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Refuge Under His Wings
Dec 19, 2019 Latest post:
Dec 19, 2019
Hello Team! Thank you for checking out Amber's Caring Bridge Site. This is going to be a place where I (Derek) chronicle what it's like to support someone living with autoimmune diseases. Amber may post from time to time as well, but this will mostly be me, sharing what Amber's life is like, and updating the world of the reality of invisible diseases. I plan to use this as a way to be vulnerable and real, as so often we shield our personal lives from others, hiding the hurt and pain and trying to go alone. We are not made to be alone; God has made us to dwell in community. This Page will be an attempt to engage in our community at a deeper level. I should note the first few posts were created on our GoFundMe page, but as that is not the correct outlet for more of a blog, I have moved them here.
A little bit about Amber. She was a Charge Nurse at Children's Hospital in Minneapolis, living out her life's calling to take care of kids with cancer. This was Amber's passion, and she enjoyed it so much. One day she came home from work and never went back. Pain sprang up out of nowhere - a deep aching pain in her muscles; a burning severe pain in her hands and feet. It has been quite a journey for Amber to get any sort of answers over the last two years. Finally, we got answers, unfortunately they did not come with a whole lot of positive treatment options. Amber has been diagnosed with Fibromyalgia, Sjogren's Syndrom, and Chronic Fatigue. Over the course of this Page I will be exploring what each of those means, and how they effect Amber. Thank you for reading, and don't hesitate to reach out with encouragements or questions.