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Nov 7, 2017 Latest post:
Jul 30, 2018
Welcome to my CaringBridge website. I'm using this to keep family and friends updated in one place.
In June I had a few MRI's done after visiting my primary care physician and then a neurologist at Essential Health in Fargo. Something just felt off. I had a hard time speaking at times, moments where I couldn't move my hands or arms, and the left side of my body would go numb every now and then. Anyway, the MRI showed a small lesion in the center of my brain in a area called the corpus callosum. The corpus callosum is the area of the brain that connects both hemispheres. It is basically the part of the brain that allows the left and right to communicate with eachother, it's often referred to as the brains super highway. After the initial MRI I had a spinal tap/lumbar puncture done to rule out various diseases or infections. Everything came back negative. The next step was a visit with a neuro-surgeon in Fargo. That visit ended with a referral to Mayo in Rochester, MN. After my first appointment at Mayo on Oct. 12th it was suggested that I have another MRI done. From the time of my first MRI in June to the middle of October, that lesion had grown and it was quite clear that there was a big problem. By the way, lesion is a nice way of saying neoplasm... which is a nice way of saying tumor. After visiting with several other Doctors at Mayo we decided to move forward with a biopsy. On October 20th I went under the knife and had a stereotactic biopsy of the lesion on the left side of my brain. The surgery went well and I had no complications other than throwing up all of the cranberry juice I drank when I came to. Should have had toast first I guess... The problem is that this cannot be removed, which is why we could only biopsy the tumor instead of resecting the whole thing. Tough spot for a tumor to be. The pathology [UPDATE] finally came back after a month of waiting. It's not a common type of cancer from what the doctors are telling me. Not what I was expecting to hear at Mayo! What they have been able to tell me is that it is an Anaplastic Astrocytoma with the IDH WildType gene, grade III, centered in the body of the corpus callosum extending in to the Thalamus. Astrocytomas with the WildType gene are more aggressive than the ones with the IDH Mutation... I started radiation on Wednesday, November 8th. Because this has grown so much in a short amount of time we are trying to get ahead of this and shrink it down as best we can. Looks like I'll be living in Rochester until the end of December. Radiation every day Monday though Friday. Chemotherapy will start mid January after I recover from this first round of radiation and go from 6 months to a year...
I'll keep this as updated as I can. I'll also try to post pictures of my treatment and scans for those who want to see.