Apr 11, 2022 Latest post:
May 25, 2022
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This is Andrew's Story told by Traci Fulmer on behalf of Janey Cloe.
Almost a month ago, Andrew had what they thought was a bad allergic reaction that became a worsening cough and fever. That led Andrew to a new doctor (he’s not seeing a pediatrician anymore), an admission to Seton on 4/4, and a pneumonia diagnosis with possible kidney damage. He tested negative for Covid twice, so the Cloes are grateful that was never an issue. However, he wasn’t improving as expected with antibiotic and steroid treatment. He received two blood transfusions with 4 liters of blood, but still did not improve. Every time they tried to reduce the steroids, his condition would deteriorate. Seton recommended the move to Scott and White, where doctors had the capacity to perform additional tests.
Andrew was admitted to Scott and White on Monday evening 4/11, and since then has had a barrage of tests (hundreds of them) to pinpoint what is wrong. His hemoglobin is low. He has vasculitis, a rare condition affecting the lungs and kidneys. They’re awaiting kidney biopsy results to see the extent of damage. They are treating him with plasmapheresis, and once the biopsy results come in, they will determine the best course of treatment for the kidneys.
Because the vasculitis affects the lungs the way it does, he’s on high flow oxygen to combat the inflammation in his lungs, and he’s receiving high dose steroids to improve his body’s ability to fight the inflammation throughout his vascular system. He’s still in ICU, with hopes of moving him into a regular room this weekend. They have 9 total plasma treatments planned, and they have to be scheduled a day apart. That puts us in the hospital for another couple of weeks. The kidney biopsy results can prolong that.
This IS treatable, but the treatment may be extensive – over a few months. Not all of that will be in-patient, so prayers for that to be minimal would be great. He’s also in a lot of pain through this, and the Cloes would love prayers for comfort.
How can you help today? Pray. His spirits are down, and there isn’t a clear end in sight for the hospitalization. He can’t have live plants or latex balloons, but cards and mylar balloons are wonderful. He has an appetite, and he likes Chick-fil-a, Jersey Mikes, Cane’s, Whataburger, Olive Garden, BJs, Starbuck’s (Dragon drinks and sandwiches), and snacks (prefers salty over sweet, but likes both). He’s also playing his Switch when he can, so games are a great option, too. He likes comics as well. If you would like to visit, please text Janey first (254.421.9303). They are performing lots of different procedures, so Janey needs to pinpoint when it’s a good time to visit.
Andrew and his family are floored by the outpouring of love and prayers. He’s received Legos and lots of cards, signs, and mylar balloons. They can’t express their gratitude enough for everything. They so much appreciate all you have done and continue to do. We trust Yahweh our Lord to heal, and we are so grateful He is watching over the Cloes.