Ally McElya Ally's Updates

First post: 5/15/2017 Latest post: 7/12/2017
I was diagnosed with stage 4 LeioMayo Sarcoma (aka LMS)  in December of 2014.  I was given three years - and basically told I would be on harsh chemo for the rest of my life - and that the chemo would kill me.  I was recently diagnose with stage 0 breast cancer in March 2017.


I am trying not to just extend my life - but to cure myself of this disease.  A cure currently does not exist with conventional treatment options for this type of cancer, so I am exploring non conventional treatments and also trying to partake in clinical trials without having to endure chemotherapy - something that I am adamantly against.


 My sister Katie and I have both inherited the genetic disease that plagued my mother and her sister and her mother (all have sadly passed of different cancers as a result of our syndrome called Li-Fraumeni aka LFS).  This adds another layer of issue for me, because our P53 gene (the one that is the tumor fighting gene) - ours essentially does not work...so my body does not fight tumors as yours does...hence the cancer at a young age, and multiple kinds of cancer.


I will update this page WHENEVER THERE ARE UPDATES.  


I kindly and respectfully request that everyone REFER TO THIS SITE FOR INFORMATION INSTEAD OF ASKING ME DIRECTLY.


My life is cancer.  Every day is cancer.  I do not want every conversation to be cancer.  Please - please stop asking me.  I am so lucky to have so many people in my life that care so deeply for me and are so concerned for me.  I love all of you...you all mean so much to me...but updating people has become a major part of my day now - and its taking up time I can share with my family.  Please understand this and know it comes from a place of love.


I also want to mention my husband, Dave.  When a family member is sick - the caretaker(s) carry a very heavy burden.  Dave has been remarkable.  He has gone above and beyond what any husband should have to endure within the first 10 years of marriage.  I truly feel blessed that I married such an amazingly supportive and kind and compassionate man.  He is the absolute best father I know...or have ever known.  I love you, Dave.  Thank you.

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