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Abron Quinn Kelly
9/26/2016 Latest post:
My name is Abron Quinn Kelly. I am a 21 year old girl, but my story started when I was 6 years old. When I was six, my brother and I went for a routine checkup where they discovered I had hypertension. After a year of tests the doctors found out that I had a rare kidney disease called Nephronophthisis. A disease for which there is no cure. I could and would have to have a transplant, but the doctors said it would not be needed until I was in my late teens or early twenties. Within the next year my health would rapidly decline and I would need a transplant soon. My mother stepped up to the plate and on May 4, 2005 I received her kidney. For reasons unknown to us and the doctors my mom's kidney immediately failed. They would take me back to surgery four times to try and salvage it, but sadly to no avail. I was placed on the kidney transplant list and they put me on hemodialysis. Hemodialysis never worked well for me. I would have multiple catheters placed throughout the nine months I was on it. I was sicker than ever. After nine months of hemodialysis not working well the doctors finally put me on peritoneal dialysis. Peritoneal dialysis was not a great life, but a better one. Then on September 12, 2006 I got a call that there was a kidney. It was the miracle I had been hoping for. I have lived happily and mostly healthy for eight years with it, but in 2014 my health started to decline again. My creatinine levels started going up and in March of 2014 my nephrologists decided to put me back on the kidney transplant list. They wanted me to receive a kidney before having to be put on dialysis. That did not happen. In June 2016 I was put on peritoneal dialysis. Since being placed on the list in March 2014 I have gotten three calls, none have gone through. I am waiting patiently. This CaringBridge is to keep people posted about what is going on in my day to day life with my illness. Thank you for your thoughts, prayers, and warm wishes.