TAYYIB's Page

Welcome to Tayyib's Web site. This page is intended to help our family and friends keep up on Tayyib's treatment for Clear Cell Sarcoma of the Kidney (CCSK).

Tayyib was diagnosed with this childhood cancer on July 17, 2003. Since then he has undergone surgery (July 21, 2003) to remove his left kidney and the cancerous tumor that was the size of a grapefruit attached to the kidney. During surgery, he also had a Hickman port placed into his chest, under the skin, that feeds directly into a main vein. This allowed the medical staff to easily take blood from him and also allowed an easy way to feed the chemo treatments into his body.

His diagnosis after surgery was CCSK, stage 3 - focal anaplasia. From the cell biopsy they discovered that his cancer had spread to the nearby lymph node in a small area, so that is how they came up with the final diagnosis. Because the cancer was found in the nearby tissue to the kidney, he had to also undergo 7 days of radiation (August 4 - 12, 2003)and as of Thursday, January 29, 2004 completed his 6 months of chemotherapy, which this type of cancer called for in treatment. In addition, as of March 5, 2004 he is in remission. On March 10, 2004 he had the Hickman port removed.

His prognosis is good. Almost an 80% 6-year cancer free survival rate. However, his type of cancer has a higher recurrence rate than other childhood kidney cancers. It can take up to 10 years to reappear in the abdomen, brain or bone. Because of this fact, Tayyib will need to undergo many tests, CT and bone scans throughout his childhood to make sure there is no sight of the cancer recurring in his body.

Journal

Wednesday, February 6, 2008

Yesterday was Tayyib's annual check up. It was the first yearly exam and tests. All other appointments had been at 1, 2, and then 6 month intervals until this one.

He is now almost 4 years cancer free! Yahoo! With this type of cancer (CSSK) the highest rate of reoccurence is within the first 3 years so we are beginning to breath a little easier. He still has a chance of reoccurence until he's into his teens but what great news for now.

This last weekend my little kindergarten lost his first tooth. The tooth fairy came and stole the tooth and gave him $1.00 bill that he stuffed right into his mickey mouse bank. He is saving for a new Playstation game although mom makes him put half of the money into his savings account as well.

This past November Tarrik, Tayyib's younger brother turned 4 years old in the fall he will start 4 year old kindergarten at the YMCA. My boys are growing up so fast.

If you haven't already placed St. Baldrick's Day on your calendar please do so now. It's April 27, 2008, Tayyib's 6th birthday. The event this year is scheduled to be in Rothschild at the Stoney Creek Inn. This event raises funds for childhood cancer research each year by folks having their hair shaved off BALD. Tayyib was one of the children honored at the 2nd event when it was held in Stevens Point 4 years ago and since then we have hosted this in Wisconsin Rapids for 2 year, Athens for one year and Stevens point for 2 years. So this is the 6th annual event in the Central Wisconsin area.

We hope to see you there.

Laura

Hospital Information:

Patient Room: HOME

St. Joseph's Hospital
611 Saint Joseph Ave.
Marshfield, WI 54449-1898
715-387-7667 - Peds Unit

Links:

E-mail Author: lketchum@uwsp.edu or aczciftci@hotmail.com

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.