Sep 25, 2018 Latest post:
Oct 13, 2018
In April of 2018, I went into the doctor with what I thought was an ear infection. I was having headaches, dizzy, ear pain, and couldn't hear. After many referrals, tests, scans, and doctor visits I was diagnosed with a macroadenoma. This was an issue totally unrelated to the hearing and ear pain. A macroadenoma is tumor on the underside of the brain on the pituitary gland. Mine was 1.9cm in size (larger than what they see most often). These are slow growing tumors without many answers to the "why". They think I have had this for at least 10 years. Unfortunately, this tumor tested positive for a rare disease known as Cushing's Disease. The disease affects about 1 in a million people per year. This continues to baffle doctors as my case is unique. I do not fit the normal "cushing's patients" based on my symptoms. On 6-22-18, I underwent brain surgery by 2 surgeons to remove the tumor. Since the tumor removal I have been feeling worse as far as the symptoms go. This is because my cortisol levels have dropped drastically from I am used to.
Cushing's is something that I will have to live with, but it will need to be monitored and managed once it is under control. Dr Chabot will continue to monitor me every year for tumor growth as well.