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Amelia was diagnosed in March 2015 with hereditary paraganglioma (SDBH mutation) in which she grows tumors along her sympathetic nervous system. There is no cure to date (but we are hopeful) - best option is to surgically remove them if possible. She has two metastatic tumors now - one in her spine (T10) and in her right rib. We 'appreciate your prayers and words of hope and encouragement that this disease will cease and desist. We also need prayers that her team of doctors feel invested in fighting this disease and treating Amelia with the daily associated symptoms. Love, Rick, Alicia, Olivia and Amelia