Updated: It is with both Dignity & Grace that I have decided to share my journey with you. It is because of your love and prayers I am always fighting! I’m now 52 years old and have had several autoimmune diseases since age 18. They are saying I am in the end stages of my life. I am trying to come to terms with that, I’ve already done this once and it was a lot easier than this time seems a lot harder. Passing on my wonderful for Club to Angela Anderson Was a very proud moment, but at the same time it was heartbreaking knowing I was unable to do that work anymore. But ,I knew if I couldn’t give it my all I had to step aside and with Angela I know you are all. In the greatest of hands. It is believed these have been the repercussions of a cervical fracture I suffered during college. The doctors at Mayo,Clinic believe that spinal fluid got into my bloodstream and caused an infection that was never treated when I fractured my neck . Altogether different, I’d been born with Common Variable Immunodeficiency. I had Endometriosis, Hashimotos, RA, Sjogrens....Them, in 2017 I was diagnosed with Stiff Person Syndrome (SPS), which is a rare acquired neurological disorder. This led to Chronic Inflammatory Demylenating Polyneuropathy (CIDP) and autonomic dysfunction throughout my body. July, 2020 we discovered the SPS entered my heart.i now have Lasix resistant Congestive Heart Failure (CHF)because my BRAIN isn’t sending the correct signals to my heart I spent 11 days in the hospital over the holidays as we tried to come up with a plan, we are still looking for one. The CHF I have is t typical. It isn’t functional. My brain can send a signal to stop it at any time. My only fear is boy hearing everyone’s voice at least one time should this happen. I will not take my life for granted. I will, it takes my loved ones friends life for granted. I am trying to FaceTime with everybody, but most people don’t answer. Thank you to the religion.
Please join me on my journey as I try to come to terms with my new normal, with debilitating disabilities and a heart listening properly. As I seek another opinion, please bear with me! I am determined to be better! Do better! Justin Keep Swimming!’ I habe a lot of other things going on that I’m not ready yo divulge. Will you be one of my cheerleaders? Supporters? Friends? I have a lot to say….i hope I get to finish my memoir and write a fictional novel about a love story beginning with a car accident during college similar to mine, and one that my doctor would like me to write about all that I’ve been through medically. I’m taking two writing classes. I also have MasterClass to work on and I have this really cool book with 5000 writing prompts that I used to begin essays for my j memoir. My memoir will be a bunch of essays and my favorite book reviews and poems. Echo Garrett of Lucid House Publishing is my publisher. So, here is to having all the time to accomplish all I’d like to accomplish~ speaking with all the people I’d like to speak with, writing all I’d like to write, and loving all of whom I would love to love.. beginning right here with my husband and babies. Thank you to all of my best friends that are for me every single day.