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2/5/2016 Latest post:
Abigail Lehfeldt was diagnosed with craniosynostosis on Decemeber 11th 2015. This is a condition when one or more fibrous joints in the skull (called sutures) close too early. In other words her forehead bones fused together too soon and won't expand as Abby's brain grows. They have abnormal skull shape, abnormal forehead shape or asymmetrical eyes/ears. This is the most common physical deformities in infants about 1 in 2,000 births. the treatment requires surgery called cranial vault remodeling. This separates the sutures, reshapes the bones, and places them in the proper position, most patients only need one surgery. Abby has metopic suture synostosis with trigonocephaly.
Gillette Children's Specialty Healthcare in St. Paul, MN. has the top pediatric specialists in craniofacial/plastic surgery and neurosurgery for this condition. The interdisciplinary team of experts is leading and pioneering the latest treatments and technologies which reduce recovery time and improve results. Dr. Robert Woods and Dr. Peter Kim are her surgeons.
She is now getting ready for her surgery, starting on Jan 17, with some blood work and then started Procrit shots weekly for 3 weeks. The Procrit shots helps increase RBC's to help reduce bleeding during surgery and blood transfusions. Abby is doing good just a little bone soreness from the shots. On, Feb. 5, Abby has appointment @ Gillette's for her pre-op visit, teaching and tour of the hospital. Chris and Bridgit are taking the boys along and making a weekend vacation out of this circumstance. By doing some fun things in the cities and lots of swimming at the hotel. We will staying @ the Best Western International Plus Capital Ridge in St. Paul. The surgery is scheduled for Feb. 8 at 9:30AM it will take about 2 hours. She will be in PICU for one night, then peds for 4 days - out on Friday if all goes well. Chris, Bridgit, and Nancy will be in the cities the whole week and alternate being bedside with Abby while she recovers in the hospital.
We truly appreciate all the thoughts, support and prayers. Please continue to pray for us and our sweet baby girl Abby. We will keep you updated throughout the process the best we can.