Abigail Alvey Abby Strong

First post: Sep 6, 2019 Latest post: Sep 17, 2019
Abby has Niemann Pick Type C-1.  There is no cure. It's an ultra rare and fatal genetic metabolic disorder that affects roughly 500 people word wide. It's onset and progression are almost completely unique to the individual with a possible life expectancy based on age of onset.  The earlier the onset the worse the prognosis.  Abby began showing signs at birth.  She has beat the statistical odds and every year from here on out will be a true gift.  But Abby is a fighter just like her Mom, Dad and big sister.  We will not give up. Join us and be Abby Strong.
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