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5/15/2017 Latest post:
I was diagnosed with stage 4 LeioMayo Sarcoma (aka LMS) in December of 2014. I was given three years - and basically told I would be on harsh chemo for the rest of my life - and that the chemo would kill me. I was recently diagnose with stage 0 breast cancer in March 2017.
I am trying not to just extend my life - but to cure myself of this disease. A cure currently does not exist with conventional treatment options for this type of cancer, so I am exploring non conventional treatments and also trying to partake in clinical trials without having to endure chemotherapy - something that I am adamantly against.
My sister Katie and I have both inherited the genetic disease that plagued my mother and her sister and her mother (all have sadly passed of different cancers as a result of our syndrome called Li-Fraumeni aka LFS). This adds another layer of issue for me, because our P53 gene (the one that is the tumor fighting gene) - ours essentially does not work...so my body does not fight tumors as yours does...hence the cancer at a young age, and multiple kinds of cancer.
I will update this page WHENEVER THERE ARE UPDATES.
I kindly and respectfully request that everyone REFER TO THIS SITE FOR INFORMATION INSTEAD OF ASKING ME DIRECTLY.
My life is cancer. Every day is cancer. I do not want every conversation to be cancer. Please - please stop asking me. I am so lucky to have so many people in my life that care so deeply for me and are so concerned for me. I love all of you...you all mean so much to me...but updating people has become a major part of my day now - and its taking up time I can share with my family. Please understand this and know it comes from a place of love.
I also want to mention my husband, Dave. When a family member is sick - the caretaker(s) carry a very heavy burden. Dave has been remarkable. He has gone above and beyond what any husband should have to endure within the first 10 years of marriage. I truly feel blessed that I married such an amazingly supportive and kind and compassionate man. He is the absolute best father I know...or have ever known. I love you, Dave. Thank you.