After 7 months, we finally have a diagnosis for the dementia/epilepsy issues Al has been experiencing. We were fortunate to connect with a brilliant group of neurologists in Portland who work with guidance from The Mayo Clinic. The diagnosis: LGI1 encephalitis autoimmune disease. Antibody’s are attacking his brain!
It is very rare but thankfully they discovered it. After much testing, we have a start date for treatment. Al is headed to St. Mary’s first thing Friday, May 22 for a heavy infusion of steroids designed to combat these little buggers. It is an intense 5 day dosage and will then move to a maintenance dosage for 12 weeks. We are thankful for your love, support and inquiries. Hoping by posting here as new information arises, you will be kept updated if needed.