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May 12, 2017 Latest post:
Dec 9, 2017
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. Aidan's story begins nearly three years ago when he reported having some spells throughout the day. As these spells increased in frequency and duration, we grew concerned and revisited with his pediatrician. His initial diagnosis was anxiety. A few months later, as his spells became more intense, we made a decision to treat with medication. Unfortunately it had no affect and in March, 2016, Aidan had his first generalized seizure. At that point, we knew we were dealing with something other than anxiety. Two weeks later, Aidan was diagnosed with Epilepsy. After 9 months and multiple medications, his Epilepsy was deemed intractable. This means that medication does not relieve the seizures. His team of Neurologists has discovered an area in his right temporal lobe that appeared to be cortical dysplasia. With surgery, often these malformations can be removed and patients have relief from their epilepsy. We were all hopeful that the neurosurgeons would be able to accomplish the repair. Aidan began the testing process to become approved for surgery, but before it was completed, he suffered a subdural hemmorage and had surgery to remove what they had then determined to be a tumor.