Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you, Andy & Lou.
Our story. Back in March 2020 I went to bed perfectly fit and healthy and by the time my alarm went off 8 hours later I had lost sight in my left eye, the world suddenly became misty and pixilated. A hospital appointment found Optic Neuritis (an inflamed part of the eye which helps your vision focus) there is no treatment for this and I was told it would go away on its own which could take up to 18 months however, I knew something else was wrong, I could feel something wasn't right inside my brain often saying to Lou "I want to pop my skull off and scratch my brain" and "its like a part of my brain is missing there's a blank space which has only come about since the vision issues" I pushed and insisted that an MRI scan was needed and I was fast tracked for the scan, sure enough come August 2020 the first MRI detected multiple areas of demyelination. I was then booked in for a more in depth MRI scan which takes just under an hour looking at your brain and spinal chord. They found over 20 brain lesions and plaque discs in my spinal chord bringing about a diagnosis of MS. Further MRI scans have shown decreases of some lesions and the development of new lesions. Because of Covid19 treatment options have been delayed but... I am finally about to start treatment for MS I/We just have to pick which treatment is best for our circumstances. My next post will go into more detail about the 2 possibly 3 treatments being offered to me. In the mean time I want to thank you for joining me and following my story while we learn to live with our new "normal". Andy