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Addy Trevino was a healthy, active, happy-go-lucky two-year-old up until two weeks ago. Now she and her family are facing six weeks of radiation for an inoperable brain tumor.
The Trevinos have a five-year-old daughter Miya and Addy who was born Aug. 31, 2014. Jen and Treay lovingly refer to Addy as their “Little Monster” and “Addy Boo” because of her high energy. She had the ability to walk the windowsills and would figure out how to go anywhere she wanted to go, even if it meant using the dishwasher door to climb up on the counter top.
Early in the week of June 26, the mom and dad noticed that Addy was getting clumsy. She would tilt her head to the left when she walked, couldn’t walk in a straight line, was slurring her speech and had trouble focusing. Jen thought that it might be a growth spurt but the symptoms got worse. At Jen’s brother’s funeral Wednesday, June 28, others noticed something was wrong.
Thursday, Jen took Addy to two different area doctors and didn’t get any answers. A CT scan was ordered for the following week.
Friday morning, Addy started vomiting. They immediately took her to the ER, had an MRI which revealed the tumor and she was life flighted to Seattle.
The doctors saw the tumor on the MRI and they had a feeling it was a very fast growing tumor because she went from being perfectly fine to not being able to walk and vomiting in such a sort period of time,
Doctors diagnosed Addy with pediatric Diffuse Midline Glioma. Because the tumor is on the brainstem, it is inoperable. While Addy is in no pain because of it, the tumor affects her motor abilities and can cause an inability to communicate what she is thinking. It particularly affects her balance, which makes it a challenge for mom and dad to keep up with their "Little Monster"
Even though scientists have been studying this tumor for more than 100 years, very little is known about it. While Addy will undergo six weeks of radiation to kill the tumor that now makes up 20 percent of her brain, the tumor is known to mutate.
The Trevinos are staying in Seattle because she is under the care of the best pediatric radiation specialist in the country. The radiation will make her feel better, for a little while, but this tumor has no cure. Jen's heart lurched with the doctors words; ‘It will make her feel a little better, for maybe a year.’ I cannot explain the feeling that I experienced when I heard those words.”
“I can't take this away and ultimately that's the hardest thing...” said Treay
The family is staying at the Ronald McDonald House in Seattle during Addy’s radiation treatments. If she is doing well enough, Addy will be released to come home.
Then Jen and Treay will be trying to fill their best to make Addy's journey the best it can possibly be.
Their expenses are continuing whether they are here or not. They just bought a house. They are out of work for a minimum of six weeks and most likely more. If time is limited, their whole idea is to make this year as great as possible. If we can help alleviate their expenses, that worry that is just one less thing for them to have to deal with.
Gifts and notes can be mailed to the Ronald McDonald House ATTN: Trevino 5130 40th Ave NE Room 275 Seattle, WA 98105.
To donate to the family checks can be made out to Benefit of Addy Boo. Checks can be mailed to Citizens Alliance Bank PO Box 720, Seeley Lake, MT 59868. One hundred percent of the donations will go to the Trevinos.
A GoFundMe site is also available. To donate visit https://www.gofundme.com/Help-the-Trevino-family