Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Aaron will have surgery on April 5th at Barnes Hospital to remove a Dysembryoplastic neuroepithelial tumor (DNET). We thank you for all of your prayers and words of encouragement. We truly have some wonderful people in our lives.
This is how it all started: On April 14, 2013 I woke up in the middle of the night to Aaron having a massive seizure. I honestly had no idea what was happening since this had never happened before and frantically called 911. His seizure lasted almost 45 minutes which is an EXTREMELY long seizure. Aaron had just returned from a mission trip to Haiti where he had taken anti malarial medication. I immediately looked up the medication and found that seizures were a side effect. He had just taken his last pill two days before so we both assumed this was the cause of the seizure. The next day the neurosurgeon walked into the room and gave us the shocking news that Aaron in fact had a brain tumor.
The bottom line is that it is a good type of tumor (non cancerous) but in a bad spot (deep in the temporal lobe). DNET tumors are notorious for being resistant to the anti-seizure medications that Aaron takes everyday which has led to an increase in seizures. Aaron only has seizures when he is asleep but they are typically very intense. So here we are, trying to get this taken care of, once and for all. Thank you for all of your prayers as we face the week ahead. I will use this site to keep everyone updated on Aaron's surgery and recovery. :)