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Ashley Acevedo was an amazing 10-year-old girl who was wise beyond her years. She was bright, devoted, artistic, kind, honest, thoughtful, determined and full of life. She never complained and she always thought of her younger brother and friends before herself. Sadly, last night, we lost Ashley after a 2-year illness.
Her symptoms began in second grade. Although her undiagnosed illness progressed she pushed on. She kept a positive outlook through endless doctor appointments, hospital stays, treatments etc. She was determined to be at school to learn and learn. In 3rd grade, she was finally diagnosed with juvenile rheumatoid arthritis. Although treatments began, her symptoms progressed and her body weakened. She was then re-diagnosed in 4th grade with MS; another misdiagnosis. In early October, Ashley was diagnosed with a disease called Scleroderma. Scleroderma is a rare disease especially in children. The type that she had attacked her organs and they began to shut down. In early October she was admitted to Riley hospital. After 4 weeks in the hospital with a terminal prognosis she asked her father to take her home to spend the rest of her days in peace and quiet with her family. Ashley’s devoted father was at her side the entire hospital stay as well as at home in hospice.
Due to caring for his baby girl, he was unable to go to work to earn a living. He has depleted his bank account during this time and is now facing medical, funeral and burial costs. We would like to help support her father and little brother by relieving their financial burden.
Whether you can donate or not, we ask for your support. We ask for prayers and we ask you to pass this along on your Facebook or other social media. Ashley has touched the lives of so many. Her family and community appreciate your continued support, love, and well wishes.