Jun 20, 2013 Latest post:
Nov 26, 2020
Anneliese is 8 years old and has been struggling with serious pulmonary issues since 7 months old. She has an obstructive lung disease which has been difficult to treat along with a rare genetic disease called Tumor Necrosis Factor-Receptor 1 associated Periodic Syndrome (TRAPS) and she has been steroid-dependent since infancy. Vasculitis symptoms and Kawasaki Disease have left Anneliese with cyclic flares of hard to treat immune symptoms. We began this site many years ago during a PICU hospitalization to update our friends and family and continue to update as Anneliese’s care for chronic lung disease, TRAPS and adrenal insufficiency continue.