times details are vague; we will catch you up when we are able to.
Also, we know some of you live far away and enjoy supporting our family with meals, coffee, and treats for Arthur and Peter. For those interested in financially donating, our family Venmo is @Kourtney-Hoff. Our Meal Train link is also listed under the Ways to Help tab. For awareness, “Caring-Bridge Tributes” go 100% to Caring-Bridge, not to our family.
Alex and I encourage you to send Arthur your words of hope and encouragement and to share your experiences, stories, photos, and humor with us. Thank you for being #Warriors4Arthur.