Our mom Ann Storkamp was diagnosed with Progressive Supranuclear Palsy (PSP) on July 13th 2018 . About 2-3 years ago family and friends started noticing changes with walking and speech . Last year Ann went to the eye doctor due to her vision , she was no longer able to move her eyes up and down, she was only able to keep them straight ahead . Ann went to the Neurologist and she was diagnosed with PSP . Today Ann is still the great loving women she has always been , her mind is still all there , but her body is failing her . She is unable to walk independently and her eyes are so sensitive that she wears sunglasses even while in the house. Communication is also a struggle , she is still able to communicate , but slower and with short sentences.
Progressive Supranuclear Palsy is a sporadic and fast progressing disease , they do not know the cause of it . It is a disorder of the brain that causes issues with balance , walking and having normal eye movement . Speech and difficulty swallowing as symptoms worsen . In addition to physical impairment , patients also tend to experience cognitive impairment and personality changes . There is no cure and we are unable to determine how long Ann has had PSP . Only 6 in every 100,000 people world wide have been diagnosed with PSP.
Alan (our Dad) has been staying home with her , helping her with everything , he wants to spend every moment with his wife of 40 plus years .
You can go on “Ways To Help” on top of this page, and you will be directed to Ann’s GoFundMe, if you would like to donate.
Or go to https://www.gofundme.com/f/1owepa04qo
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