First post:
May 13, 2019 Latest post:
Oct 27, 2019
Allie learned at the young age of 10 years old that she had a genetic muscle disease called "multicore muscle disease". This disease affects your skeletal muscles which in Allies case included her heart. Medication has allowed Allie to live a normal life overall. In 2012, she started to notice some additional weaknesses and more frequent palpitations. At that time, the doctors recommended that a pacemaker/defibrillator (ICD) be placed for backup. On January 21st, 2016, Allies ejection fraction had decreased causing her to develop blood clots that moved to her brain which caused her to have a stroke. Sanford's quick reaction extracting the clots allowed Allie to make a full recovery and be back at work in 1 week. In the beginning of 2019, Allie's ICD went off 12 times, she had a heart ablation and had a new ICD put in to help her heart functions. Since the procedures, Allie has not felt well and ended up in the doctors office several times A followup appointment to the Mayo Clinic in Rochester on May 1st found that the heart function had declined even more. She was admitted to St. Mary's hospital for excess fluid on her heart and are evaluating whether she is a candidate for a heart transplant, which is a very extensive process. The results of all the tests will be reviewed on Monday, May 13th, by the transplant team, which includes 30-40 physicians. We will keep you posted on the results. Thank you for all your prayers and well wishes!
