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Johnathan has a Gofundme page for 2017 he is in need of lens replacements for his eyes, because of cataracts and also his teeth are needing several fillings and root canals. Here is the link to his page: https://www.gofundme.com/johneckstadt-fanconi-medical-fund
Nathan Alan Eckstadt <baseball-nate@hotmail.com>
Spring, TX United States - Monday, January 30, 2017 11:41 AM CST
You are an amazing individual and thank you for sharing your story with us, it's greatly appreciated! May you keep achieving more and more and more...a total inspiration! God bless you, your loved ones and everyone struggling against such adversity!
Michelle Rock
Belfast, Ireland - Monday, April 23, 2012 5:05 AM CDT
Johnathan is doing well and was promoted on his job to full-time and as a manager. I'm so glad that God has a hand on your life John.... Love you Dad...
Nathan Eckstadt <neckstadt@sbcglobal.net>
Oak Creek, WI USA - Wednesday, April 18, 2012 12:21 AM CDT
I'm glad to be your friend and i see that your doing well for yourself.
Christopher Hulin <Blackstar1661@yahoo.com>
Washington, GA - Georgia United States - Friday, February 10, 2012 11:06 PM CST
Hi John,

Hope you are doing GREAT and that God's is blessing you every day! Congrats on the job promotion. Hope all goes well with school and future plans.

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Friday, April 9, 2010 9:01 AM CDT
Congrats on 5 years post transplant. We are proud of you and thankful for all God has done and He has great plans for your future!
Love, Uncle Anthony & Aunt Donna, Abigail Molly & Robert

Donna Trapani <trapani@osd.oh.gov>
Edison, oh USA - Sunday, January 31, 2010 9:36 PM CST
John I am very proud of you. John received his first college final grade, American History since 1888, he received a 'B' for his first 3 credits in college... I wish you great days ahead. You are an inspiration to us all!

Love you,

Dad

Nathan Eckstadt <neckstadt@sbcglobal.net>
Oak Creek, WI USA - Thursday, December 17, 2009 7:27 PM CST
It's hard to believe the boys are in college and doing so well. Every time we go to Olive Garden we talk about our visit in Minneapolis. Car crashes sure are scarey, thank goodness there weren't any significannt injuries.
Bill Kuell <pelicannssb@aol.com>
- Tuesday, October 20, 2009 10:34 AM CDT
John, When you and I sat up late watching T.V. or talking about sports. In July, Aug, Sept, Oct and Nov 2004, that all seems so long ago. I remember your will to fight and your positive spirit. I know that same fight has kept you over the past 5 years. Your courage and drive are the greatest that I have personally known in my life time. I am more than proud of you! Your Dad
Nathan Eckstadt <neckstadt@sbcglobal.net>
Oak Creek, WI USA - Monday, October 19, 2009 0:03 AM CDT
Hi John,

I suppose you are getting geared up for college? Are you looking forward to the college life? I did not go to college but did go into the military when I was 23. It was kind of scary at times but a good thing for me. I'm pretty sure college is going to be a great thing for you too!

Just one piece of advice... When you head off to college, don't forget to take several things with you. Plenty of clothes. All kinds of phone numbers. And probably the most important thing--GOD! Don't leave him at home!

I hope this new experience will be one that blesses you many times as you prepare for your future endeavors.

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, Tn USA - Tuesday, August 18, 2009 8:16 AM CDT
Hey John,

Glad to hear of your recent 'celebration'. I trust God is working great things in your life and this is just one of many blessings he will send your way!!

Keep lookin' up.

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, Tn USA - Wednesday, July 15, 2009 9:15 AM CDT
Nice to read such uplifting news on an FA site. My son had a Bone Marrow Transplant at 22 because of FA. He is only 17 months post procedure, so we can learn alot from you guys. Good luck in College Johnathan! GOD bless, we'll keep you in our prayers
www.caringbridgre.org/visit/justinbarbier
FA/Louisiana

Julie Barbier <jgbarbier@hotmail.com>
Morgan City, LA USA - Friday, May 8, 2009 2:46 PM CDT
Hi Johnathan,

I hope everything is going peachy king for you. (Peachy king is a southern expression which translates to hunky dorey. Now, aren't you glad you know!!)

I trust God is continuing to bless you each and every day. We don't always understand God's plan for us but we can be assured that he loves us and wants us to have his greatest blessings!

Keep lookin' up!

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Tuesday, April 28, 2009 8:18 AM CDT
Johnathan,
Hey.You are still in my thoughts and prayers.Thats good to hear that you are working and doing really well.I got really good news from Children's hospital that i don't need a transplant because my bonemarrow has been stable for some time.When i heard this from my mom it made me so happy that i can live a healthy life.When you get a chance please email me at nicolefauver@ymail.com and i'll message you back.

Nicole fauver <nicolefauver@ymail.com>
Arlington, wa USA - Monday, April 20, 2009 11:41 AM CDT
Johnathan,
We have been thinking of you and your family a lot lately. You look good. I hope you get feeling better soon. Ben has had a virus too he is going on two weeks and just can't shake it so take care of yourself. Happy late Birthday!! Chris turned eighteen too this January. Hard to belive it will be five years soon since we all meet. Ben is doing well and is in fifth grade now. I am sorry that I have been so bad and not kept in touch. I have tried to email mom a couple of times but it tells me it is not a good address. This time I got to you through LaKota's site. I have put our home email address so I can get in touch with you and your family. We would love to get togeather this summer. Take care of yourself and get feeling better.


Brett, Becky, Chris and Ben

Becky Wasson <wassonb@verizon.net>
West Salem , oh USA - Friday, March 13, 2009 8:08 PM CDT
Please pray for my mom, they have given her only a few days to live, We need prayers, it is breaking my heart, Thank you.
Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Tuesday, March 3, 2009 8:24 AM CST
John and family,
I hope all is well with you and your health.I'm up and down but right now i'm so hyper.

Nicole Fauver <nicolefauver@ymail.com>
Arlington, Wa usa - Tuesday, February 10, 2009 7:31 PM CST
Hi Johnathan,

Everyday that is given to us is truly a gift. Everyday that is given to you is also a gift to those you inspire with you're courage and unity as a family. May GOD continue to always be with you and yours. You are an inspiration.

Jesse Toledo <jnhtoledo@aol.com>
Oak Creek, WI USA - Saturday, February 7, 2009 12:18 AM CST
Hi Johnathan,

Sorry you have the epazooties! Hopefully they won't hang around too long and you can get back to doing the fun stuff-and WORK! Oh well, I suppose 1 out of 2 isn't so bad.

Have you ever thought about writing a book about your journey? No one, and I mean no one can understand and appreciate the path you walk-unless they have been there. I would imagine none of your family has been there. Probably most of your friends have not. And many of 'us' have not. I think it would be an excellent way for you to share your feelings. Don't be afraid to share feelings, emotions, hopes, fears, and even anger. It might be that in writing about your experiences you would be able to give others hope who make the same walk. Goodness knows there are enough 'self-help' books out there to paper an ocean liner! Some of them may be true and genuine and I suspect many are just there to earn a buck for an author who doesn't have a clue. You would most definitely have a clue!!

Now that I've said all of that let me say this too. Most teens are not into writing-especially guys! No slam here just fact. You may not want to write at this time but I hope you will consider it one day.

For now, thanks for being such an awesome and inspiring young man! Your attitude, your actions, and your character speak volumes of who you are and whose you are.

Keep lookin' up!

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Wednesday, February 4, 2009 8:59 AM CST
Nathan & Ann,
What an amazing journey you have travelled. We will keep Jonathan in our prayers and believe for a full recovery for him. You both and Jonathan are very strong to have endured all that you have. Thank you for taking the time to share your story with the world so that it can give hope and faith to others who face this disease.

Steve & Bethany Zink & Family
Fairfield, OH USA - Wednesday, January 28, 2009 0:56 AM CST
I hope the stomach issues are resolved soon. LOVE the senior photo...what a handsome young man!
Dianne Ploetz <dianneploetz@aol.com>
- Sunday, January 4, 2009 1:05 AM CST
Hope that you had a great Christmas.
We sure got the snow this year, and the bitter cold to go along with it...brrrr....
It is sad not having the parents here for Christmas! What part of Texas did your parents move to, mine are in Port Aransas, Thank you for your prayer's for LaKota, and my mom, they do mean so much to us, I know that I don't have to explain that to you.
Will be keeping John in our prayer's, and praying that it's nothing serious.

Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Friday, January 2, 2009 3:08 PM CST
Hi Johnathan,
Just wanted to let you know you are in my thoughts and that we love you and pray for you and miss you. I hope school is going great. We miss you, and will continue to keep you in our prayers. Love, Aunt Donna

Donna Trapani <trapani@osd.oh.gov>
Edison, oh usa - Saturday, December 13, 2008 1:00 AM CST
Hey Johnathan,

Hope school is going great for you. How does it feel to be a senior finally? As old as I am, I remember the special feeling of reaching that time.

Have you thought about future plans? What kind of dreams and goals do you have? Will your physical walk over the past few years be a part of the future? I believe no one can better serve than those who have made the walk. You can actually wear the T-shirt that says, "Been there-done that"! I think you would make an awesome worker helping others who may be facing similar circumstances.

Keep lookin' up and praising God from whom all blessings flow!

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Friday, October 3, 2008 9:00 AM CDT
Hi Ann
Just wanted to stop in and see how things are going. How is Cody's first year of high school going? How is Johnathan liking his last year? Hope all is well, his counts look great!!!
Blessings,
Kelly Bennett

Marshall & Amelia <thefivebens@bellsouth.net >
Covington , La - Wednesday, September 24, 2008 8:13 AM CDT
Hello Johnathan!

Congratulations on your 4th post year transplant! What a journey you have been on. I can't believe you are already going to be a senior. Where has time gone? I have thought about you over the past several years and have wondered how you have been doing. I misplaced your CaringBridge webpage on my computer, but contacted Mrs. Ollmann at school and she was able to get it for me. I'm so thankful that I have it again so I can keep up with your progess. Have a wonderful school year and enjoy your senior year to the fullest! Stop by East Middle to visit if you get a chance. I would love to catch up with you. Tell your mom, dad and Cody "hello" for me. Take care, kiddo!

Mrs. Lori Walters (was Ms. Kish when you had me as a teacher:-)

Mrs. Lori Walters <Lolok8@aol.com>
Racine, WI USA - Saturday, August 30, 2008 6:33 PM CDT
Ann,
I know this is for Johnathan but I wanted to take the time to say thank you to you. All of your words of inspirtation are most helpful to this FA mom. You help me keep the faith. Keep them coming.
Alicia Branham

Alicia Branham <qandainmilan@msn.com>
Milan, MI USA - Friday, August 29, 2008 9:14 AM CDT
We're checking in on you guys to see how everything is going. And it sounds like a pretty great report all the way around! I know what you mean about the pool and cool weather. Who can afford to run the pool heater these days?! Yowsa! It sounds like your summer is ready to wind down soon and the boys will be starting school - at least I think you guys are a couple weeks ahead of MN schools - we're the day after Labor Day always. Enjoy the rest of your summer days (and, well, beyond!) We keep you close in our prayers, John, and always will.
Terri & Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com>
Ramsey, MN usa - Thursday, August 14, 2008 3:10 PM CDT
Hey Johnathan,

Wow, a senior huh! This year will be a blur. A lot will happen and before you can blink a couple of times, you'll be walking the line to receive your diploma. Dad will be proud. Brother will be envious. Mom will probably have teary eyes.

So, what are your plans after graduation? Have you got that figured out yet? If not, don't sweat it. I'm a little over 56 and I still don't know what I want to do!!! Hopefully, you won't have that problem.

Keep lookin up!

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Friday, August 1, 2008 4:01 PM CDT
Hello Anne and Johnathan,
I am glad all is going well. Bless you heaps. Happy 4th birthday post transplant!
Love Charisse

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Sunday, July 27, 2008 8:28 AM CDT
Photobucket

Jo Hannah Rebecca and Rachel

England UK <yarnall@blueyonder.co.uk>
- Saturday, July 19, 2008 1:58 PM CDT
Johnathan,
Lori and I are so greatful to know you and your family. Congrats on your 18th birthday and I can't wait to celebrate many more with you. You are an inspiration to all and a prime example of strength and faith.

God bless,

Donavon and Lori Blair

Donavon Blair <ablessedhome@wi.rr.com>
Racine, WI United States - Wednesday, July 9, 2008 5:17 PM CDT
Way to Go Big J. You are an inspiration to so many.....including myself and the church.

Happy Birthday and congrats!

Pastor B.

Pastor Jeff Butler <jm.butler@truelifeministries.com>
- Wednesday, July 9, 2008 9:20 AM CDT
Congratulations and Happy Birthday :O)
God is so amazing. We pray for continued health and happiness as you continue along your journey of life. Never forget what an amazing gift that God gave to you ....always use it for His glory!
Love and hugs,

the Widmers
Racine, WI USA - Tuesday, July 8, 2008 9:08 PM CDT
Johnathan,

Congrats on your 4th transplant b-day!! :)
Dianne Ploetz

Dianne Ploetz <dianneploetz@aol.com>
- Tuesday, July 8, 2008 4:15 PM CDT
Johnathan, I am so pleased with your progress through this long ordeal, and all you have overcome.
To God be the Glory.

Also, congratulations on your new job.

Love and prayers, Grandma
I miss you! Call me sometime.

Evelyn Eckstadt
Hecker, IL USA - Tuesday, July 8, 2008 10:23 AM CDT
Congrats on your 4th post transplant birthday. We are so thankful to God for all he has done for and thru you Johnathan. We love and miss you!

Uncle Anthony, Aunt Donna, Abigail, Molly & Robert

Donna Trapani
Edison, OH USA - Tuesday, July 8, 2008 10:19 AM CDT
I pray for you every night and always will. God bless and keep you well. You struck a special note in my heart along the way and Arletta Mueller keeps me up to date. You are a wonderful young man and this is such a special time. Congratulations!

Love, Muir

Muriel Radhuber <Murad706@aol.com>
Charlotte, NC USA - Monday, July 7, 2008 11:52 PM CDT
Well, Johnathan, four years and you've beat all the odds and showed them what you're made of: grit, determination, and most of all your faith. I remember when you had your transplant, because it was my 66th birthday, so today I turn 70! Wow!! We are both setting milestones on this day. Congrats on the success on the Tennis Team and being King! Your family -- and everyone else that has followed you on this journey -- is very proud of you. Keep truckin' !!
Arletta
Eau Claire, WI 54703 - Monday, July 7, 2008 6:34 PM CDT
Your Dad sent me this link. As I read the entries I note you were born on my 44th Wedding Anniversary. My John Eckstadt and I were married in Chicago, Illinois on April 8, 1946. Congratulations on your Driver License. My Grand Daughter,Laura Eckstadt, is student driving until Dec. 8 when she will turn 16. My prayers are with you.
Mrs. John Robert Eckstadt (Ila) <lacecurtan@cablelynx.com>
Kilgore, Tx USA - Friday, July 4, 2008 1:15 AM CDT
Hello Ann,
that does sound like such a scare....Praise the Lord that Johnathan will be ok.
Bless ya heaps,
Love Charisse
(FA Adult)
http://charissejournal.blogspot.com

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Sunday, June 22, 2008 7:43 AM CDT
Hey Johnathan,

Sorry for the new viral epazootie. Hopefully, it will go away quickly and let you get back to some fun stuff.

Your pictures seem to portray a young man full of positive attitude, great character, and someone full of good moral attributes. See, pictures are worth a lot of words!

Keep lookin' up and remember that God isn't going anywhere-he's right there with you every step of the journey.

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Wednesday, June 18, 2008 8:58 AM CDT
Johnathan,

Sorry you have been sick and stuff!!!You are in my prayers and thoughts!!!

Nicole Fauver <strineclan66@yahoo.com>
arlington, WA USA - Monday, June 16, 2008 2:40 PM CDT
Johnathan,

I am proud of you!!!Thats excellent that you passed your driving test now you can drive!!!So how have you been doing lately???I have been doing ok.I have bad news that i have to tell you but,you will have to read my journal update.We updated it today!So please sign my guestbook!You and your family are still in my thoughts and prayers!

Nicole Fauver <strineclan66@yahoo.com>
Arlington, Wa USA - Wednesday, May 28, 2008 1:26 PM CDT
Johnathan,

Yikes! Another driver hits the road!!! Ah, just kidding of course. I was one of those back shortly after the crust of the earth cooled.

You've probably gotten all the safe driving talk to last a lifetime, so I won't bore you with any of that. Just don't go and try to be all bad behind the wheel, OK!

Glad you are doing well. Keep lookin' up and remember that God has great plans for you. Some of them may have already occurred and I'm pretty sure some are waiting just ahead.

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Friday, May 23, 2008 1:34 PM CDT
I pray that every thing is going great their for you. It has been gloomy out today. Please pray for LaKota's Grandma, my mom, she was diagnosed with a tumor on her lung,and the doctor said it looks like cancer. I did set up a web page for her on the caring bridge, it is.....shirleysizer

Thank you again for your prayers. LaKota's check up is on May 19th, please keep her in your prayers, Thank you.

Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Tuesday, May 13, 2008 11:03 AM CDT
Hi Ann,
Glad that you had a great Mother's day....isn't it nice when you don't have to do the cooking or cleaning!!! Glad to hear that Johnathan is doing so great. We are dealing with yucky cold here too.
The kids do get out early, they use to not but we also go back to school very early they start again on Aug. 8th. I have to say though I am really looking forward to the upcoming school year, Nathan will be going to kindergaten, and well I'm a little nervous as Marshall starts high school.

Blessings to you all!!!!
Love,
Kelly Bennett

Marshall & Amelia <thefivebens@bellsouth.net >
Covington , La - Tuesday, May 13, 2008 9:43 AM CDT
Hey Johnathan,

Congrats on doing so great in Tennis. I enjoyed hitting, or trying to, the ball around some when I was an older teenager. I soon learned that Tennis was added to the list of things I should stay away from. Mostly because I didn't give the other side any competition!! Too bad they didn't have funniest videos back then.

I hope each day continues to give you blessing upon blessing and that your physical body can do those things that bring you joy. As far as the getting tired thing, that is something that will eventually come around as you blow out more candles on your cake. So, you get a head start on what some of us already experience. Maybe that means you will have a head start on knowing how to prepare and deal with it.

Thank you for having such a positive attitude! You do a great job of showing others how to persevere and to keep on keeping on even when the road is full of obstacles.

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Wednesday, April 30, 2008 7:27 AM CDT
It is great to hear how well Johnathan is doing! Bless you mate......
Love you all,
Charisse
(FA Adult)
http://charissejournal.blogspot.com

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Tuesday, April 29, 2008 8:55 AM CDT
Johnathan,

Hey Johnathan!I hope everything is going well for you and you are staying healthy.I heard that you won the tennis match and that is great to hear.I have been sick with a cold.My health has been up and down.I have acid reflex really bad and i am on antibiotics for that.Anyways beside that i have been happy and smiling and just being myself.It has been a long time since we talked.You and your family are in my thoughts and prayers.I will talk to you later.

From,
Nicole Fauver

Nicole Fauver <strineclan66@yahoo.com>
Arlington, WA USA - Thursday, April 24, 2008 2:34 PM CDT
That is so wonderful that Johnathan won his tennis match, way to go!
Did you guys get all that snow last week like we did, thankfully it has all melted mostly.
Have a great weekend.
Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Thursday, April 17, 2008 12:56 AM CDT
Hey Jon,

I am so happy to hear such wonderful news of you from Arletta Rud. She keeps me up to date. You're in my prayers every night and have been since 2004. God bless you and keep you and mend each and every problem that comes along for you....You are an amazing kid and I'm proud to know you and I feel like I do.
Love, Muir

Muriel Radhuber <Murad706@aol.com>
Charlotte, NC USA - Friday, April 11, 2008 12:27 AM CDT
Happy Birthday Jonathan!! Hope it was a fantastic day!
Karen Magrath <MagrathKC@cfl.rr.com>
- Thursday, April 10, 2008 5:56 PM CDT
HAPPY 18th BIRTHDAY!
Hope that you had a great birthday.
Prayer's always with you.
Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Wednesday, April 9, 2008 5:36 PM CDT
I have followed your journey from the beginning, but never posted, but today I wanted to wish you a Very Happy 18th Birthday. God Bless you...enjoy
Phyllis
- Wednesday, April 9, 2008 6:59 AM CDT
A little birdie reminded me it was your birthday today! What a wonderful day to be celebrating! We are so thankful to a wonderful God for His mercy and grace upon your life. You have an amazing testimony that you can always use for His glory! Wishing you all the best this coming year - continued health, happiness and Gods blessings!
Hope your birthday was amazing!
Love,
Diane, Paul, Jake and Sarah

the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Tuesday, April 8, 2008 8:40 PM CDT
Wow. . . you're an inspirational young man. Having met you, I'm not sure I've met a more polite and positive person. Your faith is surely evident in your life! God Bless!
Mr. Greg Pickett
Milwaukee, WI - Tuesday, April 8, 2008 5:00 PM CDT
Hi Johnathan
My name is Jenna and I came across your site. You are an isnpriation and a brave, courageous fighter. You will be in my thoughts and prayers.
caringbridge.org/visit/champ291

Jenna <fighter_smiley@yahoo.ca>
Kamloops, BC Canada - Thursday, April 3, 2008 1:13 PM CDT
Yay! Great Results and well done, Johnathan for taking each test in your stride!!! Bless you heaps.
Love Charisse
(FA Adult)
http://charissejournal.blogspot.com

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Saturday, March 29, 2008 7:30 AM CDT
Thank the Lord, For Johnathan's tests to be all healthy.
Your always in our prayers.
Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Thursday, March 27, 2008 1:26 PM CDT
Hi Johnathan and Ann!
I am really sorry to hear about the bloody noses that have been happening. It must be frustrating to not feel 100% yet. Wow, 5 to 7 years is a along time to feel normal..but then I suppose I am almost 30 and have never felt normal...always more tired then the rest but we get into a routine of coping with that...but it is frustrating. Happy Easter. Remembering you in my prayers.
Love Charisse
(FA Adult)
http://charissejournal.blogspot.com

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Monday, March 24, 2008 6:06 AM CDT
Hi Johnathan,

I hope you are having some really fantastic days. I know you will be glad when you can get out on the tennis court. Hopefully, it won't be long now.

I also hope you are having days full of physical strength and freedom from some of the yucky stuff.

Keep lookin' up and remember that God loves you bookoos.

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Tuesday, March 18, 2008 8:14 AM CDT
Image hosted by Photobucket.com
The Prayer Bears

Praying you are feeling much better by now!
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, VA - Wednesday, March 5, 2008 12:45 AM CST
Hope you feel better soon! Keep playing tennis it is a great sport you can play your whole life. Brian and his partner won the intramurals doubles at U of F, not bad for a couple of freshmen.
Bill Kuell <pelicannsb@aol.com>
- Wednesday, March 5, 2008 8:18 AM CST
Hi,
Hope that everyone is doing great there. You are all in our prayers. Our snow melted some today, the sun was really bright today.
Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Friday, February 29, 2008 8:07 PM CST
Hey Johnathan,

I hope you are having some incredible days full of God's blessings and the assurance he gives to those who rely on him! Scripture is packed full of the message that God loves us. His desire for our life is to be one full of his glory, praise, and honor.

Thank you for being that person who desires to live a life that praises God in your daily talk and walk. God's promises are sure and steadfast. They never promise us physical blessings. But, the bible does promise us that all spiritual blessings can be found through him.

Part of God's blessings are demonstrated to us by people like you. YOU live a life that gives glory to God. YOU demonstrate his love by the way you face adversity. YOU show all of 'us' how to be positive and determined. So, thank YOU for being such an awesome young man!!

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Tuesday, February 19, 2008 7:58 AM CST
Hello Johnathan and Ann,
Glad to hear that things are reasonable for you. Ann, thanks for sharing that poem or writing. It was very encouraging and really made me think.
I am thinking of you guys and pray that things will continue to go well.
Love Charisse
(FA Adult)
http://charissejournal.blogspot.com

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Tuesday, February 19, 2008 7:07 AM CST
HAPPY VALENTINE'S DAY!
It is 16 above today, the last 2 days were -30 with the wind, that was so bitter cold. Hope that you will have a great Valentine's.
Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Wednesday, February 13, 2008 1:07 PM CST
Hello Johnathan and Ann,
sorry to hear you were sick this week Johnathan but it is so nice knowing that your teachers at school are so understanding and you can still sit all the exams needed. I hope the exam you did went very well and you are feeling stronger each day. Praying for you. god bless.
Love Charisse
(FA Adult)
http://charissejournal.blogspot.com

Charisse Howard-Jones/The Prayer bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Wednesday, January 30, 2008 6:18 AM CST
Johnathan,
I am srry to hear that you were sick with a cough.I have a bab cough too.I hope you are feeling better.I was in the hospital a couple of months cuz i passed out at my moms bank and was sent to the hospital and hospitalized for 5 days.I found out that my magnesium was very low and it would of killed me plus i was very dehydrated.I had 4 bags of fluids for the iv.I have been doing well now.I also found out that i had a panic attack and that means that my heart was racing.That could of killed me.It freaked my mom out cuz i tripped and fell on the ground.Please leave me a message on my fanconi page.

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Saturday, January 26, 2008 7:22 PM CST
Hey Johnathan,

Sorry the epazooties have struck and you had to miss a few days of school. I bet you are one of those special individuals who like school and don't want to miss. Not me-I would have been happy with snow days anytime of the year!!

I hope God continues to shower you with many blessings that will give you physical strength. I know he will give us all spiritual blessings.

Keep lookin' up!

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Saturday, January 26, 2008 9:55 AM CST
Hello,

Hope Johnathan is feeling better by now and the exams go well! Thanks Ann for the CD, it was great! Hang in there!
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, VA - Wednesday, January 23, 2008 11:20 AM CST
Hello Ann and Johnathan!
Johnathan I am sorry you have been feeling a litte unwell but it passed pretty quickly. Your mum must make a great home made meal! Hehe.
Ann, thank you for the passage....it really means a lot.
Love Charisse
(FA Adult)
http://charissejournal.blogspot.com

Charisse Howard-Jones/The prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Sunday, January 20, 2008 6:14 AM CST
Hi Johnathan,

I hope the new year has gotten off to a good start for you! Was Santa nice to you? Somehow, I have to believe that he probably was.

Thanks for always having a smiling face-at least in all the pictures I have seen. A smile goes a long way in helping one through tough times too. I have an aunt who is in her 90's. Someone asked her one time if it hurt her hands to do needle work. She stated her hands hurt no matter what she was doing so she might as well be accomplishing something. I guess a smile helps us out even when we don't feel like smiling inside. It helps others see your positive character and optimistic outlook.

So, keep lookin' up. Keep smiling a lot! God will bless you in incredible ways!! THANK YOU for blessing me with your positive attitude, determination, and dependence upon a heavenly father who loves us.

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Tuesday, January 15, 2008 1:56 PM CST
Just checking you guys are going ok and it is pleasing to hear that you are doing wonderfully!
Love you heaps,
Charisse
(FA Adult)
http://charissejournal.blogspot.com

Charisse HOward-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Saturday, January 12, 2008 6:22 AM CST
Happy New Years Eckstadt family! Wishing you all the best in 2008. Love and hugs,
the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Tuesday, January 1, 2008 1:21 PM CST
Merry Christmas Ann and Johnathan and family,
that is great that everything is moving in the right direction. Praise God! Happy Wedding anniversary, Ann! That is so exciting that you have been married that long. I can imagine that having a child with FA can be very difficult within a marriage. I am pretty proud of Alan and I. On December 19th, this year, we celebrated 9 years of marriage and me having FA has been pretty tough for marriage life at different moments. Our (yours and ours) are a credit to people to many people...some people struggle to stay together without extra pressures like FA! So congratulations! And Johnathan...it is pretty hard being the kid with FA....I completely understand. Sometimes that feels tougher than the people around us..that is how I feel sometimes...but we make the most of what we are given..right mate!?
Bless you guys and have a "great" 2008! Happy New Year!
Love Charisse
(FA Adult)
http://charissejournal.blogspot.com

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Friday, December 28, 2007 3:55 AM CST
Merry Christmas, Always in our prayers, hope that your feeling well, and Ann is feeling peace.
Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Tuesday, December 25, 2007 11:57 PM CST
Photobucket

Sending our Christmas wishes to you and your family
Jo Hannah, Rebecca and Rachel

England UK
- Saturday, December 22, 2007 11:00 AM CST
I hope Johnathan starts to feel better FAST!!! I love his pic on the page. He is growing up so fast. These FA kids who Matt knew are starting to make me feel OLD!! HAHA Keeping you all in my prayers. I hope you have a great holiday and New Year!
Darla Lindenmayer
VA - Friday, December 14, 2007 9:40 AM CST
Hi Johnathan,

WOW, the flu. What a bad streak to have to face. I hope you can bounce back really quick and that your stomach will also get better. That's one of those things that if it could be cured with the snap of a finger, everybody would be rubbing blisters snapping so hard!!

I wish I had something uplifting and positive to help make your day a little brighter. I don't know that I do, so maybe after I send this message I'll just send up a prayer for you. It may not seem like much, but I believe God listens to prayers and even when medical science can't find a cure, God can!!!!

Also, here is one of my favorite bible verses from the Old Testament. I think it speaks of how much God cares for us and maybe there will be something in it for you too.

"For I know the plans I have for you, declares the LORD, plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call upon me and come and pray to me, and I will listen to you. You will seek me and find me when you seek me with all your heart." Jeremiah 29:11-13

Keep lookin' up.

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Monday, December 10, 2007 4:58 PM CST
Hi Ann
I hate to read that you are not feeling well. I know how valuable you are to your family. I will be praying that very soon you will get to do that great update for Johnathan...and that, that stomach pain will soon be history!
I think of you guys all the time and continue to pray for all of you.
Blessings,
Kelly Bennett

Marshall & Amelia <thefivebens@bellsouth.net >
Covington , La - Saturday, December 8, 2007 8:58 PM CST
Just a little post to let you know prayers are being sent to you from Hohenwald, TN. Prayers for no more flu bugs and especially for Johnathan to be rid of the stomach issues for ever. Merry Christmas and Happy New Year! May God bless and keep you all.
Judy Smith, Mom of angel John <jasandbjs@yahoo.com>
Hohenwald, TN USA - Wednesday, December 5, 2007 6:21 PM CST
Hi Johnathan,

I hope you are doing well and that the eppa-zooties that are making the rounds haven't come you way!

Did you have a good Thanksgiving? Sounds like it from the stories of family being there and going to the mall to shop and maybe check out the girls. Oops, did I say that? Sorry. I know you wouldn't go to the malls just to check out girls. Yeah right, and I also have some prime land for sale about 200 miles east of Miami!!!

Anyway, I trust that you are living each day full of God's love and grace. He wants very much for you to have all spiritual blessings so that you can be a mighty soldier in his army.

Thanks for being such a good example to others! Your positive attitude and determining spirit says a lot about your character. Keep lookin' up.

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Friday, November 30, 2007 7:55 AM CST
A very Happy Thanksgiving to you all today. We're praying for continued Blessings in abundance for you all and that Johnathan continues to stay problem-free, health-wise. Congratulations on your drivers training, Johnathan - how exciting to be moving in to a new chapter towards adulthood (and how scary, Ann and Nathan!) I guess I'll be dealing with that next year with Rachel (aack!). We're happy to hear that everyone is on the mend and hope your Thanksgiving is wonderful. You are always in our prayers.
Terri & Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com>
Ramsey, MN usa - Thursday, November 22, 2007 6:56 AM CST
Dear Caring Bridge friends,

The holidays are here. I trust that God is guiding you through days that may be filled with a vast array of emotions. For some, the time will be spent in a hospital. For others, you may be at home waiting on test results. There will be those who have received good news and perhaps a physical healing that will undoubtedly cause rejoicing and celebration. And for those who may have an empty chair at your holiday gatherings, may the love of God fill the hole that is in your heart.

It's possible that I will once again sound like a broken record as I tell you that I do not know what you are facing. No, I have not been down that road. I remember a movie-I think it was "Twister", where one actor commented about a tornado taking one house and leaving the next. I suppose there are some who feel like God 'takes' individuals and to them it seems so unfair. My Christian belief tells me that God doesn't take anyone. God is in control and nothing happens without his direction or his approval. But to say that God sits on his throne and dishes out circumstances is beyond my belief of the nature of God. Bad things happen to good people because we don't live in a perfect world. One person gets cancer and the next doesn't. One child gets Fanconi Anemia and the next doesn't. Even though I don't know where you are, I could see where one might question that happening. I don't know and I'm not going to try to explain it either.

The child of God believes there is more than just what we have here and now. I believe the bible tells us that Jesus has gone to prepare a place and when he returns, he will take the faithful to that place to live eternally with no pain, no fear, nothing negative in any way whatsoever!

The coming days may be very difficult for you. None of 'us' can understand the how and why of it all. But, I hope you will surround yourself with family and friends during this time and that you all will draw strength from each other. I also hope that you will open up your heart and allow God to fill you with his love, comfort, and care.

"Who shall separate us from the love of Christ? Shall trouble or hardship or persecution or famine or nakedness or danger or sword? As it is written: 'For your sake we face death all day long; we are considered as sheep to be slaughtered.' No, in all these things we are more than conquerors through him who loved us. For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord." Romans 8:35-39(NIV)

Happy Thanksgiving to each of you. I count it a blessing to have you as a part of my life!

In Christian love,
Wayne / Mr. Wayne


Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Wednesday, November 21, 2007 7:47 AM CST
ANN,
I HOPE THAT YOU ARE FEELING BETTER. IT SOUNDS LIKE JOHNATHAN IS DOING BETTER AS FAR AS THE NOSE BLEEDING IS GOING. I HOPE THAT THINGS KEEP GETTING BETTER FOR HIM. HE IS A STRONG BOY AND KEEPS FIGHTING. I CAN FEEL FOR YOU WHEN IT COMES TO THE DRIVING. CHRIS HAS BEEN DRIVING SINCE FEB.07 AND IS DOING WELL WITH IT. HE HAS HIS OWN CAR. IT IS SO NICE THAT THEY CAN DRIVE TO AND FROM PRACTICES. HE HAS FINISHED FOOTBALL AND IS NOW PLAYING ICE HOCKEY. FROM ONE CONTACT SPORT TO ANOTHER. HE IS ALL BOY. BEN IS DOING WELL AND IS STILL DEALING WITHHIS ANXIETY. HE IS GETTING BETTER. WE WILL KEEP YOU ALL IN OUR PRAYERS.

BECKY

BECKY WASSON <wassonb@verizon.net>
WEST SALEM, oh USA - Wednesday, November 14, 2007 11:45 PM CST
Hi Ann
I'm sending extra prayers your way, I hate to hear that you are not feeling well. I hope and pray that it will all be over with soon. Your family needs you. I am glad that Johnathan's nose bleed seems to be under control.
As always you are in my thoughts and prayers....even though I don't always sign in, I am always stopping in to read an update!
Blessings,
Kelly

Marshall & Amelia <thefivebens@bellsouth.net >
Covington , La - Saturday, November 10, 2007 9:30 PM CST
ANN,
IT HAS BEEN WAY TO LONG SINCE WE HAVE BEEN IN TOUCH WITH EACH OTHER. I HOPE THAT JOHNATHAN IS OK AND STARTS FEELING BETTER. BEN IS DOING GOOD TRYING TO FIGHT A LITTLE COLD. HE HAS HAD A TUFF TIME DEALING WITH HIS ANXIETY. IT HAS BEEN A CRAZY RIDE. THIS IS NOTHING COMPARED TO WHAT JOHNATHAN IS GOING THROUGH. I FEEL SO BAD THAT I HAVE NOT
KEPT IN TOUCH. BRETT AND THE BOYS SAY HI. IT IS HARD TO BELIVE THAT IT HAS BEEN ALMOST THREE YEARS SINCE WE HAVE SEEN ALL OF YOU. I TOLD BRETT THAT I WOULD LIKE TO BE OUT IN MN WHEN JOHNATHAN HAS HIS YEARLY CHECK UP SO WE CAN SEE EACH OTHER AGAIN. WE WILL KEEP JOHNTHAN IN OUR PRAYERS. THERE WAS A BOY WELL HE IS A JUNIOR IN HIGH SCHOOL AT A NEIGHBORING SCHOOL THAT HAS AML. WE HAVE BEEN PAIRED UP WITH HIS FAMILY TO HELP THEM AND JUST TO BE THERE FOR THEM. WE WENT TO MEET HIM HE WAS IN THE ICU UNIT. WHEN I MEET THE FAMILY AND SAW HIM SO SICK IT HIT ME HARD AND I JUST WANTED TO LEAVE BUT, I REMEMBERED HOW WE WOULD TALK AND HOW MUCH IT MADE ME FEEL AND REALIZED HIS MOM NEEDED SOMEONE TOO. THANK YOU FOR BEING A GOOD FRIEND AND I WILL DO BETTER AT STAYING IN TOUCH. TAKE CARE AND GIVE JOHNATHAN A HUG FROM US.

BECKY

BECKY WASSON <wassonb@verizon.net AND www.caringbridge.org oh/ benwasson>
WEST SALEM, OH USA - Tuesday, November 6, 2007 9:45 PM CST
Hi Ann,
Just checking in and I'm sorry to hear of Johnathan's recent health concerns. Please know I pray for you and your family continually. A scripture that continues to come to mind when I think of you is:

2Cor12 9-10: "But he (the Lord) said to me, "My GRACE is sufficient for you, for my POWER is made perfect in weakness." Therefore, I will boast all the more gladly about my weaknesses, so that Christ's power may REST on me. That is why,for Christ's sake, I delight in weaknesses, in insults, in HARDSHIPS, in persecutions, in DIFFICULTIES. For when I am weak, then I am made STRONG.

The LORD is with you and your family; He has not chosen to take the hardships away......but He is standing with you in it. I pray you find STRENGTH, POWER and REST through each day my friend.

Nadine <lvdbyhim@ wi.rr.com>
Racine, - Monday, November 5, 2007 7:46 PM CST
Ann, Sorry that Johnathan is still battling with all these added issues. Praying that things will slow down for him after these appointments so he can just enjoy being a teenager...and learning to drive :o).
It was nice seeing you at church on Sunday! Take care and God bless,

Diane
Racine, WI USA - Wednesday, October 24, 2007 2:03 PM CDT
Wow! I'm glad everything worked out okay and the ER doc consented to do the cauterizing. I know what you mean about the ER being afraid to touch our kids - we've been thru the same thing on several occasions with Bailey. For an ear infection, no less! The doctor started talking to us about septic shock (!!!) - (Bailey was almost 3 years post-transplant and treatment at the time). Yikes. All I wanted was an ear check and antibiotic - I didn't need a doctor with an advanced degree for that one. Anyway, we wanted to send our well-wishes for Jonathan and hope that he is feeling better and will be back to school real quick. And I could tell you were very tired, Ann, because your update says 2004 for the year! Haha. Take care and God Bless you guys! Have a NONeventful rest of the week/weekend now, okay?
Terri & Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com>
Ramsey, MN usa - Wednesday, October 24, 2007 11:28 AM CDT
Hello Anne,
i had a giggle when reading your statements of "slow down" and so on with Johnathan's first time behind the wheel. It was funny.
I am sorry, however, that in the post before you were feeling really overwhelmed and wanted to mention that it is ok to feel so overwhelmed and need to vent it. while I was reading what you had written it reminded me of how I feel when there are medical things to contend with over and over again...it seems overwhelming and it never seems to end. SO i really do understand.
I hope you are feeling a little better about it all....because it is not nice to feel anxious about all that stuff. I pray that you feel a bit better but there is never anything wrong about feelings overwhelmed.
Thinking and praying for you,
Love Charisse
(FA adult)
http://charissejournal.blogspot.com

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Sunday, October 21, 2007 7:07 AM CDT
Good luck today Johnathan with your testing!
the Widmers
Racine, WI USA - Monday, October 15, 2007 6:42 AM CDT
Ann, so sorry that you are feeling so overwhelmed by all of Johnathans appointments. We will continue to hold you all up in prayer. Continue to trust in God and He WILL see you through.
Love and hugs,

Diane <dwidmer@wi.rr.com>
Racine, WI USA - Tuesday, October 9, 2007 3:46 PM CDT
HAPPY BIRTHDAY ANN (a day early).....
Continuing to keep you guys in our prayers. Love and Hugs,

the Widmers <dwidmer@wi.rr.com>
RAcine, WI USA - Tuesday, October 2, 2007 7:12 PM CDT
hi John and family!

I am sorry to hear that you have not been feeling well.I hope that you had a blast at your homecoming.I have my homecoming next weekend and this Saturday i am going to homecoming with my bffe Katie because she wants me to.You and your family are in my prayers.

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Monday, October 1, 2007 5:06 PM CDT
Hello Ann, I am sorry that your son is having such a hard time. GVHD really bites, as you well know, and I am praying that it goes away for good this time. I am also praying that everything settles down and you all enjoy "normal living" whatever that may be. I am 43, but to tell you the truth, until my little John died, I didn't feel it at all. I think the stress, and worry does a number on us moms really bad. But from your posts I know your faith is great, and I just wanted to remind you that God is there for you all, all you have to do is pray and keep your relationship with him first and formost. We never really know what the future holds, except that if we have faith, true faith, and follow his commandments, and live our life in service to him to glorify him, we will have our place at his table together again with all who have the faith and went before us. Hold on to your faith, and the ride called FA will not be quite so tough.
In Christian Love,
Know I am praying for you all,
Judy Smith
Mom of Angel John

Judy Smith <jasandbjs@yahoo.com>
Hohenwald, TN USA - Saturday, September 29, 2007 11:33 AM CDT
Hey Johnathan,

I live in middle Tennessee, just outside of Nashville. I've been visiting Caring Bridge web sites for about 4 years now. Occasionally I come across someone for the first time and that is the case with you. I try to check on several in the Caring Bridge community and offer encouragement and prayers for them. I don't remember how I came across your page. There are so many links from one page to another and I probably 'found' you through a link in a guestbook somewhere. I think there are 2 other young people with FA that I try to check on.

I noticed the pictures on your web site this morning and I hope mom has a pretty big stick handy! (Ask her why if you don't know.)

God has plans for each of us. We don't always understand those plans and we really have a problem trying to figure out why 'our' plans sometime include circumstances that don't seem fair. I will tell you that I DO NOT believe that God gave you this journey. I think those things happen because we live in an imperfect world. I do think God uses our circumstances to his glory. I think he uses it to bless us-or others. I think he uses it to guide us along a path of his choosing. That path can be tough at times.

One of my favorite verses is from the Old Testament. It is a verse that I believe was written for another time but I also believe it is relevant for us today. "For I know the plans I have for you, declares the LORD, plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call upon me and come and pray to me, and I will listen to you. You will seek me and find me when you seek me with all your heart."
Jeremiah 29:11-13

That verse doesn't promise us physical blessings. It doesn't promise us that we won't have obstacles in our path. It does promise us however, that we can have a close and personal relationship with God that includes spiritual blessings beyond our wildest imagination!

Keep lookin' up. Thank you for being an awesome example to everyone out here.

In Christian love,
Mr. Wayne

Wayne Gordon <wgordon@cscsystems.com>
Hermitage, TN USA - Friday, September 21, 2007 8:52 AM CDT
Hi Johnathan, My name is Sandra and my daughter Katie has Fanconi too. She is 17 years old. She is having a real hard time right now with her stomach pain. We don't know you well, but check on you often. Drop us a line sometime. Katie's site is www.caringbridge.org/visit/katiecriss I hope you are feeling well. Take care, Sandra and Katie
Sandra Dunn <sanlynne@msn.com>
Lake Stevens, WA USA - Tuesday, September 18, 2007 5:37 PM CDT
Hello Ann,
I am sorry it has been so hard since hearing about the GVHD and I can certainly understand your worry. I have not had a transplant but my brother did and he had serious GVHD problems. It is scary and upsetting...so it is ok to feel that way. I think your poem is beautiful. You have a definite gift at writing poems. Please know that I am praying for Johnathan and for you and your family. I am glad to hear that Johnathan is handling the news a little better this week...it is hard when you are older and know more about what is happening to your body. You guys are amazing people. I will keep checking for updates.
Lots of love,
Charisse
(FA Adult)

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Sunday, September 16, 2007 2:38 AM CDT
Hello Johnathan and rest ov family!

I am Jacy Box I to hav Fanconi Anemia.
Umm... I hav not gone through BMT yet but will prob go through it within a few yearz.
My sister Jo Box haz (FA) Fanconi Anemia also.

I am 15 and my sister iz 17.
I will be 16 In November on tha 8th.
She will be 18 Feb.20th.

Anywayz Johnathan if you want to e-mail one ov us we'd like too talk too more (FA) Ppl.

Mine iz - bby2011angel@aol.com
Jo'z iz - lilqut2008@aol.com

Well g2g. ttyl. Love Jacy 15 (FA-A)

Jacy Box <bby2011angel@aol.com>
cincinnati, Ohio United Statez - Friday, September 14, 2007 1:49 PM CDT
Ann,

Thanks for sharing your poem prayer. You have a beautiful way with words. Dianne Ploetz

Dianne Ploetz <dianneploetz@aol.com>
- Thursday, September 13, 2007 12:52 AM CDT
Your poem brought many tears to my eyes. Keeping you all in my prayers.
Darla, Angel Matt's (FA) Mom www.caringbridge.org/in/angelbarneyboo <littlesisdarla@aim.com>
- Thursday, September 13, 2007 12:00 AM CDT
Ann -

Love your poem! How beautiful!!

Johnathan -

As always, you are AWESOME!! :)

Sending lots of love,
Nancy Ross
www.caringbridge.com/ca/karlyross

Nancy Ross <ross4@comporium.net>
SC - Thursday, September 13, 2007 11:46 AM CDT
That was suppose to read..I know how you feel..sorry,
Praying for you all
Blessings...

Kelly <thefivebens@bellsouth.net >
Covington , - Tuesday, September 11, 2007 10:06 AM CDT
Hi Ann,
I am really praying that this is just a very small bump in the road for you all. I know just how you fell. Will there ever be a time when we can just breathe and relax. We are dealing with high cholesterol post BMT, have you all had Johnathan's checked? They are finding this in post BMT patients more and more. It's really hard to tell a teenaged boy no you can't have all that pizza and hamburgers. Just like every thing else this too shall pass and we will get through it and be stronger for it!
Keeping up the FAITH
F fantastic
A adventure
I in
T trusting
H him

Blessings,
Kelly
PS New e-mail address below...

Marshall & Amelia's Place <thefivebens@bellsouth.net>
Covington , Louisiana - Tuesday, September 11, 2007 10:01 AM CDT
Dear JE & FAmily:

Well, that is not the kind of news anyone wants to hear. I've told my 19 y/o FA son, Roy, that sometimes his body just plain old betrays him. Darn it all anyway sometimes. It's okay to feel betrayed or bummed or blue for a short while, but those emotions are energy drainers and you've got to use your energy for more positive things like healing. Please let your natural strength, trust, faith, family and support team pull you through this rough time.

Take care, Johnathon.

Kay Proctor - part of your FAmily
www.caringbridge.org/visit/royproctor

Kay Proctor <mightymomma@hotmail.com>
Heppner, OR usa - Sunday, September 9, 2007 11:43 AM CDT
Johnathon, I am a first cousin of your grandmother Lois. I visted you at the Ronald McDonald house in September 2004. I am praying for you and hope to see you again.
Arlo Moehlenpah <moehlenpah@aol.com >
Chula, CA USA - Sunday, September 9, 2007 7:03 AM CDT
You are all in my thoughts and prayers. I hope you have a chance to enjoy some fun activities and relaxation this weekend. Love, DIanne Ploetz
Dianne Ploetz <dianneploetz@aol.com>
St. Paul, MN - Saturday, September 8, 2007 4:24 PM CDT
Johnathan,
We are so sorry to hear your news of your test results BUT take comfort in knowing that God is in control! You have been through so much so far and God has carried you through giving you the grace and perserverence to continue this fight. I truly believe that you will be feeling better soon as your faithful "followers" :o) continue to lift your name in prayer. Looking forward to reading about your victory very soon. Love, hugs and prayers -

Diane Widmer and family
Racine, WI USA - Friday, September 7, 2007 8:43 PM CDT
Things have been going well for a while that it is hard to imagine that Johnathan would reach another obstacle. It is unfortunate that he has to worry about this. Teenage years come with its own challenges the way it is. We pray that the GVHD will be controlled and that Johnathan can enjoy being a kid again. Take care.
The Zawacki Family
Oak Creek, WI USA - Friday, September 7, 2007 6:08 PM CDT
Hi Johnathan! I haven't written you in a while, but wanted you to know that you are in our families continued prayers. Though this news is not the best you could have heard, you are much stronger now than you were a couple years ago and your body can fight through these problems better now than before. It is another hurdle that you can and will face with grace, which only the Lord can give you. The days ahead will get better again and you will look back at this as one more victory that you have overcome. Take care of yourself and enjoy your new school year.

Love,
Kim Woychik

Kim Woychik <kwoychik@wi.rr.com>
South Milwaukee, WI USA - Friday, September 7, 2007 10:27 AM CDT
Hi Johnathan & Ann -

Sorry to hear about the GVHD. Mild or not its a bummer. :(
We're still thinking abou you all and keeping you in our prayers. Johnathan's body is stronger now and I'm sure he'll get over this bump with the same grace he has shown throughout this process. Keep smiling - knowing lots of us out here love you and care about you!!!

God Bless,
Nancy Ross
www.caringbridge.com/ca/karlyross

Nancy Ross <ross4@comporium.net>
- Friday, September 7, 2007 7:48 AM CDT
Johnathan,

We are praying and believing for your miracle, healing. We will be continuing to pray re: these new tests results.
God's hand is on your life Johnathan. You are so special and favored of God.

We all love you!
Uncle Anthony, Auntie Donna, Abigail, Molly and Robert


Keep smiling and believing God for the answers

Donna Trapani
Mount Gilead, oh usa - Friday, September 7, 2007 6:54 AM CDT
Gosh, that GVHD monster is back. I'm so sorry you're all having to deal with that again. FA stinks. We know how good God is and that he's in total control... We're praying that you all feel some peace and strength and hope. Hugs, Ann.
Karen M. <magrathkc@cfl.rr.com>
Melbourne, FL USA - Friday, September 7, 2007 5:08 AM CDT
Hello Ann,
I am really sorry about the latest news with the GVHD in Johnathan's liver. It wouldn't be nice news. I will be praying for Johnathan to overcome this and his liver to be all right. You are such a lovely person with a positive attitude, however, news can get you down so I will be praying...bless you heaps.
Love Charisse
(FA Adult)
http://charissejournal.blogspot.com

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Friday, September 7, 2007 3:05 AM CDT
Good morning Jonathan. I am glad to read all is well with you and you had a nice summer. Have a great Labor Day Weekend. I will see you on Tuesday! Mr. Sigler


Paul Sigler <p.sigler@oakcreek.k12.wi.us>
Oak Creek, WI US - Friday, August 31, 2007 7:57 AM CDT
We are praying that it is nothing serious.
Ann it is ok to let your emotions go, it is such a roller coaster that any child or parents have to go through this.
We were at Wisconsin Dells last Friday, just a spur of the moment thing, we were their for only 2 days, had a fun time, thought of you guys, always wonder how close you are to the Dells, trying to talk Becky, Bens mom, and them to go their next summer when they come up, and to meet with you, and your family, I think that would be so much fun.
remember that your always in our prayers.
Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Monday, August 27, 2007 10:14 PM CDT
We're praying for "no big whoop" from the liver biopsy and that it just shows that Johnathan's liver is taking a little while to bounce back from it all. We'll be keeping you close in prayer Wednesday as we wait for your update on his procedure. These bumps in Johnathan's road most assuredly take a toll on your emotional health, Ann. Your anxiety is certainly justified, and please remember that you are being held in prayer by so many for your strength and fortitude! Feel the strength of those prayers being offered not just for Johnathan, but for you as well. God Bless!
Terri & Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com>
Ramsey, MN usa - Monday, August 27, 2007 7:04 AM CDT
Hello Jonathan and family:
Bummer for more work-ups, real bummer. But on the other side of that, it is so important to keep monitored to catch any changes early.

Hang in there guys...

One of your FAmilies,
Kay Proctor

Kay Proctor <mightymomma@hotmail.com>
heppner, OR usa - Saturday, August 25, 2007 1:07 PM CDT
Ann, you are such a strong woman and you have so much faith in God but you are only human and on top of that you're an FA MOM - You have every reason to be stressed! I will say an extra prayer for you tonight and ask God to give you comfort and peace.
Please keep us posted on the test results.
((((HUGS))))

Kayla Lackey - www.caringbridge.org/visit/willlackey <willpowerfund@yahoo.com>
Charlotte, NC USA - Friday, August 24, 2007 7:42 PM CDT
Ann~ {{{{{hugs}}}}} I'm sorry things are so rough. Hopefully Johnathan will get a clean bill of health from the liver biopsy results so that you may have one less thing to worry over. And gosh, that's a long time to wait for the cardiologist. We'll pray Johnathan remains pain-free so that he doesn't "have" to be seen earlier than that. You're a great mom, doing a HUGE job with this whole FA thing. It IS exhausting, isn't it?! Know we're all here for you and feeling your pain. Much love,
Karen M. <magrathkc@cfl.rr.com>
Melbourne, FL USA - Friday, August 24, 2007 4:52 PM CDT
Continuing to check in on you guys just about daily but I don't sign everytime :o) Keeping your family in our prayers...for good test results, a complete healing and for Gods peace. Love and hugs to you all.


Diane Widmer
Racine, WI USA - Friday, August 24, 2007 3:59 PM CDT
Jonathan, we are praying for good test results for you. We are also praying for your mother. FA is hard on everyone involved, not just the patient. Keeping you in our thoughts and prayers in Kentucky...
Candace and Haylee Milroy
www.caringbridge.org/visit/hayleemilroy

Candace Milroy <cmilroy2006@yahoo.com>
Liberty, KY USA - Friday, August 24, 2007 3:45 PM CDT
Hi All

We will be thinking of you during your procedure, hopefully it won't be too big a deal and they will find that there really is no big problem.

Keepup the great work

Bill, CArol & Brian

Bill Kuell <pelicannsb@aol.com>
- Friday, August 24, 2007 1:33 PM CDT
Hi Ann, Johnathan & all:
I'll be praying extra hard for Johnathan next Wednesday when he has his biopsy. Hopefully you'll get the answers you need and they can get this fixed easily. We think about y'all and hope everything goes well. We'll be praying!
God Bless,
Nancy

Nancy Ross <ross4@comporium.net>
SC - Friday, August 24, 2007 1:27 PM CDT
Sorry to hear about the last "bump". It's never easy is it? We are praying that all goes well with the cardiologist and the liver biopsy. We check on Johnathan often and keep you guys in our thoughts and prayers.
Darlene Brunson (www.caringbridge.org/ut/jordanbrunson) <brunsondj@frontiernet.net>
Delta, UT - Tuesday, August 21, 2007 4:36 PM CDT
Hi Ann,
I was so glad to hear that Johnathan grew some!! We are still hoping that Marshall might squeeze out a little more in the growth dept too. All is well here except for this pesky little stomach virus that is going through the
house....
Well just wanted to stop in and let you know we are thinking and praying for you all.
Blessings,

Kelly Marshall, Amelia & Nathan <the5bens@yahoo.com>
Covington , La - Thursday, August 16, 2007 1:30 PM CDT
Hello Ann!
Hello Johnathan!
It is great to hear that you have insurance. I am sorry that Johnathan cannot go back to his usual doctors. That is hard when that happens. He looks great in the photo!
Well, I will keep praying that Johnathan's stomach issues improve. That must not be nice.
Love Charisse
(FA Adult)
http://charissejournal.blogspot.com

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Friday, July 27, 2007 6:51 AM CDT
Ann~ Johnathan looks GREAT! I know you couldn't be happier that he's feeling so healthy and doing so well. I'm sorry about the continued stomach issues. Hopefully it's tolerable with avoiding those certain foods. Hugs. Love, Karen
Karen Magrath <MagrathKC@cfl.rr.com>
Melbourne, FL USA - Sunday, July 22, 2007 10:24 AM CDT
Is it your birthday Johnathan! If so, Happy Birthday!
I feel like every day is a blessing from God...and such a blessing to spend time with my child and my husband...I have FA and life sometimes feels really hard...as you would know...and then sometimes it feels easier...
HOw lovely that you have had Tennis Camp! It sounds like you have some nice things planned with your family in the next coming week or so.
I am excited...hehe...my parents got give a holiday in a resort in Victoria, Australia...we live in South Australia, in Adelaide...it will take about a day to get there via car....I am excited...I was very sad when I learnt that Alan, Isaac and I could not get to FA Camp or the USA for a holiday this year...then mum and dad offered for us to come on holiday with them...there will be conoeing, swimming indoor ...heated pool and spa, mini golf, and only 2 hours to the snow that we never get to see in Australia....I am telling everyone I am so excited! Ahh...it will be nice....
So it is good to read up on how you are all doing and I love you all very much.
Bless you Johnathan and bless you Ann!
Johnathan have you ever checked out my website...I like it...hehe....
it is http://charissejournal.blogspot.com
Well, will come by again soon.
Love Charisse
(FA Adult)

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Sunday, July 15, 2007 4:40 AM CDT
!

HAPPY RE-BIRTHDAY
Happy RE-Birthday!!

"If Children have the ability to ignore odds and percentages, then maybe we can all learn from them. When you think about it, what other chance is there but to hope? We have two options, medically and emotionally: give up, or fight like hell".
-Lance Armstrong

Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
The Prayer Bears

Barb
- Wednesday, July 11, 2007 3:29 PM CDT
That's awesome, happy 3rd re birthday, praying your insurance kicks in soon, I understand that, my husband and I have been without it for almost a year.
Darla, Angel Matt's Mom, www.caringbridge.org/in/angelbarneyboo
- Wednesday, July 11, 2007 8:00 AM CDT
Johnathan -

HAPPY 3rd REBIRTHDAY!!!! We've been praying for you for years and will continue to do so. You are an amazing young man and I hope we get to meet you someday - perhaps at camp??? My 16 year old son (almost 17) is coming to camp with us. Anyway - keep healthy and we send you our best wishes!

The Ross Family

Nancy Ross <ross4@comporium.net>
SC - Tuesday, July 10, 2007 11:24 AM CDT
To our grandson Johnathan....the best ping pong player, tennis player, and basketball player ever.
Happy third BMT Birthday.
Love,

Nani and Bumpa
Waterford, WI United States - Tuesday, July 10, 2007 11:05 AM CDT
Happy 3rd Birthday. We are so glad you are doing well. Even though I don't write, I check your website regularly.
We are going to Minnesota in a few weeks for Michael's 3 year checkup. Boy, how time flies....Enjoy your summer.

Love Jackie, Mel, Rachel and Mikey Hardy <jmhardy@aol.com>
Ellington, CT USA - Monday, July 9, 2007 7:47 AM CDT
Happy 3rd Birthday. We are so glad you are doing well. Even though I don't write, I check your website regularly.
We are going to Minnesota in a few weeks for Michael's 3 year checkup. Boy, how time flies....Enjoy your summer.

Love Jackie, Mel, Rachel and Mikey Hardy <jmhardy@aol.com>
Ellington, CT USA - Monday, July 9, 2007 7:47 AM CDT
Hello Ann and Johnathan,
I do like the new tennis pictures. Johnathan looks great! Sorry to hear that those stomach troubles are still there. Praying that they will go completely. Wow, our insurance works differently over here in Australia compared to you guys...it is always very interesting hearing about how you have to do different things with insurance. I hope the new insurance covers what you need it to cover as well. God will help you work out what to do with the growth hormones. I know He just gives us a peace aboutt he right decision in different circumstances....
Love ya heaps,
Charisse
(FA Adult)
http://charissejournal.blogspot.com

Charisse Howard-Jones/The Prayer bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Monday, July 2, 2007 6:49 AM CDT
Hi Johnathan.
I just read your web site update and looked at your new pictures. You look great!
We are praying for you and miss you so much!

Auntie Donna

Donna Trapani <donnaltrapani@aol.com>
Mt. Gilead, oh usa - Thursday, June 28, 2007 1:33 PM CDT
Hi Ann
I hope that this finds everyone doing well and enjoying their summer...I'm with you on the new drum set...I would have to have it in a sound proof room...Marshall has always wanted to play the drums and take lessons. I'm not to sure about that though. I will pray that Johnathan's stomach troubles go away, ALL the way away.
Hope every one is have a grate summer
Blessings
Kelly Bennett

Marshall & Amelia <the5bens@charter.net >
Covington , La - Sunday, June 24, 2007 10:10 PM CDT
Hi

Glad to hear things are going well this summer. We are going to be going up to Min on July 31 - Aug 3. CAn you go during that time frame?

The Kuells

Bill Kuell <pelicannsb@aol.com>
- Tuesday, June 19, 2007 1:58 PM CDT
Johnathan,
I am so sorry to hear that you got punched in the nose and that you had to go to the ER and also that you were throwing up non -stop.I hope that you get better soon.That is not good at all about that you felt like you were going to pass out.You and your family are in my prayers.

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Sunday, June 17, 2007 9:09 PM CDT
Johnathan,
I am so sorry to hear that you got punched in the nose and that you had to go to the ER and also that you were throwing up non -stop.I hope that you get better soon.That is not good at all about that you felt like you were going to pass out.You and your family are in my prayers.

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Sunday, June 17, 2007 9:06 PM CDT
Photo Sharing and Video Hosting at PhotobucketHang in there! Prayer are coming your way!
The Prayer Bears

Still praying! Praying for a wonder summer!
Jonathan, you are a child of the KING! Hold you head up high and SMILE!

Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, Va - Tuesday, June 12, 2007 8:51 AM CDT
Hope that you have a great summer, I'm hoping that summer goes by real slow.We are getting quiet a bit of rain here.
Steve has not heard anything on a job yet, since being laid off, Please pray that some one will call him about a job, Thank you.
Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Friday, June 8, 2007 11:36 AM CDT
Hi Johnathan -
Tennis camp? How cool is that!! Maybe someday we'll see you at the US Open? We can dream!! :) Hey I'm glad you're doing better and hope you have a really great summer now that SCHOOLS OUT!!! YEAH!!
Give your mom a hug from me...
God Bless,
Nancy Ross
www.caringbridge.com/ca/karlyross

Nancy Ross <ross4@comporium.net>
Tega Cay, SC USA - Friday, June 8, 2007 8:27 AM CDT
Johnathan,
hey!That is excellent to hear that you are doing well plus signed up for Tennis!I was in the hospital for 1 night and got out last night.I was very dehydrated,and i blacked out at my high school and they woke me up and my teacher took me to the nurses office and they were gonna call 911 because i was not responsive at all but my mom came and took me to the doctors.The doctor checked my blood pressure and it was low.It was 40/80 which was not good at all.Then the doctor hospitalized me.But when i blacked out it scared my teacher plus all my friends.And when that happend,i felt like i was gonna die cuz i was so nausious.But i went to school today for a whole day.

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Thursday, June 7, 2007 6:02 PM CDT
Johnathan,
We miss you guys so much!!! When I heard about your discouragement I felt a overwhelming need to write to you. Encourage yourself in the Lord, as David did, for our HOPE is not doctors & medicine alone, for we serve a great God who is ready & waiting, and what the doctors & medicine can't do He CAN & WILL DO!!!! Don't get distracted or down for this is not for your sorrow, but for your testimony!!! He will keep you in PERFECT PEACE whos mind is stayed on Him!!! Besides you have a Uncle & Aunt who love you dearly & will not stop praying & BELIEVING & are even ready to go to battle for you if that is what it takes. So once again I say be ENCOURAGED this is the middle NOT the end of things. We LOVE you Johnathan.
Uncle Anthony

Anthony Trapani <anthonymtrapani@aol.com>
Mt. Gilead, Ohio USA - Thursday, June 7, 2007 4:50 PM CDT
Johnathan,
Wishing you well...
You are in our prayers.
Nanette Foster & Family
www.caringbridge.org/tx/dianna

Nanette Foster <nfoster@fbclewisville.org>
Lewisville, TX USA - Monday, June 4, 2007 12:02 AM CDT
John,
Hi!This is Nicole the one that has FA too!Well just to say hi and that you are always in my prayers!Are you going to Camp Sunshine next year cuz i am with my mom,Katie and her mom so hopefully you will be there so i can meet you in person and we can hangout there.And also i can meet your mom and family like you can meet my mom too!I know how you feel about that you don't have a girlfriend and so i!!!Plus that you stopped growing me too!I had to get a blood draw cuz they thought that i have diabeties and i don't.Also my sister might not be the bonemarrow match cuz if she has Disktariosis congeneta then she can't be the match.I am on Folic acid cuz i have acid reflex and that can hopefully bring my red blood cells up and that means that i won't need a transplant.PLease sign my guestbook and or email me at n_fauver08@yahoo.com and i will talk to you more.Also my b-day is in 2 months!
your friend,
Nicole

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Sunday, June 3, 2007 5:10 PM CDT
Saying a prayer right now for Johnathan.

Jennifer from the prayer bears <sassy_girl913@yahoo.com>
Bridgeport, Texas - Sunday, June 3, 2007 8:57 AM CDT
Jonathan,
I too am sorry that there has not been more growth. Stuart, who is nine, was transplanted August 2006 and I wonder what the future holds for him in many ways, including his adult height. Considering everything you children and young adults have been through,height seems like a small issue, but it is nonetheless very real. I am sure you are disappointed and I pray that you find it to be ok.

Meg Kasting, mom to Stuart age 9
St. Paul, MN USA - Thursday, May 31, 2007 9:07 PM CDT
Dear Jonathan & Family:
My daughter had daily growth hormone injections before we knew she had FA. She grew 1 1/2" after she stopped her shots at age 14. She is now 5'1".

My son, Roy is 19, and we could not get a doctor in Oregon to okay him to take HGH therapy during the time frame that would help him. Finally, when we found Dr. Susan Rose in Cincinnati and she said that she would okay it, it was too late as his growth plates had solidified. He is 5'3 1/2" and has been for several years. That's a good heighth, but I believe that he would like to be taller.

Roy's Make-A-Wish was to meet Michael Jordan. It took
2 1/2 years to arrange, but Make-A-Wish sent our whole family to Washington DC (this was in 2002) and Roy met with Michael. MJ is very handsome and has a kind voice. He had just had knee surgery and the day we met him was his first day off crutches, so unfortunately there was no messing around with a bball.

Roy eventually developed other interests and left Bball behind him, but he still has the autographed Wizards jersey and bball that MJ signed, both in frames.

Roy is in NY at Memorial Sloan Kettering Hospital undergoing his bone marrow transplant. You are welcome to visit our family website and leave a message for him to contact you if you want to visit. www.caringbridge.org/visit/royproctor

Best wishes to you,
Kay Proctor
mother to Josie Proctor Keyes age 27 FA a
Julie age 23, Roy age 19 FA a Day14+

kay proctor <mightymomma@hotmail.com>
heppner, or usa - Thursday, May 31, 2007 7:53 PM CDT
As always, you are in my prayers. Dianne Ploetz
Dianne Ploetz <dianneploetz@aol.com>
St. Paul, MN - Thursday, May 31, 2007 1:35 PM CDT
Where there is great love there are always miracles.--Willa Cather



Praying for you & yours,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon with new pics of our miracle girl and our Relay.


The Prayer Bears


Prayer Bear Barb
- Thursday, May 31, 2007 1:15 PM CDT
Jonathan - just want you to know that there are plenty of 'short' girls here in London who think you are really buff!!! The best things come in small packages you know!!
You don't have to be tall to stand tall - so keep your chin and spirits up and know that there are a ton of people thinking about you all around the world.
God bless
love Gail x

Gail Richardson <gailrichardson@talktalk.net>
London, England - Thursday, May 31, 2007 12:55 AM CDT
Ann & Johnathan -

First off, you are both still in my prayers!! I think of you frequently! I'm still praising God for Johnathan's recovery from transplant and his continued health - imperfect but still good!

Secondly, I hope you can come to camp this summer and have Johnathan meet the other John (Hanna from Oklahoma)- he's a real insiration! There is nothing wrong with being how God made you - short or tall. I know its harder for men, but Johnathan is handsome just the way he is.

Karly's bone age just came back as within 1 standard deviation from normal - which I guess means she's about 12 in both bone age and chronological age. We're still praying about the growth hormones, but Karly cries every time I bring it up. She wants to be taller but doesn't want the shots. Her cousin takes them and tells her he doesn't even feel them, but she doesn't believe it. At the rate she's growing she'll be about 4' 10". That's good enough for me if that's how the Lord made her! :)

Have a blessed day! Know that we care about you and keep you in our prayers!!
Nancy

Nancy Ross <ross4@comporium.net>
Tega Cay, SC 29708 - Thursday, May 31, 2007 11:58 AM CDT
Saying my prayers for ALL of you!
Darla L. www.caringbridge.org/in/angelbarneyboo <darlalindenmayer@yahoo.com>
- Thursday, May 31, 2007 11:43 AM CDT
Johnathan, First of all - Happy Birthday! Secondly, you are in our family's thoughts and prayers (Mom and Dad too). I can only try and understand how hard it must be to be smaller, but from my experience, what means the most is what kind of person you are and how you live your life. I have no doubt your are an AMAZING INDIVIDUAL and live each day to the fullest. Love, the Connellys (from De Pere, WI - we should meet some time...)
Kim Connelly <KimJohnConns@aol.ocm>
- Thursday, May 31, 2007 10:46 AM CDT
That has to be really tough...I'm sorry that there hasn't been more growth! You'll be in our thoughts & prayers.
Teresa (http://cliftonclan.blogspot.com) <teresabelle@gmail.com>
Anna, TX USA - Thursday, May 31, 2007 9:42 AM CDT
Johnathan,
HI sweetie. I just wanted you to know I am thinking of you..You are always in my thoughts and prayers. Love, Marci The Prayer Bears
http://www.freewebs.com/prayerbears

Marci Connell <clemsonklan@yahoo.com>
Valdosta, GA USA - Thursday, May 31, 2007 8:44 AM CDT
hi Johnathan!,
that was sone pretty discouraging news that you got and I can imagine it was hard for you to hear. So I am thinking and praying for you and it would be wonderful if you grow a littl more before you finish your course....I support you and don't feel bad about yourself for not being the height that you wanted to be....be yourself and people realise that height cannot restrict you in lots of things. Hoping and praying with you.
Love Charisse
(FA Adult)
www3.caringbidge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Thursday, May 31, 2007 8:30 AM CDT
Johnathan,
My son Matthew is very small but his personality makes him seem huge. I pray that your wishes are granted, and you will grow taller.
All the best,
Mary Nori

Mary Nori <thofhearts@aol.com>
New Hyde Park, NY USA - Thursday, May 31, 2007 8:16 AM CDT
I have said a prayer for you. All the best to you and the family.
Carmel <carmelb@gmail.com>
Chardon, OH USA - Thursday, May 31, 2007 8:03 AM CDT
Hi Jonathon,
Here's a big thank you for the gift you send me! I really like it! I beat my mom at the dice game. Praying that you are feeling well.
Anthony Jon Miller ( going through transplant )

Laura Miller <lamiller@valkyrie.net>
Dundee, OH USA - Sunday, May 20, 2007 3:26 PM CDT
Hi Jonathon,
Here's a big thank you for the gift you send me! I really like it! I beat my mom at the dice game. Praying that you are feeling well.
Anthony Jon Miller ( going through transplant )

Laura Miller <lamiller@valkyrie.net>
Dundee, OH USA - Sunday, May 20, 2007 3:25 PM CDT
HELLO JOHNATHAN AND FAMILY,
IT HAS BEEN SOME TIME SINCE WE HAVE SEEN OR HAD A CHANCE TO TALK TO YOU. JOHNATHAN KEEP YOUR HEAD UP AND REMEMBER YOU ARE A TRUE HERO JUST LIKE BEN. WE WILL KEEP YOU IN OUR PRAYERS. IF YOU NEED SOMEONE TO TALK TO PLEASE EMAIL US AND I WILL GIVE CHRIS YOUR PHONE NUMBER OR OURS TO YOU. CHRIS THINKS ABOUT YOU ALOT AND TELLS ALL THE KIDS HOW YOU AND BEN MADE HIM LOOK AT LIFE A LITTLE DIFFERENT. REMEMBER THAT YOU ARE ONE AMAZING BOY. BEN AND CHRIS BOTH SAY HI AND KEEP YOU CHIN UP. CHRIS IS DRIVING NOW. HE LOVES FOOTBALL LIKE YOU AND BASKETBALL. ANN HANG IN THERE REMEMBER I AM THERE FOR YOU IF YOU NEED SOMEONE TO TALK TO. BEN IS DOING WELL. HE DEVELOPED SEVERE ANXIETY THIS PAST YEAR. IT IS HARD FOR US TO UNDERSTAND WHAT THESE GUYS HAVE GONE THROUGH. I WANTED TO SEE IF YOU HAVE MADE YOUR APPOINTMENT TO GO BACK FOR JOHNATHAN'S YEARLY CHECK UP? BEN'S IS JUNE 4TH. THINGS LOOK GOOD SO FAR. BEN HAS HAD THE SKIN PROBLEMS TOO. I JUST KEEP SAYING THAT GOD ONLY GIVES US WHAT WE CAN HANDLE. TAKE CARE AND PLEASE SAY HI TO EVERYONE.


BECKY WASSON <wassonb@verizon.net AND www.caringbridge.org oh/ benwasson>
WEST SALEM, OH USA - Saturday, May 19, 2007 8:09 PM CDT
christian glitter graphics myspace code christian images
Christian Glitter by www.christianglitter.com

The Prayer Bears

Hang in there!
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, Va - Wednesday, May 16, 2007 12:26 AM CDT
Continually lifting up Johnathans name in prayer! Praying also Ann that God would heal your heavy heart...a beautiful heart of a loving and caring Mom!
God bless you guys!
xo,

Diane <dwidmer@wi.rr.com>
Racine, WI usa - Tuesday, May 15, 2007 9:11 PM CDT
Hey there guys! Hope that John is feeling better! In Jesus Name!
Wishing you a Happy Mothers Day too Ann!
Praying for a healing touch so very soon!
God bless...love and hugs,

the Widmers
Racine, WI USA - Saturday, May 12, 2007 9:53 PM CDT
That is too bad about the C-dif coming back, but I suppose that is better than the GVH rearing it's ugly head! That Culturelle is pretty good stuff - we use that at our house, too. We're sorry you missed your tennis party, Johnathan...that's a real bummer. Keep us posted on your liver enzyme tests - we'll check back soon to see how they came out. Hopefully you will be out this weekend enjoying the great weather we're having. You're East of us, but I'm guessing you are having the same fabulous weather! We hope you are feeling better really soon! Can you believe this school year is winding down already? Where did the year go? God Bless you all.
Terri and Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com>
Ramsey, MN usa - Friday, May 11, 2007 1:00 PM CDT
I am so pleased to hear that the first round of blood tests are coming back looking good. You all remain in my thoughts and prayers.
Dianne Ploetz <dianneploetz@aol.com>
St. Paul, MN - Thursday, May 3, 2007 5:34 PM CDT
We're keeping you in our prayers, as always, Johnathan. And we hope that the bug you had is gone from your system already. We will pray for some clear answers to your liver biopsy and that it will be an easy fix to bring those elevated numbers down. God bless you all.
Terri and Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com>
Ramsey, MN usa - Tuesday, May 1, 2007 7:27 PM CDT

Thinking about you and letting you know you are loved in Tennessee.
God bless,
Angel Jen
SOEW #1 and SOEW #2
Visit Harley and Barrett

Angel Jen, SOEW, pb, owc, others <angel.jen@mymacs.org>
Nashville Area, TN USA - Monday, April 30, 2007 10:42 PM CDT
Just checking on you guys. I hope your doctor's appointment went ok with Johnathan's liver counts. I will keep praying and check on you again.
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Monday, April 30, 2007 3:44 AM CDT
Johnathan is in my prayers.
Jennifer from the prayer bears <sassy_girl913@yahoo.com>
Bridgeport, Texas - Sunday, April 29, 2007 5:40 PM CDT
Hello Johnathan and Ann,
it is scary when things pop up out of the blue...just like the liver counts..and I really pray that they will work out what is happening. Most of all I pray that it will resolve and things will be fine and you don't have to worry. Bless you guys. You have incredible faith in Jesus and it is a joy to read that.
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Friday, April 27, 2007 8:19 PM CDT
Johnathan

I hope your liver counts improve. We will pray for you and your family. Keep the faith.

Mary Nori <thofhearts@aol.com>
New Hyde Park, NY USA - Friday, April 27, 2007 7:27 PM CDT
Keeping you wrapped in prayers for protection and complete healing.
http://www.freewebs.com/prayerbears/

Irene
Colstrip, MT - Friday, April 27, 2007 6:24 PM CDT
Sending healing light and loving prayers to you - I hope that things will soon get brighter
God bless
Gail x

Gail Richardson <gailrichardson@talktalk.net>
London, England - Friday, April 27, 2007 5:37 PM CDT
Johnathan, We are keeping our fingers crossed and praying that nothing comes of the high liver counts. Keep perserving! Hugs from the Fiaschetti FAmily
Mary Ann Fiaschetti (Mom to Peter, 7 y/o FA-A)
West Point, NY US - Friday, April 27, 2007 5:35 PM CDT


O God who art the only source of health and healing, the spirit of calm and the central peace of this universe, may your healing hand rest upon thy servant, may your life-giving power flow into every cell of his body and into the depths of his soul, cleansing, purifying, restoring to wholeness and strength for service in your Kingdom.
Amen

Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon

The Prayer Bears

Prayer Bear Barb
- Friday, April 27, 2007 5:17 PM CDT
John, we are praying for you this week regarding liver counts being high and tests to be done. Remember the Lord is with you and on your side and we all love you!
Uncle Anthony, Auntie Donna and family

Donna Trapani <donna.trapani@das.state.oh.us>
Mt. Gilead, oh usa - Thursday, April 26, 2007 12:49 AM CDT
Photo Sharing and Video Hosting at Photobucket
The Prayer Bears

AWWWWW! And I knew you couldn't leave it out! We will be praying for those liver levels to come down! Hang in there!
Blessings and Big Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, va - Thursday, April 26, 2007 8:15 AM CDT
Just stopping in to say hi, we will be saying some extra prayers for the liver!!! Congrats on winning another mathch. Keeping you all in my prayers daily.
Blessings,
Kelly Bennett

Marshall & Amelia <the5bens@charter.net >
Covington , Louisiana - Wednesday, April 25, 2007 10:08 PM CDT
Keeping you in our prayers.
Hope that you guys are having some nice weather there too.
Can't believe April is almost over with.
Always in our prayers.
Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Tuesday, April 24, 2007 8:19 PM CDT
Johnathan,
Hey!Happy 17th birthday to you!I am sorry to hear that you had a fever yesterday!I am home sick as well!I am very happy that your accounts are up there.Mine keeps dropping.I am sorry that your mom was in a car accident.Your are always in my prayers.Please email me at n_fauver08@yahoo.com!so i can talk to you more!I can't get on myspace because my mom won't let me.Are you going to camp Sunshine this Summer.

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Thursday, April 12, 2007 3:30 PM CDT
Hi Johnathan -
Belated HAPPY 17th BIRTHDAY!! Hope it was a lot of fun.
Your counts look GREAT!! Glad you are doing ok and enjoying life. You are still in our prayers. Give your mom a hug from me!
God Bless,
Nancy Ross
www.caringbridge.com/ca/karlyross

Nancy Ross <ross4@comporium.net>
SC - Wednesday, April 11, 2007 3:11 PM CDT
Happy belated birthday to you, Johnathan! I'm very relieved to hear that you are all okay after that scare and we pray your neck will feel better soon as well, Ann. That so scary and it just happens in that split second when you absolutely don't ever expect it! Have a much more uneventful week this week and recover. God Bless you all. You are in our prayers each and every day, Johnathan.
Terri and Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com>
Ramsey, MN usa - Tuesday, April 10, 2007 7:13 AM CDT
Happy Easter and Happy 17th Johnathan.
Have a great day celebrating!
Love and hugs,

the Widmers
Racine, WI USA - Sunday, April 8, 2007 8:05 AM CDT
Photo Sharing and Video Hosting at Photobucket

Jo Hannah Rebecca and Rachel

England UK
- Saturday, April 7, 2007 7:01 PM CDT
Hello,
Happy Easter!
LaKota is doing really good, and I am doing good after my surgery. Steve's job does not look too good at this point, they told him to look for another job, because they are not for sure when they will be calling anybody back to work, it is so scary, and depressing, scary how the economy is, and scary about the health insurance.
Your always in our prayers.
Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Thursday, April 5, 2007 6:17 PM CDT
Congrats on the tennis match!! Hi Ann just stopping in to say hello and wish every one a very happy Easter! Thinking of you all often and always remembering you in prayer. Have a great weekend.
Love & Blessings,
Kelly Bennett

Marshall & Amelia <the5bens@charter.net >
Covington , Louisiana - Thursday, April 5, 2007 10:39 AM CDT
Happy Birthday Johnathan! We are so happy for you and so proud of all you have come through. To God be the Glory!

Uncle Anthony, Aunt Donna, Abigail, Molly and Robert Trapani

Donna Trapani <donnaltrapani@aol.com>
Mt. Gilead, oh USA - Wednesday, April 4, 2007 1:17 PM CDT
Happy 17th Birthday to our special grandson!
We thank God for you every day.
See you Sunday.
With much love,

Nani and Bumpa
Waterford, Wi United States - Wednesday, April 4, 2007 10:52 AM CDT
Seventeen?! My word, where has the time gone. I remember him as a little guy with a huge belly laugh giggling at everything!
We are so thankful to hear that things are taking a turn for the better for Johnathan. We serve an awesome God who is faithful in good times and in bad. May Johnathan enjoy an amazing birthday! Oh yes, and Happy Easter too!

Love, the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Wednesday, April 4, 2007 6:56 AM CDT
I am so glad to hear that Johnathan is doing better. I don't sign your guestbook often, but I check on you all daily. I continue to pray for you and your family as well as all FAmilies.
Judy Smith <jasandbjs@yahoo.com>
Hohenwald, TN USA - Saturday, March 31, 2007 3:02 PM CDT
Hi Ann!! Just stopping by to check on Johnathan. Glad to see he's doing pretty well and enjoying life!! Wanted to let you know we still think of you and keep you in our prayers...
God Bless,
Nancy

Nancy Ross <ross4@comporium.net>
- Friday, March 30, 2007 8:32 PM CDT
I know Spencer hates his homework too. He has been out of school for 2 wks now and has so much to make up for since he had his transplant last week. Our weather is beautiful too except for today with nothing but dreary rain. I hate that, but I know we need it too. Glad to hear everything is going good. Take Care
Darla Lindenmayer Angel Matt's mom 7-3-90 - 4-22-04 www.caringbridge.org/in/angelbarneyboo
- Wednesday, March 28, 2007 10:20 PM CDT
christian glitter graphics myspace code christian images
Christian Glitter by www.christianglitter.com

The Prayer Bears

Praying the weather changes do not cause any sickness! It seems to be everywhere!! Nicholas hates his homework and I'm sure it is nothing compared to yours!
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, Va - Tuesday, March 27, 2007 1:40 PM CDT
John,
hi,whats up?I am so sorry that you are very sick with strep!
I am ok i guess because i have eye problems now because they did the laser surgery and it didn't work.My eye pressure in my left eye was 55 and that is very dangerous cuz i could go blind.Last week i had to go to the ER cuz my left eye was getting blurry plus i was very nausous and sick.I didn't get home until 4am.Hope you get well soon!God will help you get through this.

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Thursday, March 22, 2007 7:07 PM CDT
John,
hi,whats up?I am so sorry that you are very sick with strep!
I am ok i guess because i have eye problems now because they did the laser surgery and it didn't work.My eye pressure in my left eye was 55 and that is very dangerous cuz i could go blind.Last week i had to go to the ER cuz my left eye was getting blurry plus i was very nausous and sick.I didn't get home until 4am.Hope you get well soon!God will help you get through this.

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Thursday, March 22, 2007 7:06 PM CDT
John,
hi,whats up?I am so sorry that you are very sick with strep!
I am ok i guess because i have eye problems now because they did the laser surgery and it didn't work.My eye pressure in my left eye was 55 and that is very dangerous cuz i could go blind.Last week i had to go to the ER cuz my left eye was getting blurry plus i was very nausous and sick.I didn't get home until 4am.Hope you get well soon!God will help you get through this.

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Thursday, March 22, 2007 6:54 PM CDT
Hi Guys just wanted to stop in and say hello and hope that Johnathan will be feeling better again real soon it is no fun being sick even if you do get to miss school. Keeping you guys in our daily prayers......
Blessings,
Kelly Bennett

*Marshall & Amelia* <the5bens@charter.net>
Covington , Louisiana - Wednesday, March 14, 2007 3:52 PM CDT
Rejoicing with you over the good news! We serve an awesome God who hears the prayers of His people! Continuing to lift you up in prayer believing in great things!
Love and hugs,

Paul, Diane, Jake and Sarah <dwidmer@wi.rr.com>
Racine, WI USA - Monday, February 26, 2007 7:34 PM CST
So glad that John's liver test came back good, Thank you our loving God.
LaKota is still out of school due to the chicken pox at school, and Steve is still laid off.
We got around 10-12 inches of snow over the weekend, so we are having a grand time playing in the snow.
Always in our prayers.
Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Monday, February 26, 2007 2:08 PM CST
John...Thinking about u at work today. I pray your ultrasound test goes well and clear today.

Love Dad

Nate Eckstadt <neckstadt@sbcglobal.net>
Oak Creek, WI USA - Monday, February 19, 2007 12:56 AM CST
Hi Buddy!!!! I'm praying for you and you are growing up to be such a handsome young man. I miss you so much and hopefully I will be able to see you in September. I'm really hoping you get to come out with everyone too. I love you!!!
~your cousin,

Noel
CA - Saturday, February 17, 2007 12:36 AM CST
I'm sorry to hear about this set back. I pray that everything is okay with the checkups. We think of you often and check your site regularly. We pray that all is well. We hate set backs, they are no fun.
Darlene (www.caringbridge.org/ut/jordanbrunson) <darlene@millardk12.org>
Delta, ut - Thursday, February 1, 2007 9:43 PM CST
Praying that everything goes good tomorrow.
Your always in our prayers.
Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Wednesday, January 31, 2007 12:37 AM CST
Hi Guys...I am praying that every one is feeling better this week. It is going around our family too...Marshall has a cold now and tomorrow is his monthly IVIG.....I would hate to think what he would be like with out it!! Well just wanted to stop in and say hi and let you know that I was thinking about y'all. I keep you all in my daily prayers!!!!
Blessings,
Kelly

Marshall and Amelia <the5bens@charter.net >
Covington, Louisiana - Tuesday, January 30, 2007 9:24 PM CST
I hope you are all feeling better this week, and that Jonathan did well on his exams, after all that worrying (and I'm pretty SURE that he did do well!)
We keep you in our prayers every day, Jonathan! On with a new quarter/semester now!

Terri & Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com>
Ramsey, MN usa - Tuesday, January 30, 2007 2:36 PM CST
Hi John!
I am sorry to hear about your cold and hope that your exams went ok...if you have had them already. I used to feel very stressed around exam time as well. I can't believe I used to study until late too! It really was tiring! I don't know how I did it! I hope you do well. God bless you!
Ann, I wanted to say that I have been thinking about you and pray that Jesus is blessing you with a good year so far!
Love you lots,
Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Thursday, January 25, 2007 5:24 AM CST
John,
I am so sorry that you are not feeling well because of your bad cold.Ya i feel your pain that exams stress you out because i just got done with one of my finals today and i got more tomarrow and i am very stressed because of that.I am also not feeling well too because i have a cold as well.How is high school for you?High school for me is going well.I hope that you get well ok!Always smile and keep your hopes up!I am in class right now but i will talk to you later!
Your best friend,
Nicole Fauver

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Wednesday, January 24, 2007 2:51 PM CST
John,
hey,i went to check up on you and you are doing very well!Thats good that you are in basketball!!!lol!!!Anyways you should email me sometime!I will be looking forward to talk to you!
your best friend,
Nicole Fauver

Nicole fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Monday, January 22, 2007 4:24 PM CST
Hey John,
How are you doing lately?I am doing good.I just got back from my make a wish trip to Disneyland about 4 days ago.I had a blast there.I gotta go to the make a wish lounge and meet my favorite character Mickey!Then when i left there to go to back to the John waynes airport to come back in town,my plane home was delayed another hour because of the snow that was in Seattle,so i didn't get home until 8pm.Also i got to go in a limo for my first time ever and when the limo showed up in my driveway,my mom told me to close my eyes and i did and then she told me to open my eyes and i was very shocked because it was a limo.I went on alot of rollercoasters like Thundermountain railroad,space mountain with the red hot chili peppers soundtrack that was playing when you are in the tunnel going up and going down fast and turning which way.Then i went on alot of other rides,but i did not go on the California screaming or the Twilight of the tower of terror because it would be to freaky for me ,but i went on alot of rides.I heard that you so far don't have any side effects of the growth hormones that you are taking right now.I am so happy to see and hear that you are doing very well!Next month i have to go back to Children's hospital for more tests and to see the results of my last bone marrow biopsy and then see what we need to do next or if my bone marrow is dropping fast then see what we need to do to help me get better.But i am having a bone marrow biopsy every year now instead of 6 months unless it makes a sudden drop.I am staying stable right now.I am a little scared about if its leakemia,thats why my bone marrow is failing like it is.Anyways what about you?You should email me sometime when you are not busy with school!I g2g but i will talk to you later!

your best friend,
Nicole Fauver

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Monday, January 15, 2007 11:31 AM CST
Dear Ann, your journals always inspire me and I am glad things are going well with you all. I will be praying for you all to have a wonderful and healthy new year.
Happy New Year,
Judy and John Smith

Judy Smith <jasandbjs@yahoo.com>
Hohenwald, TN USA - Saturday, January 6, 2007 3:07 PM CST
Happy New Year!
Wow, can't believe the snow that we got yesterday, I guess now we can say, we got our Minnesota winter.
Sending lots of prayers your way.+++++++++++++++++++++++
God Be With You.

Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Monday, January 1, 2007 1:57 PM CST
Happy New Years! Hope your 2007 is filled with many blessings!
Love, the Widmers
Racine, WI USA - Sunday, December 31, 2006 8:08 AM CST
I hope you all had a very Merry Christmas, hang in there and take care.
Darla Lindenmayer, Angel Matt's mom www.caringbridge.org/in/angelbarneyboo
- Thursday, December 28, 2006 6:26 PM CST




The Prayer Bears Website

the meds will work and you begin to feel better Johnathan!
Ann, loved the poem!

Blessings and Bear Hugs,


Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, VA - Thursday, December 28, 2006 10:10 AM CST
Photobucket - Video and Image Hosting

Belated greetings hope you had a good one

Jo Hannah, Rebecca and Rachel

Jo
England, UK - Wednesday, December 27, 2006 5:50 AM CST
Happy Day After Christmas! Hope it was a blessed, peaceful, and happy day yesterday for all of you. Our day was lovely. Spent the whole day just the five of us, then had family over for the evening meal. We're getting ready to go walk the causeway with the kids now and then "the boys" are going to the park to shoot off a rocket. I might just come back and snuggle up with the girls for a long winter nap :) Hope you're enjoying the day. Hope everyone's healthy and happy. Much love, Karen
Karen M (team Ty) <MagrathKC@cfl.rr.com>
Melbourne, FL USA - Tuesday, December 26, 2006 9:02 AM CST
Beautiful picture :o)
Wishing you all a very blessed and Merry Christmas!
Love and hugs,

the Widmers
Racine, WI USA - Saturday, December 23, 2006 6:30 AM CST
Wishing you and the whole family a wonderful and blessed Christmas. We check in on you often and are always so pleased to see that Jonathan is doing so well.
Thanks for always thinking of us! It makes the holidays a little easier.
Love to you all!!!!
Kristi, Greg and Sean Zimny
(mn/brennan)

The Zimny Family <zim4@charter.net>
Glenwood, MN usa - Friday, December 22, 2006 7:31 PM CST
Photobucket - Video and Image Hosting
The Prayer Bears

Hope your Holidays are blessed beyond measure!
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, VA - Thursday, December 21, 2006 9:46 AM CST
Merry Christmas to all of you from Cincinnati, thanks for the updates on Johnathan. What awesome blessings you all have received and will continue to receive!!
Jonathan and Marlene Price <sunset@fuse.net>
Cincinnati, OH USA - Thursday, December 21, 2006 9:28 AM CST
Wishing you a very blessed holiday.
God be with you.
Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Tuesday, December 19, 2006 9:15 PM CST
John,
What's up?I have been doing well just tired alot!!!!How are you today!!!The weather has been stormy here!!!How is the weather there in Wisconsin?How are you feeling lately?We should meet sometime!!!!
Talk to you later,
your friend
Nicole Fauver

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Friday, December 15, 2006 10:04 AM CST
hey,what's up?I have been very sick with bronchitis!I have never had bronchitis before in my life until now!I am so happy that you are doing well!How have you been?I have been great!I gtg but i will talk to you later!
Take care,
your friend,
Nicole Fauver
Also here is my email address and it is n_fauver08@yahoo.com that if you want to email me!!!!

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Friday, December 8, 2006 6:42 PM CST
John,
Hey, what's up?I am so happy that you are doing good!!!I am sorry that you have a headache and you felt a little dizzy again!I hope that you get well!I have been doing good as well!I also have been tired too!
Take care,
Nicole Fauver

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Tuesday, November 28, 2006 3:46 PM CST
Hi John. I just talked with you this morning! Your Mom sent me your updated site. Pretty cool stuff. I am glad you are feeling better and back at school. I hope your Thanksgiving was fun with your family. I wish you and your family a fantastic Christmas and Happy New Year! Mr. Sigler
Paul sigler <p.sigler@oakcreek.k12.wi.us>
Oak Creek, WI U.S. - Tuesday, November 28, 2006 11:36 AM CST
hi Johnathan,
I am Nicole Fauver's Sister/ donor. I have heard a great deal about you from her. I just wanted to come say hi and introduce myself. I am 16 yrs old as well..... take care email me anytime on my email address.. Brunettecutiepie26@yahoo.com

take care and god bless,
ashley

ashley <Brunettecutiepie26@yahoo.com>
arlington, WA U.S.A - Thursday, November 23, 2006 0:44 AM CST
hi Johnathan,
I am Nicole Fauver's Sister/ donor. I have heard a great deal about you from her. I just wanted to come say hi and introduce myself. I am 16 yrs old as well..... take care email me anytime on my email address.. Brunettecutiepie26@yahoo.com

take care and god bless,
ashley

ashley <Brunettecutiepie26@yahoo.com>
arlington, WA U.S.A - Thursday, November 23, 2006 0:42 AM CST
Have a very Blessed, and Safe Thanksgiving!
I can't believe that we don't have any snow here in St.Cloud, Minnesota, the weather is fairly nice here for Minnesota.
Always in our prayers.
Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Wednesday, November 22, 2006 1:31 PM CST
Happy Thanksgiving guys! We all have so much to be thankful for! Hoping and praying that Johnathan gets over this "hurdle". God surely has kept His hand on you Johnathan, I am sure that you will be feeling better in no time!
Enjoy your long weekend.Love, frindship and hugs,

the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Wednesday, November 22, 2006 7:11 AM CST
hey John,
I am so srry that you are sick!!!I hope that you get better soon!!!I am here for you!I am sick as well with a bad cough!!!

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Monday, November 20, 2006 3:56 PM CST
Hey Johnathan,
What's up?How have you been doing?I have been doing good!Are you going to camp Sunshine this summer?I think that i am!You should email me sometime!I am glad that you are doing good!Keep in touch with me on how you are doing!!!!

Nicole Fauver <n_fauver08@yahoo.com>
Arlington, WA USA - Friday, November 17, 2006 12:44 AM CST
Hi Ann,
I will be saying some extra prayers for Johnathan, so that he will be the teams manager. I know just how you feel about this disease!! Marshall was such a great student and had straight A's....Oh well I am not going to dwell on the things I can not change just focus on helping him as much as I can..
Also wanted to tell you all to have a very Happy Thanksgiving. I know we have a lot to be thankful for....
Blessings,
Kelly Bennett
PS Hope you have a great weekend and Happy early anniversary.

~Marshall and Amelia~ <the5bens@charter.net>
Covington, Louisiana - Thursday, November 16, 2006 11:17 AM CST
Hi Ann
Just wanted to stop in and say hello and let you know I was thinking of all of you today. Keeping you all in my daily prayers.
Blessings,
Kelly Bennett

~Marshall and Amelia~ <the5bens@charter.net>
Covington, Louisiana - Monday, November 13, 2006 8:02 PM CST
Hi! Gosh, we don't tune in for a week and look what happens! I feel like I've missed alot so had to go through your last 2 journals to catch up. We are praying for good results from your glucose/thyroid tests, Johnathan. We'll be tuning in to see how those went. And great job on the hormone shots! Wow! You'll have to come over and be with Bailey when she starts hers. I'm guessing it won't go as smoothly with her!! She'll need a lot of support. (I can't even think about it right now!) Are you all getting ready for this weekend? Sounds like snow!!! Over here, anyway. Guess it's inevitable and we'd better just embrace it. God Bless you all! Have a great weekend.
Terri & Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com>
Ramsey, MN usa - Thursday, November 9, 2006 6:51 AM CST
Hi Jonathan & Ann -

Very handsome new homepage picture!! You look so happy and healthy! YEAH!! Glad things are going well for you. Hope the growth hormones work well for you. You are still in our prayers!

Best wishes,
Nancy Ross
www.caringbridge.com/ca/karlyross

Nancy Ross <ross4@comporium.net>
- Tuesday, October 31, 2006 3:05 PM CST
Happy Halloween.
God Be With You.

Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Tuesday, October 31, 2006 1:14 PM CST
Carved by Gene
The Prayer Bears Website
Happy Holyween,
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, Va - Friday, October 27, 2006 9:05 AM CDT
We really like your new picture. Jordan thinks your hair is cool. He can't wait to spike his like that. We are glad to hear that all is going well. We will keep your family in our prayers this next week. We think of you often and are glad that things are going good.
Darlene and Jordan (www.caringbridge.org/ut/jordanbrunson <brunsondj@frontiernet.net>
Delta, Utah - Thursday, October 19, 2006 11:46 PM CDT
Too cute! Love the new pictures! Glad things are going well with the GH shots. Thanks for updating :) Hugs.
Karen and Ty (www.caringbridge.org/fl/ty) <Magrathkc@cfl.rr.com>
Melbourne, FL USA - Monday, October 16, 2006 6:05 PM CDT
Hi,
Glad that things are going good for Jonathan, sorry about Lucky.
Always in our prayers.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
Saint Cloud, MN - Sunday, October 15, 2006 3:20 PM CDT
Hi Johnathan, Ann & family,
We hope your bug lifts soon and you start feeling better! Good luck with your class today (and we're hoping you feel well enough to attend) and with your growth hormone shots. We are so grateful that you are finally able to start them and we pray they will give you the growth you desire! Bailey has begun winter season number 4 in the same coat and snowpants. But hey, her SHOE size has grown so she'll have to get new boots. Well, at least her feet are growing! Hopefully her body will begin to catch up, too. We'll probably have to tap you in the next year or two for some info and tips about the GH's. Take care and have a great week and weekend recuperating and feeling much better. God Bless you all!

Terri & Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com>
Ramsey, MN usa - Thursday, October 12, 2006 7:07 AM CDT
Hi Johnathan,

I saw the most recent picture on your website, and you look great! We are so happy and proud of you! We will be praying you get over the ear infection you have right now too. We miss you!

Uncle Anthony and Auntie Donna Trapani
Abigail, Molly and Robert
Jer. 29:11

Anthony and Donna Trapani <donna.trapani@das.state.oh.us>
Mt. Gilead, OH USA - Thursday, October 12, 2006 6:42 AM CDT
Hi Ann
So sorry that I have not stopped in lately. We have been so busy. Johnathan looks great on the home page picture. I am so glad that the GH are a go and don't worry they are easy to give...is it a pen injector? That is what Amelia has but we are only able to give them in the thighs and after almost 2 years I think she is starting to build up scar tissues..but they have done wonders for her. We didn't do them with Marshall as his growth plates are just about closed and he is 5'2 1/2" we are hoping he might squeeze out another 1/2" or so....but his bone age is 17 years old so.....
Well I hope that Johnathan gets to feeling better.
Blessings,
Kelly Bennett

~Marshall and Amelia~ <the5bens@charter.net>
Covington , Louisiana - Wednesday, October 11, 2006 7:44 PM CDT
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The Prayer Bears Website

GVHD free! Sounds absolutely like a God thing to me! Wonderful news!
God is good!....all the time! You all are going to have to get to Camp Sunshine next year!
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, Va - Wednesday, October 4, 2006 7:41 AM CDT
GVHD-free?! Awesome!! Thanks for letting us celebrate along with you. Hugs.
Karen and Ty (www.caringbridge.org/fl/ty) <Magrathkc@cfl.rr.com>
Melbourne, FL USA - Monday, October 2, 2006 6:55 PM CDT
WOO HOO...Congratulations on the wonderful news, God is SO good ALL the time!
Much love,

the Widmers
Racine, WI USA - Tuesday, September 26, 2006 9:34 PM CDT
Ann, I'm so happy for all the good news about Johnathan. My computer died (along with your site's password), but after paying REALLY BIG BUCKS, I was able to get all the data retrieved :( Anyhow, I was beginning to have withdrawals from not being able to check on all 'my kids' :) Hugs
Karen and Ty (www.caringbridge.org/fl/ty) <Magrathkc@cfl.rr.com>
Melbourne, FL USA - Monday, September 18, 2006 6:14 PM CDT
Hello Ann,
it is wonderful that Johnathan is doing so well. Praise the Lord. He really is a good God! It is very encouraging to see him doing so well.
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse HOward-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Saturday, September 16, 2006 3:28 AM CDT
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The Prayer Bears are Praying For You!

Wow! I LOVE those counts and I'm sure you do! If only Nicholas' were that high! Please keep praying!
I know you are so thankful that Jonathan is going to school, tell him to enjoy every second of it!

Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, Va - Wednesday, September 13, 2006 12:25 AM CDT
It was great to see you at school yesterday! Your smile was big enough to light up the entire hallway!! I wish you only the best of luck this year...and stop by if you ever need anything.
Heather Piper <hlotto20@hotmail.com>
Milwaukee, WI USA - Wednesday, September 6, 2006 9:31 PM CDT
Hey John,
I am glad to hear that you are doing well so far with your health!!!I got good news???Well i got my bone marrow biopsy back and it is still stable!!!!I will still keep you in my prayers always!!!!
Take care,
Nicole

Nicole Fauver <nicole_fauver18@yahoo.com>
Arlington, WA USA - Tuesday, September 5, 2006 8:55 PM CDT
Hi Jon. I really hope your 1st day of school went well. It was good seeing you and you look great. Let me know what I can do for you. We will have a great school year! Mr. Sigler...........
Paul Sigler
Oak Creek, WI USA - Tuesday, September 5, 2006 4:46 PM CDT
Good luck at school today Johnathan. Hope you have a great day!
Hugs, the Widmers
Racine, WI USA - Tuesday, September 5, 2006 7:01 AM CDT
Hi Guys stopping in to say Hello. I am praying for Johnathan to get the Growth Hormones that he needs!! Hope that you all are doing well...can you believe it is school time already...???
Blessings &
Love,
Kelly Bennett

~Marshall and Amelia~ <the5bens@charter.net>
Covington, Louisiana - Sunday, September 3, 2006 7:27 PM CDT
Hello,
Sorry about it being a little while before I signed in, Now that I got my nephews scrapbook done for their wedding, I should have more time. LaKota will start school next Tuesday,Tonight is open house at school, so LaKota will find out who her teacher will be.
Boy summer sure flew by way too fast for us. Hope that your summer was a grand one.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Tuesday, August 29, 2006 11:38 AM CDT
Hey guys,
I heard that I missed you today at the hospital but I heard Jonathan looks great and is doing well which is always good to hear, he looks great in his pictures. I hope all the test result come back perfect. I bet Jonathan cannot wait to go back to school. Well I am sad that I missed you guys for your two year check up (I cannot beleive it has been two years). Well I gotta go back to work. take care.....

Cassie Bunce <surefireangel@hotmail.com>
minneapolis, MN - Wednesday, August 23, 2006 6:22 PM CDT
Praying, as always, for a GREAT week and for Johnathan to celebrate his 2 year post checkup with a trip to the State Fair for SOMETHING, anything, on a stick! We are so glad to "hear" everything went thru the insurance and the hearing aid is a great fit. We'll be thinking of you next week and maybe we'll run in to you at MOA. The girls want to do some back-to-school shopping there next week (GROAN!!!) That is, when Bailey is cleared from her docs to go. She has a HUGE kidney stone that has to come out, so it has to be done before school starts. God Bless you guys! Have a great week.
Terri & Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com>
Ramsey, MN usa - Tuesday, August 22, 2006 6:50 PM CDT
HI

We are sure that all of the results next week will be great. We are sorry that we missed you this year in Minnesotta, but lets hope for next year.

Good luck
The Kuell's

Bill Kuell <pelicannsb@aol.com>
- Saturday, August 19, 2006 9:18 AM CDT
Just wanted to wish you the best of luck on your upcoming trip to Minnesota. We'll continue to lift your name in prayer! Love and hugs,

the Widmers
Racine, WI USA - Saturday, August 19, 2006 6:35 AM CDT
Hi Ann,
you are a woman of faith and I love reading your updates because you can sense the joy of the Lord in your writing. Thank you for checking up on me as well. It is wonderful that Johnathan is doing so well. I pray that his wart treatment is over soon so he doesn't have to endure the painful treatment. Bless you heaps.
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Tuesday, August 15, 2006 2:40 AM CDT
Ann, great update/great news! The counts look awesome. We'll be praying that Johnathan doesn't have any more difficulties with nose bleeds and we'll be praying about your upcoming trip back to MN. Hugs
Karen and Ty (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL USA - Sunday, August 6, 2006 6:50 AM CDT
Hi Ann, Just wondering what the word is from the ENT and the BMT doc. Looking forward to your update. Hugs!
Karen and Ty (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL USA - Friday, August 4, 2006 6:10 PM CDT
Hi Johnathan,
This is Nicole Fauver!I am happy that i heard that you are doing good!!!!You should email me at nicole_fauver18@yahoo.com sometime!!!!I gtg but i will chat with you soon!!!!!
Take care,
Nicole

Nicole Fauver <nicole_fauver18@yahoo.com>
Arlington, WA USA - Thursday, August 3, 2006 7:57 PM CDT
Hello,
What a nice picture of Johnathan.
Hope that you guys are having a great summer, we sure are. Can't beleive how soon school will be here, too fast for me, but not for LaKota.
Prayers are always with you.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, Mn - Wednesday, August 2, 2006 7:05 PM CDT

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Thinking of you today~~

Darla, Bobbys mommy


Darla Cash <Darlardrr@msn.com>
Ada, Oklahoma - Monday, July 24, 2006 8:22 AM CDT
I know it is a little late...but...Happy 2nd anniversary!! Way to go!! I continue to pray for you everyday. I am so glad to hear that you are enjoying your summer! Soon enough it will be time for school again...and all of that homework! Enjoy the freedom while you can! Hope the rest of the summer is as much fun as the beginning has been! See you in the fall!
Heather Otto
Milwuakee, WI USA - Sunday, July 23, 2006 3:28 PM CDT
Wow! What an awesome picture, Johnathan! You look happy, healthy and full of life and energy. And from your mom's updates, it sounds like your summer is fitting the bill for you. It is really wonderful to hear how well you are doing and all the fun you are making up for. Happy belated 2nd re-Birthday - gosh, I can't believe I missed logging in that day. I have your anniversary on a chart by my computer and i've apparently been in la-la land (where I reside most of the time, actually). God Bless you all. You remain in our prayers each and every day.
Terri & Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com>
Ramsey, MN usa - Saturday, July 22, 2006 7:21 PM CDT
Hi Johnathan,
My name is Nicole and i have Aplastic anemia!I am almost 18 years old on August 20th!I read your journal and i am happy that you are doing well!I am here for friends and support!I am having problems with my red blood cells dropping!I am going to get another blood draw soon!Children's hospital in Seattle are worried about my red blood cells dropping!I have a bone marrow match and it is my sister!I am also going to have another bone marrow biopsy in September!My platlets are 61,000!But other wise i am doing good!I wanna stop by to tell you that you and your family are in my thoughts and prayers!I will talk to you later!Please keep me posted on how you are doing!Email me sometime at nicole_fauver18@yahoo.com
Take care,
Nicole

Nicole Fauver <nicole_fauver18@yahoo.com>
Arlington, WA USA - Thursday, July 20, 2006 5:26 PM CDT
Just stopping in to say a quick hello and hope that you are all getting out and able to enjoy the beautiful weather. It is so hot here with temps reaching 100* and 100% humidity. The kids last about 10 minutes outside swining and then they are in for something cold to drink. Hopefully next week we will have great weather in the mountains of Tenn.
Take cake and I will stop in again soon.
Blessings,
Kelly
~Marshall and Amelia~

Kelly Bennett, Mom to Marshall 13 & 3 years Post BMT, Amelia 6 and FA-G and Nathan 3 and Non-FA <the5bens@charter.net >
Covington , Louisiana - Wednesday, July 19, 2006 7:07 PM CDT
I'm glad Johnathan is getting to enjoy all the normal teen stuff again. Awesome!!
Karen and Ty (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL USA - Wednesday, July 19, 2006 4:26 PM CDT
So sorry to read about the insurance issues and having to reschedule MN. I know you were looking forward to that trip. We'll be praying that Johnathan's nose bleeds are just from the flonase and that there is a good alternate med for him.
Karen and Ty (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL USA - Friday, July 14, 2006 6:20 AM CDT
Hi Guys...
I'm sorry to hear that the trip has been rescheduled. We will be going on Aug.10th to see Dr.Wagner. I love the new picture of Johnathan. Oh My..he looks so healthy. I am so happy that he is doing so well can you believe that it has been that long since transplant?!!? I can't believe that it has been 3 years for Marshall. He doesn't even need a BMBiopsy this yr. Just Amelia....Well I think of you all often and keep you all in our daily prayers.
Love and Blessings,
Kelly Bennett

~Marshall and Amelia~ <th5bens@charter.net>
Covington, Louisiana - Thursday, July 13, 2006 10:53 PM CDT
Happy 2nd Birthday Jonathan! You look great. We think of you all often and we are glad things are going good.
Mel, Jackie, Rachel and Mikey Hardy <jmhardy@aol.com>
Ellington, CT - Thursday, July 13, 2006 7:28 AM CDT
Happy Birthday Jon - hope your summer is going good. Glad to hear you are doing so well. If you are looking to put on some more weight you are always welcome to come over and eat like Eric does. It seems to be working for him:) See you soon.
Kim and Eric Semmelhack <kmsmjs@aol.com>
- Wednesday, July 12, 2006 9:42 AM CDT
Happy 2nd Birthday Johnathan! I love the new pictures! Hope your summer is going well. See you in the fall.
Jill Petre <j.petre@oakcreek.k12.wi.us>
- Tuesday, July 11, 2006 10:50 PM CDT
Happy second Birthday Jonathon. You look great. I am glad that you are did well on your transplant. I will keep you in my prayers. www.caringbridge/org/in/cassanadra
Renee' Jones <goingkrazy@insightbb.com>
Richmond, IN - Tuesday, July 11, 2006 5:49 PM CDT
Happy 2nd Birthday Johnathan!!!! You look great in the new picture. Keep up the good work. So glad to hear that all is well. We keep you and your family close to our heart and in our prayers.
Darlene (www.caringbridge.org/ut/jordanbrunson) <brunsondj@frontiernet.net>
Delta, ut - Friday, July 7, 2006 11:04 PM CDT
Happy Birthday Buddy! God has kept His hand on you these past 2 years. Continue to hold tight to Him and there is nothing you can't accomplish! God bless,
the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Friday, July 7, 2006 9:32 PM CDT
Happy 2nd Transplant Birthday Johnathan. We are so proud of you and all the obstacles you have overcome these past 2 years. The Lord has answered so many prayers, and you are a shining light and example to so many. Keep on smiling, and know that we are praying for you and remembering you always.
All our love,
Uncle Anthony, Auntie Donna, Abigail, Molly and Robert Trapani

Anthony & Donna Trapani <donna.trapani@das.state.oh.us>
Mt. Gilead, OH USA - Friday, July 7, 2006 3:11 PM CDT
John, Happy 2nd rebirth birthday. God has truly blesseed you! You are an awesome youngman. Watch out girls John is growing up!! Keep working out and practice the Basketball. Keep a smile on your face and a song in your heart. There is nothing you can't do!!!

As always, God Bless!!!!

Dad

Nate Eckstadt <neckstadt@sbcglobal.net>
Oak Creek, WI USA - Friday, July 7, 2006 12:39 AM CDT
Johnathan looks GREAT! Happy second birthday!
Karen and Ty (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL USA - Friday, July 7, 2006 10:34 AM CDT
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Hi

Hannah the birthday girl has just dropped in to say Hi

great to hear about the counts, enjoy your 2 year anniversary

Jo Hannah, Rebecca and Rachel

Jo <yarnall@blueyonder.co.uk>
England, UK - Wednesday, July 5, 2006 7:17 PM CDT
Awesome counts! And great news that you're decreasing the steroid. Yippeeeeee! Have a great trip back for Johnathan's 2 year follow-up.
Karen and Ty (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL USA - Saturday, July 1, 2006 9:39 AM CDT
Just stopping in to say "hi" and so glad things are going well for Jonathan!!! We check your site all the time, but haven't dropped note lately. The first part of Junewas hard for us, but we are trying to get back on track now.
Keep up the great work and praise the Lord for his amazing healing for Jonathan!!!
Love to you all!
Kristi, Greg and Sean Zimny

Zimny Family <zim4@charter.net>
Glenwood, MN USA - Friday, June 30, 2006 9:13 AM CDT
Great news on the insurance covering the hearing aide. I sure wish though that you all could get the hormone issue taken care of and quickly. I am not sure how but our doctor "worked" on our insurance company and after almost a year of fighting BC/BS covers the whole thing!! PTL.
Well wanted to pop in and say hello.
Think of y'all all the time.
Blessings,
Kelly Bennett
Marshall and Amelia

Kelly Bennett, Mom to Marshall 13 & 3 years Post BMT, Amelia 6 and FA-G and Nathan 3 and Non-FA <the5bens@charter.net>
Covington , Louisiana - Thursday, June 29, 2006 9:52 PM CDT
Hello Jonathan! and his Mom! My name is Miss Otto and I teach at OCHS. I got to know Jonathan from Kim and Eric Semmelhack. I just wanted you to know that I send my well wishes and my prayers to you. And I hope that you are doing well...also, if you ever want..Kelli Semmelhack and I can always play you and Eric on a 2 on 2 match this summer in basketball....Not only are we good at cheerleading but we play a mean game of basketball. Take care and have a wonderful day!
Heather Otto
Milwaukee, WI Milwaukee - Wednesday, June 28, 2006 8:42 AM CDT
Hello,
We hope that you are having a great summer, I can't believe how fast summer is flying by, to fast for me.
Have a great summer.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Tuesday, June 27, 2006 8:02 PM CDT
GREAT news on the ins. coverage for Johnathan's hearing aid! Now he won't be able to selectively tune you out because you will KNOW that he can hear you, right?! Ha! I hope Johnathan will find a sport that he can play and feel GOOD about it and himself. That is really heartbreaking when our kids can't do what they really want to do and then feel like they can't do anything else well either because they want to do what their friends do. Is he interested in swimming and swim team? Often times that is a sport that really "clicks" with kids and there really isn't a "too late" timing with that sport. We'll continue to pray that he finds his "niche" and it wipes out the bad feelings for all the other stuff he is struggling with. We have had that summer cold stuff rolling through our house, too. The worst of it seems to be the sore throat. But that, too, shall pass! God Bless you all! You are always in our prayers.
Terri & Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com>
Ramsey, MN usa - Monday, June 26, 2006 7:36 AM CDT
Hello,
Hope that your having a great week. It is so cold here today, it is 58 above and raining, summer goes by too quickly here, wish it would last longer.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Tuesday, June 20, 2006 10:48 AM CDT
Still keeping you ALL in my prayers
Darla Lindenmayer, Angel Matt's mom 7-3-90-4-22-04, www.caringbridge.org/in/angelbarneyboo
- Saturday, June 17, 2006 8:23 PM CDT
I feel bad that I haven't signed in a while....I have been keeping up though. We stay so busy in hte summer with them all running around the house..it is so hot, to hot to spend too much time outside it was 98* and 100% humidity the other day.
I can totally relate with the sports issue..Marshall is not that short but he has had a stroke and a brain hemorrhage and his left side is still a little weak and when you have never played you don't have the skills. He wanted to play baseball and he tried but they really throw that ball real hard and the last time he played he was in T-ball and well that is a whole lot different than this. But yes I know exactly how your heart feels and yes what do you keep telling them I am running out of things to say too. Marshall wants to play football for his Jr. high school next year...I DON'T THINK SO...I know that he has been through the BMT but I just think it is still too rough for him to handel and he is still skinnier than most kids his age.
Anyway not sure if it helps but from one mom to anotherI truely feel your pain!!!All I can offer right now is a prayer.
Blessings,
Kelly Bennett

~Marshall and Amelia~ <the5bens@charter.net>
Covington, Louisiana - Wednesday, June 14, 2006 10:02 PM CDT
I hope you are feeling better. I wrote your name for prayer in my daughter's webpage: www.venusdiaz.com
God Bless you

Rafael J Diaz Nieves <rjdn@venusdiaz.com>
Juncos, PR Puerto Rico - Monday, June 12, 2006 7:38 PM CDT
Ann ~ {{{{hugs}}}} I'm sorry things are so tough for Johnathan right now (height and basketball stuff). I hate, too, to read that he's still having tummy problems. Sheesh! Praying and praising...
Karen and Ty (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL USA - Monday, June 12, 2006 5:03 PM CDT
Thanks for the update Ann. We check on Johnathan just about every day even though we don't sign in that often. We continue to pray for him too!
Johnathan has overcome so much his entire life. He is in Gods favor. Hopefully his discouragement will only be for a season....God is faithful and will continue to see Johnathan through every step of the way!!!
Johnathan, if you do consider taking up golfing, I am sure Jake would enjoy going with you!!! God bless!Love and hugs,

the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Monday, June 12, 2006 4:24 PM CDT
Hello everyone I am so glad to see that everything that God said he would do his word is not coming back void. Thanks Johnathan for being strong and a fighter just like Jamari was may a portion of his spirit live in you. I am so proud of you and your progress. My girl friend asked about you because you were in her spirit, so I am glad that all is well. Leslie and Jamal says hello.
Marcia Drayton <greatchef_mpd@yahoo.com>
East Chicago, IN usa - Friday, June 9, 2006 7:55 PM CDT
Wow! Great report all the way around (well, except maybe for the warts!). Congratualtions on making the honor roll, too, Johnathan. You are a rock star! And a brainy one at that! Have a very fun summer - I think you guys are out of school now in WI - we are counting down the days this week until summer blast-off on Friday. Have a great week all of you! To God be ALL the glory and praise!
Terri and Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com >
Ramsey, MN usa - Monday, June 5, 2006 10:15 AM CDT
Still keeping you ALL in my prayers.
Darla Lindenmayer, Angel Matt's mom 7-3-90-4-22-04, www.caringbridge.org/in/angelbarneyboo <darlalindenmayer@yahoo.com>
- Saturday, June 3, 2006 8:59 PM CDT
Hey Guys,
Happy Memorial Day! We sure hope that Johnathans tummy issues are getting better!
Hope you guys have a safe, fun and blessed Memorial Day!
Love and hugs,

the Widmers
Racine, WI USA - Monday, May 29, 2006 8:28 AM CDT
I'm sorry about John's tummy. Definitely hope he's feeling much better for the big graduation/Memorial Day weekend festivities. Hugs and prayers...
Karen and Ty (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL USA - Tuesday, May 23, 2006 3:22 PM CDT
Praying for a great week for you all and a wonderful Memorial weekend and party with your niece and family. That is too bad about the insurance denial for the second time. Aren't you just so sick and tired of dealing with insurance issues?! I know I sure am! They don't make it easy. But you know what they say - the third time is the charm?! So maybe this round will be a go - YOU can wear THEM down this time. And we'll all have a party!! God Bless you guys, you are always in our prayers, Johnathan.
Terri and Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com >
Ramsey, MN usa - Monday, May 22, 2006 5:46 PM CDT
Hope that you had a great weekend.
You are in our thoughts and prayers.
Sending lot's of prayers your way.++++++++++++++++++++++++
God be with you.

Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Monday, May 22, 2006 10:35 AM CDT
Have a great weekend,
Sending lots of prayers your way.+++++++++++++++++++++++
God be with you.

Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Saturday, May 20, 2006 1:40 PM CDT
Hope that you have a great week.
Sending lot's of prayer's your way+++++++++++++++++++++++++
God be with you.

Love LaKota and her mom Debbie

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Wednesday, May 17, 2006 1:43 PM CDT
Hi Ann just wanted to pop in and wish you a very "Happy Mothers Day" . Hope you have a great day...Have fun and enjoy yourself.....
Blessings,
Kelly

~Marshall and Amelia~ <the5bens@charter.net>
Covington, Louisiana - Saturday, May 13, 2006 7:57 PM CDT
Hope you hear good news soon from the insurance company! Love the new pictures :) Thanks for updating so faithfully. I'm SO GLAD you decided to carry on with John's website after all :)
Karen (www.caringbridge.org/fl/ty) <magrathkc@cfl.rr.com>
Melbourne, FL US - Saturday, May 6, 2006 3:55 PM CDT
Aaargh! Typical insurance company stuff, isn't it? It is truly frustrating at times. I'm praying this all gets resolved and soon. We're so grateful to hear that Johnathan continues to do so well and is enjoying life like a 16 year old kid should! God Bless you guys! You are ALWAYS in our prayers, Johnathan.
Terri and Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com >
Ramsey, MN usa - Saturday, May 6, 2006 7:44 AM CDT
Hello,
So glad to hear that Johnathan has grown so much since last year.
Hope that you are all having a great week.
Sending lots of prayers your way.+++++++++++++++++++++++++
God be with you.

Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Wednesday, May 3, 2006 9:07 PM CDT
I am so happy to read all of the great NEWS!!! I bet Johnathan is excited about the growth. That is so wonderful that his T-cells are so high. I am so happy for you guys. You are so right God is Always GOOD!!!
Still praying that everything continues to go G R E A T....
Hugs and Blessings,
Kelly Bennett

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~Marshall and Amelia~ <the5bens@charter.net >
Covington, Louisiana - Monday, May 1, 2006 8:43 AM CDT
Awesome news in this journal entry! We are so happy for y'all. Thanks for updating so faithfully :)
Karen and Ty (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL USA - Sunday, April 30, 2006 7:43 AM CDT
Hey Johnathan!
Nice going! It is so nice to hear that you have grown without the medications. I pray that it keeps up as well.
Ann...I am sorry to hear about the mumps outbreak and I can understand why you are so concerned about Johnathan...I am going to pray for him and ask God to constantly protect him from this virus and many others.
I will check back soon and I hope he can have his immunisations.
Lots of love,
Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Sunday, April 23, 2006 7:27 AM CDT
Happy Birthday Johnathan!
Did I miss it? I am so happy to hear about your counts! They are marvellous! Praise the Lord! How long has it been since your transplant now? I am glad the GVHD is under control. Bless you heaps and I will come back again soon.
Lots of love and prayer,
Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Tuesday, April 18, 2006 6:06 AM CDT
Hope that you had a very Bless Eater.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Monday, April 17, 2006 10:29 AM CDT
Happy Easter to all of you!!!!
We keep praying for your continued recovery!!!
Love to you all on this most blessed of days!
Love,
Kristi, Greg and Sean

The Zimnys <zim4@charter.net>
Glenwood, MN USA - Sunday, April 16, 2006 1:47 PM CDT
Hi Ann,
What great counts those are!!! I am happy for all of you. I also wanted to say a very Happy Easter to you all. Have a great weekend and enjoy the holiday......
Image hosting by Photobucket
Hugs and Blessings
Love,
Kelly Bennett

*~* Marshall and Amelia's Place*~* <the5bens@charter.net>
COVINGTON, Louisiana - Friday, April 14, 2006 10:52 PM CDT
Image hosting by Photobucket
Darla Cash <Darlardrr@msn.com>
Ada, Oklahoma USA! - Wednesday, April 12, 2006 1:26 PM CDT


Hannah and Rebecca just wanted to drop by and tell you that they have a new baby
Sister Rachel Emily born on 6th April 2006 weighing in at 9lb

Jo Hannahand Rebecca

Jo <yarnall@blueyonder.co.uk>
England, UK - Monday, April 10, 2006 3:30 PM CDT
Happy Birthday Johnathan,
Hope that you have a wonderful Birthday.
Your always in our prayers.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, mn - Saturday, April 8, 2006 9:57 PM CDT
HAPPY BIRTHDAY to you Johnathan. 16! WOW! Have a great time at your party!
love and hugs,

Paul, Diane, Jake and Sarah <dwidmer@wi.rr.com>
Racine, WI USA - Saturday, April 8, 2006 7:28 AM CDT
Ann ~ Sorry to read there's no surgical fix for the hearing loss. Hopefully the inner-ear hearing aid will do the trick. It's always such a hassle dealing with these dratted insurance companies, isn't it? I'm so empathizing with you... you're right...this is such a cruel disease... there really never IS 'normal', is there? Like you, I'm just so happy to have the extra time with Ty. You never know what's right around the corner as far as a cure or better treatments. And if nothing else, all the info the medical community gleans from all of our 'FA kids' will certainly help the next generation of FA'ers. I just hate that is has to be so hard on the kids, ya know? Anyhow, we check on y'all often and pray daily for Johnathan and your entire family. Much love, happiness and health...
Karen (www.caringbridge.org/fl/ty) <magrathkc@cfl.rr.com>
Melbourne, FL US - Thursday, April 6, 2006 5:57 PM CDT
Ann, your grandmother was one together woman - I love that message she wrote. It is SO true and is such a feeling of peace. Johnathan, we will be very happy when your wart appointments are over and you won't have to go through that anymore - it sounds very painful, indeed. And we hope and pray your new drug for your GVH will work it's magic for you and you can have some of your GVH-related problems relieved. You remain in our prayers every night. Have a good rest of the week and weekend.
Terri and Bailey - www.caringbridge.org/mn/baileygrace <terri4design@mac.com >
Ramsey, MN usa - Thursday, March 30, 2006 2:37 PM CST
Jonathan and Anne - please know that I am sending prayers and healing light out to you today and always - Jonathan you are a brave warrior in an awful battle but you have many supporters behind you willing you on.
God Bless you always
love Gail xx

Gail Richardson <gailrichardson@sml.ltd.uk>
London, England - Tuesday, March 28, 2006 7:09 AM CST
Hi Johnathan
YOU r always in our prayers...Thinking of u.
Bunny and Kami.
( In Georgia )

Bunny Sellers <bunny28@bellsouth.net>
BRUNSWICK, GA 31523 - Monday, March 27, 2006 8:51 AM CST
Johnathan, it's me again...Vera

One more web site for you to visit and embrace the Word of God that "by his stripes, you ARE healed." Isa 53

http://www.fireonthealtar.com/video/Healing-Passion-JasonW.wmv

Vera
Caledonia, WI US - Sunday, March 26, 2006 3:11 PM CST
Dear Jonathan:

You have a warrior spirit and that will make all the difference in the outcome of your battle. You will come out the winner! Not because of your strength but because you are depending on His (Jesus) strength to see you through.

Please go the the website I have included and be inspired by this song.

(http://www.fireonthealtar.com/video/YRMU%20+.wmv)

Love and prayers,

Vera Paquin




Vera <verapaq@aol.com>
Caledonia, WI US - Sunday, March 26, 2006 3:04 PM CST
Jonathan, I got your mom's message yesterday. I'm so sorry that you have this setback but I have no doubts that with your strong will and spirit you will get through this. Don't worry about "school stuff". You don't need to put stress and pressure on yourself. We are all here to support you in anyway we can! Take care and hope to see you soon.---Mrs. Petre
Jill Petre <j.petre@oakcreek.k12.wi.us>
Oak Creek, WI USA - Saturday, March 25, 2006 4:46 PM CST
We hope and pray that Jonathan will continue to get better. Unfortunately you have been faced with another setback. We look forward to healthy days again.
The Zawacki's
Oak Creek, WI - Saturday, March 25, 2006 4:22 PM CST
We are praying for you John!
LOve, the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Friday, March 24, 2006 9:30 PM CST
Praying that everything will be good for Johnathan, that God will heal Johnathan.
Alway's in our prayers.
Sending lot's of prayer's your way.++++++++++++++++++++++++
God Be With You.


Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Friday, March 24, 2006 3:54 PM CST
Hi Johnathan,

Just want to let you know Uncle Anthony and I and the kids will all be praying that the GVHD will be healed and for your complete and continued healing. We love you! You are an awesome nephew and we are so proud of you!

Love you
Auntie Donna Trapani

Donna Trapani <donna.trapani@das.state.oh.us>
Mt. Gilead, OH USA - Friday, March 24, 2006 2:04 PM CST
Hi Jon! Saw the homecoming pictures. They look great and it looks like everyone had a good time! Take care and keep in touch. Have a great remaining school year. Soon summer vacation! Your "Old" Principal, soon to be your "New".......
Paul Sigler <p.sigler@oakcreek.k12.wi.us>
Oak Creek, WI US - Friday, March 24, 2006 2:01 PM CST
HI Guys!
Sorry to hear that John has been so under the weather. We continue to pray for him and will say an "extra" prayer for his cold and tummy to heal! God bless.
Love and hugs,

the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Thursday, March 23, 2006 6:28 AM CST
Hi Ann,
I am saying an extra special prayer for Johnathan tonight. I am praying for him to get over this "bug" that he has and regain his strength, and one for you too.....
Many Hugs and Blessings,
Kelly Bennett

~Marshall and Amelia~ <the5bens@charter.net >
COVINGTON, LA USA - Wednesday, March 22, 2006 8:38 PM CST
HI guys--I hope everything keeps going well. We check your site quite often and keep up on your progress!
Many good thoughts and prayers going your way!
Love,
Kristi, Greg and Sean
(mn/brennan)

The Zimnys <zim4@charter.net>
Glenwood, MN USA - Tuesday, March 14, 2006 1:51 PM CST
Keeping you ALL in my prayers. I remember Matt having shingles, he had them three times and it was horrible . Tell him to hang in there. Love to you all
Darla, Angel Matt's mom, www.caringbridge.org/in/angelbarneyboo
- Saturday, March 11, 2006 10:09 AM CST
Good luck today Johnathan. We'll be thinking of you and praying for you too!
the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Friday, March 10, 2006 6:36 AM CST
Hi Ann,
I am so sorry for not checking in....I haven't even had my computer on it 4 days that is how busy we have all been. I am also sorry to hear about Johnathan's blisters. I am keeping him lifted up in prayers till I hear more!!!!! How are you doing????!!!! I know how you feel, yes when it rains it pours...but too is true about blessings!!!
Will be keeping you all in our prayers.
Love & Blessings,
Kelly

*~* Marshall and Amelia's Place*~* <the5bens@charter.net>
COVINGTON, LA - Thursday, March 9, 2006 6:44 PM CST
Ann~ I'm so sorry Johnathan is having to deal with so much. I'm just sorry. It's discouraging and scary all of these 'unknowns' that go along with transplanted kids. Ty's still dealing with facial rashes and various aches and pains. It's frustrating, but after just returning from a funeral for one of 'our FA kids', I'm just so thankful (as I know you are) to have my son here and doing as well as he is. Hang in there. HE is indeed enough. Hugs.
Karen and Ty (www.caringbridge.org/fl/ty) <magrathkc@cfl.rr.com>
Melbourne, FL US - Thursday, March 9, 2006 12:09 AM CST
Sorry you guys are having such a lousy and stressful week. We continue to pray for Johnathan and are having faith that all goes well with the testing on Friday!
Love and hugs,


Diane and family <dwidmer@wi.rr.com>
Racine, WI USA - Thursday, March 9, 2006 6:40 AM CST
Will be saying some extra prayer's for Johnathan's Endoscopy test, praying that everything is good.
Sending lot's of prayer's your way.++++++++++++++++++++++++
God be with you.

Love LaKota and her mom Debbie.


http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Sunday, March 5, 2006 3:35 PM CST




The Prayer Bears Website

Glad you have recovered! Hope and pray for good news on the scope!
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn , VA - Wednesday, March 1, 2006 11:15 AM CST
Hi everyone,
I'm glad your surgery went well, Ann. That nausea post-surgery is NO fun at all. I'm glad it passed quickly enough and that the surgery took care of what it was supposed to! That's concerning about the ins. co. refusing the growth hormones. I wonder if I'm going to run up against the same with Bailey's? She's on the MCHA, of course, because we maxed out on the last one. Have an uneventful week, and heal. I hope Johnathan's doctors visits go well for both the GVH (NO!) and the wart removal. Rosie, a friend of ours (link is on our page) has had warts post-transplant, so that's interesting to know. We will be keeping you in our prayers, as always. God Bless!
::The Amazing Bailey Grace!::

Terri and Bailey <terrip@terri4design.truepath.com>
Ramsey, MN usa - Monday, February 27, 2006 1:50 PM CST
Ann,
Praying that you are feeling much better, sorry to hear that you had surgery.
Praying that everything will go good with Johnathan's hormone shots.
God be with you.

Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Sunday, February 26, 2006 4:02 PM CST
John and Ann,
It's the man. Your husband and dad. Just dropping in on the website. I really am proud of you both. Thank God because of your hard work has brought you safe this far.

Love,

Nate Eckstadt

Nate Eckstadt <neckstadt@sbcglobal.net>
Oak Creek, WI USA - Sunday, February 26, 2006 1:27 PM CST
Happy Valentine's day!
Just letting you know that your in our prayer's, hope that you have a great Valentine's day.
It's suppose to start getting bitter cold here by Thursday, BRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR.
God Be With You.

Love LaKota and her mom Debbie

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Monday, February 13, 2006 11:55 AM CST
Hi guys! What great news Ann that the cost came down! God sure does take care of His people! Hope that Johnathan is feeling better soon! Take care and stay warm!
the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Tuesday, February 7, 2006 0:41 AM CST
just stopping in to say Hi and see how were things going....Glad to here that you only have to pay 150 a month. I was saying a prayer for that one!!! Everyone here is getting sick too...most of it here is allergies. We had shorts on Friday and tomorrow we need to get the heavy coats out the weather he is REALLY crazy!!! Well Have to run just wanted to let you know I was thinking of you all.
Hugs and Blessings
Love,
Kelly Bennett

~Marshall and Amelia~ <the5bens@charter.net>
COVINGTON, LA - Monday, February 6, 2006 8:44 PM CST
Hello Ann, hello Johnathan,
Ann I wanted to thank you for the very beautiful and encouraging message that you left in my guestbook this past week. Thank you so much.

I am so pleased to hear that Johnathan is going well and doing so many "boy" things. The Lord is faithful and is with us through everything. He never leaves us. Bless you and I pray your week continues to go well.
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Wednesday, January 25, 2006 2:29 AM CST
Just stopping in to say a quick hi and say a special prayer for all of you and hope that the ear infection clear up and go away. Marshall had that a lot and had to have tubes put in and since then we have not had any problems!! Hope all of you are all doing well....I think of ya'll all the time. Sending hugs and Blessings your way.
Love...
Kelly Bennett

~Marshall and Amelia~ <the5bens@charter.net>
Covington, Louisiana - Thursday, January 19, 2006 8:48 PM CST
Hello Eckstadt Family!

Haven't written for quite some time, but have been checking in on and continually praying for Johanathan and your family . God is so good and so attentive to His children, isn't He?!? Such a loving and caring Shephard! Thank you for being such beautiful people of God --truly you shine the light of Jesus with each praise you bring!

I stand in AWE and REJOICE with you over the many beautifully asked and answered prayers! Love to each of you!

Nadine :)

Nadine Gorniak <mgorniak2@wi.rr.com>
- Wednesday, January 18, 2006 8:30 PM CST
Praying that Johnathan is feeling better, and is able to go back to school.
We think about you guys all the time.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Thursday, January 12, 2006 7:47 PM CST
Thinking of you guys and hoping that you have a great 2006. Hope Johnathan soon feels better. You are all in our thoughts and prayers always.
Darlene (www.caringbridge.org/ut/jordanbrunson) <brunsondj@frontiernet.net>
Delta, Utah - Tuesday, January 10, 2006 10:08 PM CST
Image hosted by Photobucket.com
The Prayer Bears Website

Blessings and Bear Hugs

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn , VA - Tuesday, January 10, 2006 1:40 PM CST
Just wanted to stop in and wish you all a very Happy HEALTHY New Year!!! Praying and thinking of you all often!
Hugs and Blessings,
Kelly

Tyren, Marshall, Amelia and Nathan Bennett

~Marshall and Amelia~ <the5bens@charter.net>
Covington, Louisiana - Sunday, January 1, 2006 9:40 AM CST
HAPPY NEW YEARS Eckstadt clan!! Praying for 2006 to be a blessed year for you all!
Congratulations to Johnathan on your great counts!
God is good all the time and all the time He is good!!
Love and hugs,

the Widmers <dwidmer@wi.rr.com>
Racine, WI usa - Saturday, December 31, 2005 1:34 PM CST
Johnnathan

Keep up the great work on your counts. Brian is doing his best to catch up, but you are racing ahead so fast it is tough to keep up! We are really glad you had a nice Christmas.

The Kuells <pelicannsb@aol.com>
- Friday, December 30, 2005 9:26 PM CST
Merry Christmas Ann and Johnnathan,
glad you are feeling better and it sounds beautiful to have a white Christmas! It sounds like a dream since here in Aussie we don't have white winters at all!
Love ya heaps and God bless,
Charisse
(FA Adult)
www3.cairngbridge.com/oceania/charisse

Charisse Howard-Jones/The prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Tuesday, December 27, 2005 5:24 AM CST
MERRY CHRISTMAS guys! Hope your day is blessed!
Love, the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Sunday, December 25, 2005 7:27 AM CST
Have a very Bless Holiday.
God be with you!
Image hosted by Photobucket.com

Love LaKota and her mom Debbie.
~*~LaKota~*~

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Friday, December 23, 2005 10:16 PM CST


Hi there Johnathan, we are dropping in now as we are going to be really busy in the week up to christmas just to wish you a merry christmas and a happy new year

Take care

Jo Hannah and Rebecca

Jo <yarnall@blueyonder.co.uk>
England, UK - Monday, December 19, 2005 6:40 PM CST
Just stopping in to say hi and to wish you all a very very Merry Christmas!!! Have a great weekend. You are all in our prayers.
Love,
Kelly Bennett

*~* Marshall and Amelia's Place*~* <the5bens@charter.net>
Covington, Louisiana - Friday, December 16, 2005 9:04 PM CST
Wishing you all a very Bless Christmas.
We have lots of snow here in Minnesota, the snow looks so pretty when it falls from the sky.
Hope that you have a wonderful Christmas.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Friday, December 16, 2005 10:40 AM CST
Image hosted by Photobucket.com Beary Christmas!
The Prayer Bears Website
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn , Va - Friday, December 9, 2005 7:58 AM CST
Hi Johnathan this is Ben. Wanted to say hi and see how you are doing. Talk to you later.
BEN WASSON <was9810@aol.com>
WEST SALEM, OHIO U.S.A. - Tuesday, December 6, 2005 9:04 AM CST
Hi Guys,
I hope that Johnathan is getting over that cold of his. I think that we are finally finished with it for a while...Or at least I hope so. Well just wanted to stop in and say Hello.
Take care and Blessings.....
Kelly Bennett

~Marshall and Amelia~ <the5bens@charter.net>
Covington, Louisiana - Monday, December 5, 2005 8:37 PM CST
Hello All,
so the cold did develop in to a proper cold. That is no good. It can be so frustrating when you are sick.
How exciting that you are decorating your house for Christmas. Just this past week my husband and I have put lights up on our house and our Christmas tree looks so pretty in the window! Oh, how I love Christmas!

Well, will look forward to hearing that all is well again and I pray that the doctor's appointments all go well. It is late here and I need to go off to bed. I will check up on you guys again soon.
Lots of love,
Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Thursday, December 1, 2005 5:27 AM CST
Hi Guys,
I just wanted to stop in and say hello and let you know that we are thinking about you....I hope that you had a great Thanksgiving, hope you got to relax and enjoy the good food. We were in the Smokey Mountains. My mom and dad rented a cabin and invited us along. It was so nice and so much fun we even got to see Chris and Amanda Smith (angel Cole and Cade's Mom and dad).
Well I sure hope that Johnathan gets over the sniffels soon...it seems to be going around our house a lot too!
Hugs and Blessings to all,
Kelly Bennett

~Marshall and Amelia~ <the5bens@charter.net>
Covington, La - Sunday, November 27, 2005 11:43 AM CST
Hello Ann, Johnathan,
bless you guys. Sorry to hear that Johnathan has been unwell. Hope you all "miss" out on whatever is going around and have a blessed thanksgiving and weekend. We don't have that holiday here in Australia. Happy Thanksgiving anyway!!!! That is a real shame that he missed out on signing up for the basket ball....he must be really disappointed. He looks great in the photos! What a handsome guy!
Bless you and love you,
Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears <c.hjones@bigpond.com>
Adelaide, SA Australia - Thursday, November 24, 2005 2:14 AM CST
Happy Thanksgiving to you all.
Love and hugs,

Widmer family <dwidmer@wi.rr.com>
Racine, WI USA - Wednesday, November 23, 2005 9:40 PM CST


Hi Johnathan

just dropped by to see how you are doing

sorry to hear about the cold, we hope it has cleared up now and that you enjoy Thanksgiving
sending you our warmest wishes

Jo Hannah and Rebecca

Jo <yarnall@blueyonder.co.uk>
England, UK - Wednesday, November 23, 2005 5:32 PM CST
So glad that you are updating again. We are so glad that Johnathan is doing so well. These kids are stronger kids for all that they have to go through in their life. Have a Happy Holiday season.
Darlene (www.caringbridge.org/ut/jordanbrunson <brunsondj@frontiernet.net>
Delta, Utah - Monday, November 21, 2005 7:45 PM CST
HAVE A HAPPY


AND BLESSED THANKSGIVING,GOD BE WITH YOU.



Sending lots of prayers your way+++++++++++++++++++++++

Love LaKota and her mom Debbie.
~*~LaKota~*~

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Monday, November 21, 2005 5:50 PM CST
We are so glad to see you "back"! We missed you and although Johnathan remains in our prayers every night we still like to pull up his page and see how WELL he is doing! Good job on the grades Johnathan and Cody! I hope Nathan begins to feel better soon. That bronchitis stuff can be hard to clear out sometimes and I know how icky it can make him feel. Tell Nathan to start drinking green tea and help boost his immune system. I had chronic bronchtis for YEARS and once I started green tea daily and my high anti-oxidant vitamins I never get it anymore! I swear by the stuff. Anyway, have a BLESSED Thanksgiving. What a wonderful year to celebrate recovery and healing (for ALL of you!). Johnathan, you STILL rock, mister. God BLess!
::The Amazing Bailey Grace!::

Terri and Bailey Peterson <terri@pureblueswim.com>
Ramsey, MN usa - Sunday, November 20, 2005 8:54 AM CST
Awesome that the boys are doing so well in school. I hope they picked out something FUN at the store! Great to hear Johnathan may be playing basketball. I know he must be beyond thrilled at that prospect. I'm so glad you're back to updating :)
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Saturday, November 19, 2005 8:12 PM CST
God ALWAYS makes a way...look at that Johnathan, you will be part of a basketball team afterall! We will pray for Nates healing! Have a great weekend!
Love and hugs, the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Saturday, November 19, 2005 7:07 AM CST
Sorry Johnathan that you did not make the team but as your Mom said, you have accomplished SO many other great things this past year that you should be very proud of yourself! Hang in there buddy, your future looks so bright!!
Wishing you the best always!
hugs and prayers,

the Widmers <dwidmer@wi.rr.com>
Racine, WI usa - Wednesday, November 16, 2005 8:26 PM CST
Image hosted by Photobucket.com
The Prayer Bears Website

Great news! Thankful you are continuing! Submit this to the PBs too!
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn , Va - Tuesday, November 15, 2005 11:23 AM CST
Just stop by to say Hi. I am so gald that you are still updating!! Well just wanted to say hi and let you know that I was thinking about you today.....

Blessings,
Kelly
PS my e-mail address didn't change like I thought it would...

~Marshall and Amelia~ <the5bens@charter.net>
Covington, Louisiana - Monday, November 14, 2005 8:42 PM CST
Ann, So great that you're back to updating :) I'm so happy to read how well Johnathan is doing. He looks so handsome in the homecoming photos...too cute!! Hugs.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Sunday, November 13, 2005 9:45 PM CST
So glad Ann that you started up Johnathans page again. Now you guys are only a couple (computer) clicks away! It is so wonderful to hear how faithful God has been to your family!
Love, hugs and prayers continually,

the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Saturday, November 12, 2005 2:52 PM CST

HAPPY HALLOWEEN!!!!!



Hope that you have a great time on Halloween.
Your always in our prayers, Sending lots of prayers your way.+++++++++++++++++++++++++++++++++++++++++++++++++
Wow, Tuesday will be November 1st, than Thanksgiving will be here, than Christmas, I'm not looking forward to the cold weather, don't mind the snow, but it's the cold weather I can do with out.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Sunday, October 30, 2005 7:04 PM CST
Ann and Nate~ Just checking in. I know you said you wouldn't be posting, but I can't quit checking... afraid I'll miss something :) Hope you're all ok and hope Johnathan is still doing great. You all remain in our daily prayers.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Sunday, October 23, 2005 9:03 PM CDT
Just checking on you.
Want you to know you are in our thoughts and prayers.
Bret & Nanette Foster and Family
(Ryan, Nicolaus, Courtney, Kaelynn and Dianna)
www.caringbridge.org/tx/dianna

Nanette Foster <nfoster@fbclewisville.org>
Lewisville, TX USA - Tuesday, October 11, 2005 10:14 AM CDT
Glad that things are going good for you.
Hope that your having a good time in school.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Tuesday, October 4, 2005 10:54 PM CDT
hey man whut up??? havent signed this in a while. your doing great, and its awesome seeing you in school.
just wanted to try and keep up

keep up the good work!

Robert Weis and Family

Robert Weis <weisguys@wi.rr.com>
Oak Creek, WI U.S.A - Friday, September 30, 2005 6:22 PM CDT
Ann,
Thank you for keeping the journal for Johnathan so that we knew that he was doing good.
You guys will always be in our prayer's, Please keep in touch.
God be with you.

love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
ST.Cloud, MN - Sunday, September 25, 2005 8:13 PM CDT
Ann~ I'm surely gonna miss your updates on life in the Eckstadt household (and the pictures, too!). So glad things are going so well for Johnathan, though. Hope to meet you at Camp Sunshine next year :) Hugs. ~Karen
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Sunday, September 25, 2005 7:11 PM CDT
Ann -
You would not believe how you touched my heart by your thanks in your latest entry! I should be thanking you for the example that you have been through all of this for all of us!
Although we will miss Johnathans updates, we will keep in touch in person to find out how he is. God has kept you all so close to His heart throughtout this whole journey and I truly believe that Johnathan has a great purpose on this earth! We will continue lifting up Johnathans name daily in prayer too! Our prayers wouldn't "feel" the same if we didn't!!
You are an amazing woman and I am thankful and proud to call you my friend!
Love and hugs (prayers too) -

Diane <dwidmer@wi.rr.com>
Racine, WI USA - Friday, September 23, 2005 1:48 PM CDT
Image hosted by Photobucket.com
The Prayer Bears


Ann, you can always go to a monthly post or anytime you need to just journal! I have really enjoyed your posts and your great attitude! You all have inspired me and I want thank you for allowing us to follow your brave son's journey. We will continue the prayers and any time you have a prayer request, just send it to me and I'll post it on the Prayer Bears. Keep smiling and praying,
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, Va - Friday, September 23, 2005 9:54 AM CDT
Hello,
Hope that school is going great.
Can't believe October is just around the corner, boy that sure went fast, way too fast.
Always in our prayers.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Thursday, September 15, 2005 6:47 PM CDT
Jon,

How is High School going? Was hoping you would stop by during open house. Its unbelievable its already over a year since your BMT. Remember there are lots of people that are pulling for you. God is good.

Linda Lewis
- Thursday, September 15, 2005 8:34 AM CDT
Thanks for the update Ann. Sorry we missed eachother on Sunday!
So glad to hear what God has been up to in Johnathans life..making him stronger! Continuing to pray for Johnathan daily!
Hugs and prayers,
Diane, Paul, Jake and Sarah

the Widmers
Racine, WI USA - Tuesday, September 13, 2005 9:17 PM CDT
Hello all

We are all glad to hear that Johnathan is feeling great. It is such an inspiration for those of us following in your wake. Everything is going along fine here thanks to your helpful advice.

We look forward to seeing you again.

Bill, Carol & Brian

Bill <Pelicannsb@aol.com>
- Tuesday, September 13, 2005 9:24 AM CDT
Image hosted by Photobucket.com

Hi there

wow seems like everyone is starting school including us in the UK and we sent a picture of Hannah on her first day at school

sending you our warmest wishes

Jo Hannah and Rebecca

Jo <yarnall@blueyonder.co.uk>
England, UK - Sunday, September 11, 2005 4:58 PM CDT
Ann, So sorry to read you and Nate have been sick. Sounds like the boys are doing great, though. Ty's writing his thank-you note to you today. You were so sweet to him! We couldn't have asked for more beautiful weather in NYC this Labor Day weekend. My husband and girls were up (only the second time I've seen my girls in the 3 months Ty and I have been here). We had a great time together. Hope your Labor Day weekend was superb!
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Monday, September 5, 2005 1:56 PM CDT
Hi Ann

I am so glad to hear that things are going good for Jonathan and your family. We can't wait until Jordan and our family are back to "normalcy". We are trying real hard to be patient. My oldest son "Brayden" also started high school this year. He has been talking for about a year now about driving, he is now 15 and it is getting closer. I hate the thoughts of it. Thanks for your continued prayers for Jordan and our family. We pray for you guys as well. Take Care.

Darlene Brunson

Darlene (www.caringbridge.org/ut/jordanbrunson) <brunsondj@frontiernet.net>
Delta, Utah - Friday, September 2, 2005 6:46 PM CDT
Hi all,
Hope the boys had a great first day of school! Jake has been back since Monday and is still adjusting :o) Where did the summer go?
Glad to hear you had such a great time in the Dells. And a big WOOHOO that Johnathans counts have remained strong. God sure is awesome isn't He?
Hope you guys have a fun, safe and healthy Labor Day weekend.
Continually in our thoughts and prayers,

Diane, Paul, Jake and Sarah
Racine, WI USA - Thursday, September 1, 2005 10:50 PM CDT
Johnathan,

Hello from Ohio! We are so excited to hear that you were able to go off the CSA medication. That's awesome news. It's so exciting that you are starting high school. We pray this will be a great year! You have come so far since last year when you had the BMT. We are continuing to pray for you and are praying for complete recovery.

We all miss you and love you very much!

Take care, and have a great year at school.

Love,

Uncle Anthony, Auntie Donna, Abigail, Molly and Robert Trapani

Jer. 29:11

Trapani's
Mt. Gilead, OH 43338 - Wednesday, August 31, 2005 7:19 AM CDT
Hey,
Thats where we stayed Monday night, wow, I can't believe that, I wish I knew that you were going to be their too, we could of met up, it would of been nice to see you guys,we had a fun time their.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Thursday, August 25, 2005 11:43 AM CDT
Hi Guys just stopping in to say hi, Hope that things are going great. I loved the pictures of your recent trip to Minneapolis. We are getting ready to start school again here. First we are going to FA camp next week. Well just wanted you to know that we are thinking about you all and keeping you in our daily prayers.....
Love Hugs and Blessings,
Kelly Bennett

~Marshall and Amelia~ <the5bens@charter.net >
Covington, Louisiana - Friday, August 5, 2005 4:34 PM CDT


Hi Johnathan

Its great that 12months have passed since your transplant,your anniversary was on Hannah's birthday so big celebrations all round

We love the new photos and its great to hear that you have made some new friends

We have sent you our latest vacation photo of the girls on the beach, i think they ate more sand than played with it though!!!

Take care

sending you our warmest wishes

Jo Hannah and Rebecca

Jo <yarnall@blueyonder.co.uk>
England, UK - Wednesday, August 3, 2005 4:11 AM CDT
Image hosted by Photobucket.com
The Prayer Bears

Great news and great photos!
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, Va - Tuesday, August 2, 2005 11:56 AM CDT
I am so glad to hear the great news from Minnesota. I know that you and your family are too....Wow I still can't believe it had been a year!!! and here we are approaching two. I will continue to keep you and Johnathan in our daily prayers. I am glad too that every one in home safe and sound.

Love & Blessings,
Kelly Bennett

~Marshall and Amelia~ <the5bens@charter.net>
Covington , Louisiana - Monday, July 25, 2005 5:38 PM CDT
Woo Hoo, great news about Johnathan. We are so very thankful that the trip yielded such good reports! God is good all the time and all the time He is good!

So glad to hear that you guys are home safe and sound. Stay cool and enjoy the day! God bless,

the Widmers
Racine, WI USA - Sunday, July 24, 2005 8:03 AM CDT
Wow, Ann, I know you must be in seventh Heaven with all the good news from MN!! We are so excited for Johnathan and your entire family. Thanks for the quick update :)
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Saturday, July 23, 2005 9:25 PM CDT
Congratulations on the Good news of your trip to MN!!! God is very GOOD!! Keep on keeping on!
Love and prayers,
Darlene Flemming

Darlene Flemming <dflemming@iphouse.com>
Maplewood, MN USA - Saturday, July 23, 2005 8:04 PM CDT
Hope your trip home was safe, easy and uneventful. Looking forward to an update on your 1 year post placement visit to MN when you're rested and caught up on things at home :) HUGS Ann.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Friday, July 22, 2005 9:42 PM CDT
It was so good to meet you Ann and Johnathan. Thanks for stopping by and bringing the gifts. Johnathan thanks for coming in to say HI to Jordan. I am thinking that was his turning point that day. After you guys left he had a completely different attitude. Thanks so much. We will be praying for good results from your biopsy.
Darlene and Jordan (www.caringbridge.org/ut/jordanbrunson) <brunsondj@frontiernet.net>
Delta, UT - Friday, July 22, 2005 3:16 PM CDT
Just stopping by to see how the trip to Minnesota was. Praying for the best results ever!!! I hope that you all had a very enjoyable trip. I continue to think of both of you daily and keep you both close to my heart in prayer daily. God has blessed us both!!!

Love, Hugs and Blessings,
Kelly Bennett
Marshall 12(22 months post BMT) Amelia 5 (FA-g) and Nathan 2 Non-FA

*~* Marshall and Amelia's Place*~* <the5bens@charter.net>
Covington, Louisiana - Friday, July 22, 2005 9:14 AM CDT
Image hosted by Photobucket.com
The Prayer Bears

Praying for good results on the bone marrow aspiration. One year! Wow! God is so good.
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, Va - Wednesday, July 20, 2005 7:23 AM CDT
Just thinking of ya'll... hope things are going well in Minnesota. It must be exhausting (worrying, driving, waiting for results). We're continuing to hold Johnathan and you up in prayer. Hugs Ann.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Monday, July 18, 2005 5:20 AM CDT
Just checking in and hoping you will have a very successful one year anniversary appointment! We are so proud of all the strides you have made in your recovery!

Have fun in Minnesota--you'll have to come out our way sometime!
Love and many prayers!
Kristi, Greg and Sean

Zimnys <zim4@charter.net>
Glenwood, MN USA - Sunday, July 17, 2005 3:12 PM CDT
Praying for a safe trip to Minnesota followed by great news as to Johnathans health and progress. We will continue to hold you all up in prayer! Good luck and God bless,

the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Sunday, July 17, 2005 7:35 AM CDT
Ann

I sent you an email but I am not sure if you got it or not. I hope that we can get together while you are here. Our hospital number is 612-273-0231, please call and we will try and work something out. Thank you for all your thoughts and prayers, we appreciate it so much.

Darlene and Jordan (www.caringbridge.org/ut/jordanbrunson) <brunsondj@frontiernet.net>
Delta, Utah - Saturday, July 16, 2005 10:59 AM CDT
Ann, Safe trip and very best wishes as you head to Minnesota Monday. We're saying extra prayers for Johnathan these days, hoping his diarrhea problem is improving and that it wasn't the GVHD. Looking forward to updates when you return. Hugs.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Friday, July 15, 2005 6:45 AM CDT
Hi Ann,
I remember when Marshall was about a year out of transplant (maybe a little after too) But Marshall had a lot of problem with diarrhea a lot. And not to be gross but it was a green color....we had did stool samples and nothing was showing up at all. I even asked Dr. Wagner is this was a common thing that happened after transplant..??...It lasted for quite some time. I am very happy to say that it has sine cleared up and we haven't had that problem in quite a while, I was wondering if it was the stomach trying to get use to all the change that it went through? Still not sure what it was but it was hard on Marshall... there were a few times he didn't make it to the bathroom..it just hit him so fast. Well I am sure that is more than you wnated to know ;o) What we go through as a mom...
I am and always will keep praying for Johnathan and your whole family.
Have a safe trip and I will pray for all the results to be great!!!!!!

Love & Blessings,

Kelly Bennett

Marshall 12 (22 months post BMT) Amelia 5 FA-g and Nathan 2 Non-FA

*~* Marshall and Amelia's Place*~* <the5bens@charter.net>
Covington, La - Thursday, July 14, 2005 11:31 AM CDT
I sure hope whatever is bothering his stomach heals soon and he can feel back to normal. We'll be thinking about you and praying that things go well and that they can help him feel better.

Love,
Teresa

www.caringbridge.com/or/emmarose <teresabelle@gmail.com>
Aloha, OR USA - Wednesday, July 13, 2005 10:32 PM CDT
Just want to let you know that we are thinking about you guys.
Hope that you have a great summer.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@Hotmail.com>
St.Cloud, MN - Sunday, July 10, 2005 6:33 PM CDT
Congratulations Johnathan!!! Happy 1st re-birthday!!! Glad you got all your favorite things on your special day....and even more glad you are doing so AWESOME!!!!! Your progress is an answer to a lot of prayers.

Enjoy your summer!
Hugs,
The Ross Family
www.caringbridge.com/ca/karlyross

Nancy Ross <ross4family@cox.net>
Santee, CA - Saturday, July 9, 2005 11:49 PM CDT
Hi Ann and Johnathan!

Congratulations John! Wish we were there to celebrate with you...especially with that stone cold cake...it sounds great! You are such an inspiration to reach this point in your transplant. You know best how much hard work, time and perseverance it takes to achieve this and you must be so proud. Your family, I know, feels pride in your achievement. Congratulations!

We loved hearing from you, Ann! The border wasn't bad to hang, I actually had help from the kids to measure and hang it. It was the first time I had attempted it too.

Our schedule this month is a neuro-psych testing day on the 15th. It's only a one day deal for 3 hours. The next visit with the transplant unit will be our 1 year appointment on the 25th. They haven't sent us a letter yet about how they are scheduling things for that appointment. It would be so nice to see you guys. Wish our schedules would be better!

Where are the two teens from on 4A? We have a couple of games we could send to them or stop to give to the nurses for them when we go to clinic. I wish them well and better days!

So good to hear from you guys. Hope you find time to enjoy the summer weather/days. We hit the 90's today. It really feels like summer finally.

Love to all of you,
Andrea and Adam

andrea <andrea_bedard_@hotmail.com>
crosby, mn - Saturday, July 9, 2005 5:27 PM CDT
Sounds like the weekend was a blast. SO happy to read how well Johnathan is doing. Love all the new pictures :) HAPPY TRANSPLANT DAY ANNIVERSARY!!
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Friday, July 8, 2005 6:33 PM CDT
CONGRATULATIONS on your one year anniversary! We are so happy for you! You have come so far in this past year.
God IS good all the time and all the time He IS good!!
Continuing to hold you up in prayer!!

Love, the Widmers <dwidmer@wi.rr.om>
RAcine, WI USA - Friday, July 8, 2005 8:08 AM CDT
CONGRATs on the ONE year mark!!! I am so happy for all of you it is such a great feeling and guess what it only keeps getting better and better!!! I think of you all daily and am keeping you in my daily prayers.
Love and Hugs to all,
Kelly Bennett

*~* Marshall and Amelia's Place*~* <the5bens@charter.net>
Covington, Louisiana - Thursday, July 7, 2005 8:36 PM CDT



Hi Jonathoan

Glad to hear that you had a great 4th July, although I wouldnt fancy going in that dunk tank

We are praying for some good results for you with your test and that you have a safe journey. ( I can't believe your car got hit by a deer!! )


sending you all our love

Jo Hannahand Rebecca

Jo <yarnall@blueyonder.co.uk>
England, UK - Tuesday, July 5, 2005 6:20 PM CDT
Love the new pictures and love those counts!!! Our God is an awesome God! I'm glad you're getting some relief with your coughing and related issues. Now to clear up that nasty GVH. We're praying for complete healing soon in that area, too, Johnathan. Thank you for the new posting and the new pictures, Ann. Johnathan, you look awesome! God Bless you always!
::The Amazing Bailey Grace!::

Terri and Bailey <terri@stribmail.com >
Ramsey, MN usa - Monday, June 27, 2005 8:02 PM CDT
Ann, Great new photos! Thanks for taking the time to post them. Looks like Father's Day was nice for everyone. And again, you look like a million bucks!! Happy to read the sinus stuff is on the mend finally. Now if only that darned GVHD would go away. We still check on you daily and continue to hold John up in prayer as he continues to regain his health. Hugs.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Sunday, June 26, 2005 9:20 PM CDT
Hi Ann!

Just checking in on you guys. Wow 7:30 arrival to school is really early...I don't envy Johnathan that type of schedule. Adam would have a hard time with that too. We are hopeful he can get better about the morning hours before his fall classes start at college.

I'm cleaning house like a maniac this week. In some ways it seems silly to be organizing things instead of enjoying some a leisure summer days, but I am happy for the motivation of Bill's cousin coming...as long as I'm on a roll I'll keep going till she gets here.

Just wanted to say hi and let you know I am thinking about you. Take care.
Andrea

andrea <andrea_bedard_@hotmail.com>
crosby, mn - Saturday, June 25, 2005 11:36 PM CDT
Hi Ann,
Just stopping by to let you know that I am thinking and still prying for you and Johnathan. I hope that he is haveing a great summer and hope that soon he will be a "normal" kid again!!! Can you believe that it has almost been a year? Sometimes you wonder where the time went and other times you wonder when it is ever going to get here.
Well we are all excited about going to Camp Sunshine this year, we haven't been since it was held in Wisconsin (lake Geneva) I think Amelia was only a year old the last time we went so we are looking forward to it....it is the closest thing to a vacation that we get ;o).
Well have to run but please know that you are alway's in my thoughts and prayers....

Love, Hugs and Blessings,
Kelly Bennett

*~* Marshall and Amelia's Place*~* <the5bens@charter.net>
Covington, Louisiana - Saturday, June 25, 2005 10:31 AM CDT
Hi guys,
Just checking in to say hello. Hope that summer school is going well for the boys. Hopefully it is air conditioned with this heat outside :o)
Keeping you all in our prayers,

the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Friday, June 24, 2005 2:18 PM CDT
Ann, So happy to read things are going well. I hope John's pain is long gone by now. Happy Summer!!
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Tuesday, June 21, 2005 5:17 AM CDT
Hello,
Hope that you are feeling better.
Sending lot's of prayer's your way.+++++++++++++++++++
LaKota is getting excited about summer school, she just love's being around people.
Wish our weather here would warm up more than what it is, we have been getting lot's of rain here, could rain at night time and be dry during the day time.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@Hotmail.com>
St.Cloud, MN - Wednesday, June 15, 2005 7:21 PM CDT
Hi Ann and Johnathan!

One year already! It is so hard to believe for us too! Johnathan was 7-6 and Adam was 7-28. I don't know if you met the Kelly family from South Dakota, their son Nick was 8-11. The boys are all having different experiences and yet many steps seem to imitate each other.

I am so happy for you Johnathan, for graduating with your class. It's really hard work to keep up with everyone. I was especially pleased to read how the school recognized you for your efforts. What a great encouragement for you to have their support. Good going!

We visit the University on Monday. Adam is off his CSA doses now. He does have skin rashes from the adjustment, but so far the tricimalone(?) cream is handling it. We will be seeing Dr Orchard this visit. We don't know when they will have us return in July. They are scheduling the 1 year biopsy and the removal of the port at the same time, hopefully that will fall in the month of July.

We are all finished with graduation obligations. Adam's openhouse was last weekend. It downpoured rain the whole day but we were lucky to have it hosted by Bill's brother and wife who have a huge addition on their home and everyone could fit inside during the storm. That's the way it goes sometimes! We still had a great time together. I maybe already said, but, it was a combination party for 3 cousin graduates. For us, it was all about having family together and Adam loved it! The next summer 'to-do' will be the 4th of July. We always have a big family party and go to the local parade and fire works celebrations. This year a cousin from New Hampshire is visiting with her 6 year old daughter. She was a tremendous support to us during our stay at Ronalds and it will be a first time for my meeting her. She is Bill's cousin and he hasn't seen her for 18 years either. It will be motivating me to get this house in order before then...do you ever let that go too? When we lived at Ronalds for those 6 months I never came home and although Bill did his best, it shifted our home into a 'bachelors pad'. I still have not entirely re-claimed my space so I have a lot to do before the 4th!!!

We are enjoying sunny weather today and I guess for a few days in a row. It has been such a wet spring here that is especially uplifting to have the sun shining.

Our best to you and your family. You remain in our prayers, daily.

Love,
Andrea

andrea <andrea_bedard_@hotmail.com>
crosby, mn - Wednesday, June 15, 2005 3:36 PM CDT
Congratulations on your graduation and Academic Achievement Award, Johnathan!!! Wow, you totally rock, mister! Good luck with the derm app't and your ONE YEAR post transplant followup with Dr. M! You are an amazing young man and we're all really proud of you!
::The Amazing Bailey Grace!::

Terri and Bailey <terri@stribmail.com >
Ramsey, MN usa - Wednesday, June 15, 2005 7:49 AM CDT
What a wonderful poem. It is true for everyone. I am sorry to hear about Johnathan's GVHD coming back, I will be saying some extra prayers just for him for the next few days. I know how you feel...you just want to scream enough is enough. But I know that Jonathan is a true champion survivor....and I know that he has you to thank for that. I know that things will get better and back to "normal". We, I have to say, are finally there, at least for the moment. I know that things can change quickly but for now we will live in the moment.
Take care and I do and will continue to keep you all in our prayers.
Blessings,
Kelly Bennett

~Marshall and Amelia~ <the5bens@charter.net >
Covington , Louisiana - Tuesday, June 14, 2005 10:26 PM CDT
Ann, Love the poem. Thanks for sharing that. How awesome that Johnathan graduated and will be moving up to high school with his friends. We're all so proud of him!!
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Monday, June 13, 2005 3:13 PM CDT
CONGRATULATIONS Johnathan on your 8th grade graduation. What a testimony you have! God is good ALL the time and ALL the time He is good!
Sorry Ann that our plans to get together keep getting postponed. We will make it happen very soon! :o)
Continuing to pray for Johnathan that he gets through this rough patch soon and is restored to health!! God bless.
Love and hugs,

Diane, Paul, Jake and Sarah <dwidmer@wi.rr.com>
Racine, WI USA - Sunday, June 12, 2005 7:47 AM CDT
Johnathan -

I'm so bummed you are having difficulties again...but keep your chin up and this too shall pass. I just know some day soon you'll be 100% healthy and GVHD free!! We keep you in our prayers daily. You're an awesome young man!!

God Bless,
The Ross Family
www.caringbridge.com/ca/karlyross

Nancy Ross <ross4family@cox.net>
- Saturday, June 11, 2005 10:56 PM CDT
That is so frustrating that he is still dealing with those problems. I hope it clears up soon and that he feels better. You'll all be in our prayers. Keep being strong!!

Love,
Teresa

www.caringbridge.com/or/emmarose <teresabelle@gmail.com>
Aloha, OR USA - Saturday, June 11, 2005 3:02 PM CDT
Ann, Hoping and praying that the docs can figure out what Johnathan's pain is... (or better yet, that the pain is GONE by now!). Hope they can get that cough cleared up and get John feeling back to his 'old self' soon. Hugs.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Thursday, June 9, 2005 2:58 PM CDT
Image hosted by Photobucket.com
The Prayer Bears

Ann, I saw this and thought of you immediately! I know you wouldn't ever forget this anyway. Praying for relief soon!
Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, Va - Thursday, June 9, 2005 8:36 AM CDT
I sure hope Johnathan's doctor can figure this one out, and pray it's not the shingles rearing its ugly head again! Good luck at clinic today - we'll be thinking of you and praying.
::The Amazing Bailey Grace!::

Terri & Bailey <terri@stribmail.com >
Ramsey, MN usa - Thursday, June 9, 2005 6:56 AM CDT
Sorry to hear Johnathan's been under the weather lately. Hopefully he'll be back to his 'old self' very soon. Hi to him and big hugs to you. The worrying never ends, does it? Then again, I guess it never would even without the FA... just goes along with being a mom.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Wednesday, June 8, 2005 6:40 PM CDT
That is so wonderful and such a blessing from the Lord that Johnathan is doing so well! It's always so encouraging to see transplants go as smoothly as his. I hope he continues to grow stronger each day.

Love,
Teresa

www.caringbridge.com/or/emmarose <teresabelle@gmail.com>
Aloha, OR USA - Saturday, June 4, 2005 4:38 AM CDT
So glad to hear that counts are so strong, and things are going well!
Dianne Ploetz

Dianne Ploetz <dianneploetz@aol.com>
St. Paul, MN - Tuesday, May 31, 2005 3:53 PM CDT
Hi Ann and Johnathan!

It's wonderful to read the positive news. So happy for your progress, John! Wanted you to know we keep you in our thoughts and pray for your continued success.

Back to work tomorrow after the rainy weekend. It was still nice to have the extra day at home for our whole family. Bill actually went out fishing most days between the rainfall. If there's a will, there's a way!

Keep working away at those studies Johnathan...at least with the early hours you have the afternoon off. Adam is still finishing an English course but everything else is done. He has been busy going to many open houses for his classmates the last couple weeks. His is coming up in two more weeks, then we will be done for the summer. Yahoo!

Are they talking about John's port coming out anytime soon? Just curious, since the boys are so close in transplant days.

Take care,
Andrea

andrea <andrea_bedard_@hotmail.com>
crosby, mn - Monday, May 30, 2005 10:54 PM CDT
Hi Ann,
Great to hear that Johnathan's counts are doing great!!
I am so glad that summer is here, I do like the kids going to school...I tend to get a lot more done, than with them being home. But I and the kids need a break to just play!! Although Marshall thinks we are supose to be up and going somewhere everyday. I am just pryaing that the beging of the school year he finds that friend. Well gotta run but wanted to say a quick HELLO. I think of you all often and sstop in every day to check and of course You all are in my daily prayers!!
Love Hugs and BLESSINGS,
Kelly Bennett

~Marshall and Amelia~ <the5bens@charter.net >
Covington , Louisiana - Saturday, May 28, 2005 8:37 PM CDT
hello jonathon....
seems like things are moving uphill for you-seems as if the counts seem to be well also...i found you at lukes page-and came by to see another WI warrior. i am fighting a stinky bug right now-just started a new chemo today..been fighting it since april-04--keep on keeping...


"Yellow wakes me up in the morning. Yellow gets me on the bike everyday. Yellow has taught me the true meaning of sacrifice. Yellow makes me suffer. Yellow is the reason Im here."~ Lance Armstrong
L~I~V~E~S~T~R~O~N~N~G

-a warrior-chris--


~Chris~ ( Wisconsin Angels/WI Friends of Allie) <clownfish_53@yahoo.com>
Appleton,WI, - Friday, May 27, 2005 7:29 PM CDT
So happy to read that Johnathan is doing so well. And how cool is that that ya'll got to be on the radio!! Thanks for the update Ann. We check on ya'll everyday.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Friday, May 27, 2005 12:55 AM CDT
Awesome news! Well, other than the summer school, I guess! But the early bird gets the worm, you know, Johnathan. Stay strong and start planning your most awesome summer ever! God Bless!
::The Amazing Bailey Grace!::

Terri & Bailey <terri@stribmail.com >
Ramsey, MN usa - Friday, May 27, 2005 11:30 AM CDT
Wow! Platelets 245K!!! How I'd love to have those counts for Nicholas!!! Stay blessed!
Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, Va - Friday, May 27, 2005 11:12 AM CDT
What a great report. We rejoice with you!!
Keeping you all in our prayers....
Love and hugs,

the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Thursday, May 26, 2005 10:47 PM CDT
Ann, Glad to hear things are going well with Johnathan. Hope you continue to see great improvements. We will be leaving on Saturday. I will let you know when we get settled. Thank you for your prayers and support.
Darlene

www.caringbridge.org/ut/jordanbrunson <brunsondj@frontiernet.net>
Delta, Utah USA - Thursday, May 26, 2005 9:09 PM CDT
I am so glad things are going so well for Johnathan and I hope that sinus stuff goes away sooner than later.
We continue to pray for you guys all the time!
Love,
Kristi and Brennan

Zimnys <zim4@charter.net>
Glenwood, MN USA - Thursday, May 26, 2005 9:33 AM CDT
Just stopping by to let you know that we are praying for you.
Have a fun Memorial weekend!
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@Hotmail.com>
St.Cloud, MN - Wednesday, May 25, 2005 8:01 PM CDT
Ann, What a fun and BUSY weekend ya'll had. So glad Johnathan got to just be a kid and hang with friends, B-balling and swimming. What a blast!
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Monday, May 23, 2005 5:23 PM CDT
Hey Johnathan,
Just checking in to see how things are going for you. Very happy to hear you got to go swimming (something I never miss :) ) But, I am sure it meant the world to you because you haven't been able to swim for so long. We will keep praying for your sinuses to clear up and hopefully it's not allergies on top of it!

Once in awhile I'll write; daily I'll pray for you! Enjoy the rest of the week and have an awesome summer.

Celebrating all that God has healed you from and brought you through!

Love in HIS beautiful name,

Nadine <><

Nadine <mgorniak2@wi.rr.com>
- Monday, May 23, 2005 2:09 PM CDT
Hi Ann and Johnathan,

Ann, the pictures are great! You and John both look so good and that Cody is a doll! Is John's hair thicker now too? I do hope his sinus problems clear up. It is miserable to have that pressure and pain in the face.

Thank you for sending the beautiful card and book mark. It was nice of you to do and it was funny, because it came almost to the day of my birthday. I thought, "How did she know?" You're tricky, Ann!

Our family has been out fishing the last week or so. We actually went out the day of my birthday and ate super on the tailgate of the truck. It was a night of beautiful evening weather and we had lots of fun. We have been fishing from the shore without the bugs...I'm sure it won't be much longer and we'll have to change to different surroundings as we've seen mosquitos starting to come out. The cold weather has delayed them this year. That's one good thing about cold weather!

We're off to the University tomorrow morning. We have an 11:00 appointment so we don't have to leave until around 8:00. Adam is going to follow up on his sinuses too. With all the activities he's been participating in he picked up some kind of bug. Coughing and congestion stuff. It's hard to avoid!

It's late already, I still have to get ready for bed...take care. I'll have to tell you about today's worship service for the graduates at a later time...It was really special! Take care!

Andrea

andrea bedard <andrea_bedard_@hotmail.com>
crosby, mn - Sunday, May 22, 2005 11:31 PM CDT
just wanted to
stop by and
say hello

sending you lots of love

Craig, Lauren, and Helen

CRAIGGY

helen <trula1@comcast.net>
- Sunday, May 22, 2005 8:31 AM CDT
Hi Guys,
Just wanted to stop in ans say Hello and let you know that I am thinking of you. Say some extra special prayers for all of you. Hoping that Johnathan's sinus' get to feeling better soon also praying for him as you all taper off of the CSA.
I think about you all so often.
Love and Blessings,
Kelly Bennett

~Marshall and Amelia~ <the5bens@charter.net >
Covington, Louisiana - Saturday, May 21, 2005 10:22 PM CDT
Found your page from another and wanted to stop by and say hello. Sounds like things are going well. Have a great weekend. Enjoy the weather sounds like it is going to be great.(at least down here)
caringbridge.org/wi/garrettstarr1

Melissa and Garrett Starr <mgatlin@centurytel.net>
Shullsburg, WI - Thursday, May 19, 2005 4:16 PM CDT
I'm glad to hear that things are going good. Hope Johnathan continues to improve each day and that you won't have to have surgery. We will keep Johnathan and your family in our prayers.
Darlene Brunson <darlene@m.millard.k12.ut.us>
Delta, UT USA - Thursday, May 19, 2005 10:10 AM CDT
Ann, I'm happy to read you got some answers from the ENT. Just wondering, are they treating the current infection (antibiotics)?? Is that going to be the treatment of choice until you see if the sinus problem clears on its own? Hope Johnathan is feeling even better today.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Thursday, May 19, 2005 4:31 AM CDT
We're so glad to hear Johnathan's clinic app't went so well! Now to clear up those sinuses! I don't know about you, but we're ready to start building an ark over here in MN! Good grief! When is the rain gonna end? I actually took a trip over to WI yesterday because my OB moved his offices over there (and I'm NOT changing doctors! He could have moved to Illinois and i'd have told the kids to pack their bags!) and for heavens sake, it was raining all day there, too! I can still look at these dreary, dark, rainy days though and see nothing but sunshine and thank God for each and every one of them. I think our kids' journeys give us the ability to do that forever and ever. Have a great week - and Johnathan, you totally ROCK, mister! God Bless!
::The Amazing Bailey Grace!::

Terri Peterson and family <terri@stribmail.com >
Ramsey, MN usa - Wednesday, May 18, 2005 6:35 AM CDT
Hope you get some answers at the ENT today. Thinking of ya'll.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Tuesday, May 17, 2005 6:32 AM CDT
It's great to read that you are back at school and doing well.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Tuesday, May 17, 2005 0:50 AM CDT
It is good to hear that things are going well. I am sorry that I have been so bad at getting back to you. We think of all of you often. We have to return back to MN at the end of June for Ben's anniversary visit. It is hard to belive that it has been almost a year already. Take care and tell everyone we say hi. I miss you and our talks.
Becky Wasson <was9810@aol.com>
West Salem , OH USA - Sunday, May 15, 2005 9:39 PM CDT
we wanted to come
by to wish you a
happy weekend....

sending you lots of love

Craig, Lauren, and Helen

CRAIGGY

helen <trula1@comcast.net>
- Saturday, May 14, 2005 8:06 AM CDT
Love the Mother's Day pictures, Ann. Sorry Johnathan is dealing with more sinus trouble. Glad he's handling things like such a trooper still :) It must be so hard to watch... {{{hugs}}}
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Thursday, May 12, 2005 7:09 PM CDT
Beautiful pictures ! Kids sure are a blessing from God aren't they?! So happy to hear that you had a nice Mothers Day. We continue to pray for Johnathan daily and hope that his sinus problem clears up quickly.
Love and hugs to you all!
Love,

the Widmers
Racine, WI USa - Thursday, May 12, 2005 2:46 PM CDT
Hi Ann, Nathan, Johnathan and Cody,
I love the new pictures! You have a couple of very handsome boys and it's great to hear how much they love and support each other. Going through all this trauma and the years preceeding it can be so tough on sibling relationships. Johnathan, we're so glad to hear that you're in school all day every day and playing basketball and getting your groove back! Our God is an awesome God! Continued blessings on all of you - you are always in our prayers. Have a GREAT week (maybe the weather will start cooperating!)
::The Amazing Bailey Grace!::

Terri Peterson and family <terri@stribmail.com >
Ramsey, MN usa - Thursday, May 12, 2005 6:49 AM CDT
Ann, Beautiful Mother's Day pictures! Thanks for sharing :)
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Wednesday, May 11, 2005 7:39 AM CDT
Happy Mother's Day!!!

Love,
Teresa

www.caringbridge.com/or/emmarose <teresabelle@gmail.com>
Aloha, OR USA - Monday, May 9, 2005 2:21 AM CDT
Ann ~ Stopping by to wish you the Happiest Mother's Day yet. I know you're counting your blessings :) {{{hugs}}}
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Saturday, May 7, 2005 6:33 PM CDT
Ann, Hope the doctors can address the sinusitis quickly and hope John is back to feeling well SOON! At least now you know what you're dealing with. We continue to hold your entire family up in prayer as you face each new 'little' thing on this long road to recovery. One day at a time. {{{{hugs}}}}}

Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Saturday, May 7, 2005 8:51 AM CDT
Hi Guys. Sorry to hear about the "bug" going through your house. Hopefully you will be better soon. We will keep Johnathan in our prayers in regards to his sinuses.
Hope you have a wonderful Mothers Day! God bless,
Love and hugs,

the Widmers
Racine, WI USA - Saturday, May 7, 2005 6:41 AM CDT
Hi Ann,
I am sending up special prayers for Johnathan for those sinuses to get better real soon. I also wanted to wish you a very special HAPPY MOTHER's DAY. I hope you enjoy your day!!!! Take care sending lots of love, hugs and Blessings your way!!
Love,
Kelly Bennett

*~* Marshall and Amelia's Place*~* <the5bens@charter.net >
Covington, Louisiana - Friday, May 6, 2005 10:46 PM CDT
Hi Ann! Sending you wishes for a wonderful mother's day! So sorry to read about the bug at your house...rest, rest, rest!! I check in to read about you guys quite often, but haven't had an opportunity to leave a message lately. I am leaving the house again, shortly, but wanted you to know I am thinking of you and wishing you and Johnathan many blessings. Maybe with warmer weather some of these bugs will get lost and there will be less to worry over for our boys and our families. Take care and give our best to Johnathan. Love, Andrea and Adam
Andrea <andrea_bedard_@hotmail.com>
Crosby, MN - Friday, May 6, 2005 5:49 PM CDT
Hey guys...just stopping in to say "hi" and hope all continues to go well. I think of you often and check the site every day. Bren is starting his taper, so I am uneasy about any "pinking up" he does...alwasy something to worry about, isn't there!
Have a wonderful weekend and Ann, I hope you have a very "Happy Mother's Day!"
Kristi, Brennan, Sean and Greg

Zimny Family <zim4@charter.net>
Glenwood, MN USA - Thursday, May 5, 2005 8:00 PM CDT
Just stopping in to tell you all hello and let you know that I am praying for you all. I am praying that all the scans come out well. I am glad that you had a great time in Mexico. I would love to go....
Well just wanted to stop and let you know that I was and am praying for and thinking about you.

Love and Blessings,

Kelly Bennett
Marshall 12(20 months post bmt) Amelia (awaiting BMT) Nathan Non FA

~Marshall and Amelia~ <the5bens@charter.net >
Covington, Louisiana - Wednesday, May 4, 2005 10:18 PM CDT
Praying that the scans will be good and that Johnathans cold goes away.
So glad that you had a great trip.
Always in our prayers.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@Hotmail.com>
St.Cloud, MN - Tuesday, May 3, 2005 12:27 AM CDT
Hi Ann & Johnathan,
Here's to clear scans/MRIs today of your sinuses! Hopefully it is just the same crud that is floating around that we're all getting. I'm glad John is back in school and life is returning to normal. With the warmer temps coming this week you'll be out and about more and hopefully that will help purge this out of your system faster. I'm glad you had a great time on your trip, Ann. Thanks for posting the pics on the website last week. It made me feel like i was right there looking off the balcony! Take good care and God Bless!
::The Amazing Bailey Grace!::

Terri Peterson and family <terri@stribmail.com >
Ramsey, MN usa - Tuesday, May 3, 2005 6:49 AM CDT
Ann ~ That picture of the two of you in Mexico is beautiful...and you look all of about 22 years old! I'm so glad you were able to get away and have such a good time. The kids' grandparents ROCK! Looking forward to hearing the results of John's testing. Praying it's all good news.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Friday, April 29, 2005 6:23 AM CDT
Hi Ann,
I am so glad to hear that you had a great trip, and that all went well at home while you were gone. I am sorry to hear about Johnathan's bad hair cut. Marshall talked me into coloring the top of his blande, I was reluctant, but I figured if it made him happy and if not it would eventually grow out. It isn't that bad looking, he likes it and that is all that counts.
I am gald that all of Johnathan's counts are still great and I will be praying for all of the scans to come back fine.
Keeping all of you in my daily prayers!
Love and Blessings,

Kelly Bennett
Marshall,Amelia and Nathan

~Marshall and Amelia~ <the5bens@charter.net >
Covington , Louisiana - Thursday, April 28, 2005 7:33 AM CDT
Oh, John... so sorry to read about the bad hair cut! I myself have had my fair share of bad hair styles... I've always had super curly hair. The longer I keep it, the heavier my hair is, "weighing it dow" so it's not so... well, POOFY. Well, when I was about 14 my brilliant hairstylist thought it would be helpful to get a perm to 'relax' the curls I had (mine are very kinky... and that was before all the hair straightening and frizz-reducing products on the market... so I had the hair of a wild banshee, basically). Well, wouldn't you know that perm pulled the length of my hair from mid-way down my back totally up above my shoulders, and I honestly looked like an anstronaut with that big bubble head thing going on. It wasn't pretty. And it wasn't pretty for about SEVEN long months!! Thank goodness for flat irons now. Well, hope my story made you smile. I can laugh about it now (just like my parents told me oh so many years ago!)
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Thursday, April 28, 2005 6:25 AM CDT
I am glad to hear that you had a great trip - aside some of the disappointments. I'm sure it was nice to get away for a little r&r. We pray for Jonathan's continued health and strength. Take Care.
Darlene Brunson, Jordan's (FA) mom <darlene@m.millard.k12.ut.us>
Delta, Utah USA - Tuesday, April 26, 2005 5:59 PM CDT
I'm glad you had a great and relaxing time (other than the trip back!) and that Johnathan is doing great! It's all up from here! You have great parents, what a blessing! I'm thinking about taking the kids to Mexico on spring break next year, so I'll be watching my stuff very closely! Take care and God Bless.
::The Amazing Bailey Grace!::

Terri Peterson and family <terri@stribmail.com >
Ramsey, MN usa - Tuesday, April 26, 2005 7:05 AM CDT
Ann, So happy you and Nathan had such a good trip. The missing camcorder is awful, though! We're glad you're back and that Johnathan is doing well.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Monday, April 25, 2005 6:23 PM CDT
That's wonderful that things are turning back to normal! That'll be so exciting for you to have a little getaway. I understand you're fear of flying! I'm sure everything will be jsut fine. I hope Johnathan's legs stop hurting someday!!

Love,
Teresa

www.caringbridge.com/or/emmarose <teresabelle@gmail.com>
Aloha, OR USA - Sunday, April 24, 2005 7:32 PM CDT
Just want you to know that your in our prayers.
Sending lots of prayers your way.+++++++++++++++++++++
Love LaKota and her mom Debbie.
~*~LaKota~*~



http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@Hotmail.com>
St.Cloud, MN - Tuesday, April 19, 2005 8:48 PM CDT
Ann and Nathan...
Have a great trip...relax...not too much shopping Ann...
Don't worry about a thing. The boys are going to be angels.
Just pray that Dad and I get all the med's right, schedules for school, homework, appointments etc. My head is spinning! ...anyway, we'll do fine.

Prayers for a safe trip.
Much love, Mom

Lois Tamel
Waterford, Wi U.S - Friday, April 15, 2005 2:45 PM CDT
I can't believe it's already been nine months - and at the same time it seems like it's been much longer. That's frustrating that his feet are still causing him pain. I hope that you two have a wonderful time!!!! You'll have to let us know how it goes.

God Bless!
Teresa

www.caringbridge.com/or/emmarose <teresabelle@gmail.com>
ALoha, OR USA - Friday, April 15, 2005 11:57 AM CDT
Dear Ann and Nathan~ I can't think of two people more deserving of this time away for renewal, refreshing, and re-acquainting. We hope you're able to relax and really enjoy this time together. Looking forward to reading it was the time of your lives! :) Glad to read Johnathan is back in school... I know he must be loving that!
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Friday, April 15, 2005 6:11 AM CDT
Ann, everything will be fine :o) You guys SO deserve this trip. We will pray for a safe journey and a wonderful time for you and Nate :o) Have a wonderful time!

Love, Diane <dwidmer@wi.rr.com>
Racine, WI USA - Thursday, April 14, 2005 4:06 PM CDT
WE are so glad things are going well for you guys!
We think and pray for you often.
Have a good rest of the week!
Love, Kristi, Brennan, GReg and sean

The Zimny Family <zim4@charter.net>
Glenwood, MN USA - Tuesday, April 12, 2005 6:07 PM CDT
Happy Birthday, Johnathan! Hope you had a memorable 15th!

Ann, thank you so much for sending me the envelope of gifts. I was so surprised! I love the magnet! You were so sweet to send me these beautiful gifts...I have been wanting to write for some time to tell you I was pleased that you liked your box. I never expected you would be sending something back my way! Thank you, I will always treasure them.

We have been so busy lately with me going back to my part-time job and Adam going to prom tonight. The last couple weeks have just flown by. Adam is doing well, he is so excited about prom and seeing his friends. We are posting pictures on his site tonight. Grand March went well and hopefully the night of dinner and dancing will be successful too. (He's nervous about the dinner/food part because of the nausea...) His date is a doll of a gal. We are so extreemly happy for him tonight that I could burst from all the joy in my heart.

Hope Johnathan's birthday was special too. We're so pleased that school is going well for him and he's able to participate in things.

Take care and know that you both are always being thought about in our prayers...and with a smile when we read the singing magnet message.

Love, Andrea

andrea bedard <andrea_bedard_@hotmail.com>
crosby, mn - Saturday, April 9, 2005 9:28 PM CDT
Happy Birthday Johnathan!!!

We hope you had a wonderful 15th birthday!! Your birthday is one day after Jayden's transplant birthday--April 7th. We celebrated ALOT!!! You have to celebrate ALOT TOO!!! Happy Birthday, we're thinking about you. Take care!!

LeJon Carreon <jlmayoral@earthlink.net>
Littleton, CO 80227 - Saturday, April 9, 2005 7:46 PM CDT
HAPPY 15th BIRTHDAY JOHN.


Sending lots of prayers your way.+++++++++++++++++++++++
Love LaKota and her mom Debbie.

http;//www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
ST.CLOUD, MN - Saturday, April 9, 2005 6:51 PM CDT
Happy belated Birthday Johnathan!!! I am so happy to see that things are going good for Johnathan and that he is able to tolerate school and I am so happy that his pain is going away. i am sure that you too are just thrilled at the progress that he is making!! Hope to hear that the eosinophills are way way down!! Sending you lots of hugs love and blessings your way.
Love,
Kelly Bennett
~~Marshall and Amelia's Place~~

Kelly Bennett, Marshall 11yo ~almost 12~ (19 months post BMT for Fanconi Anemia), Amelia 4 yo almost 5 (awaiting transplant for FA) and Nathan 20 mo NON FA. <the5bens@charter.net >
Covington , Louisiana - Saturday, April 9, 2005 10:07 AM CDT
HAPPY 15th BIRTHDAY JOHNATHAN!!! YOU ROCK!!!!

Love,
Karly
www.caringbridge.com/ca/karlyross

Karly Ross <ross4family@cox.net>
- Friday, April 8, 2005 8:45 PM CDT
Happy Birthday to youuuuuuuu. Happy Birthday to youuuuuuuu. Happy Birthday dear Johnathannnnnnnnn. Happy Birthday to youuuuuuuuuu. (You are SO lucky you can't hear me singing right now!) Hope it was the best birthday YET! We are so proud of you, John! You are just the brightest light at the end of the long FA journey we're about to embark upon with our 11-y-o. You ROCK!
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Friday, April 8, 2005 6:48 PM CDT
Happy Birthday!!! Wow, 15! You will get your permit for driving soon, I bet! Bren is looking forward to that. WE are so happy that you are getting back to all the things that teenage boys should be doing. We pray for you so often! Keep up the good work and know that yu are a true inspiration for our family and Brennan. Happy 15th!
Love and Blessings,
The Zimny Family
Brennan-almost 6 months post transplant(on 4-14)


The Zimnys <zim4@charter.net>
Glenwood, MN USA - Friday, April 8, 2005 5:37 PM CDT
Okay, we came back to wish you a Happy 15th on the official day :o) Happy Birthday buddy. May God continue to bless you :o) Love and hugs,
Paul, Diane, Jake and Sarah Widmer <dwidmer@wi.rr.com>
Racine, WI USA - Friday, April 8, 2005 4:03 PM CDT
HAPPY (early) BIRTHDAY Johnathan. Hope you have an awesome day! God bless!
the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Thursday, April 7, 2005 8:56 PM CDT
Hi,

I am so glad to hear that John is being so active, and playing basketball. Just in time for spring!

The vacation sounds fantastic and a wonderful opportunity to recharge.

You are in my thoughts and prayers. Dianne

Dianne Ploetz <dianneploetz@aol.com>
St. P aul, MN - Wednesday, April 6, 2005 3:12 PM CDT
Wonderful, wonderful news Ann. Of course, we're excited to read how well John is doing but just as excited to read that you and Nathan will get away for awhile, too. It'll do great good for you to be able to 'refill' your cup... so that you can continue to be strong for Johnathan and your whole family. Thanks for sharing all the news.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Wednesday, April 6, 2005 5:51 AM CDT
Hi Ann
What great news all the way around!!! I am so galad to see that Johnathan is no longer in as much pain and that all his counts still look good. I also hope that you are able to have a great relaxing time on your trip. Praying daily for you and all of your family and for Johnathan to just keep on going and going!!!
With lots of hugs and love,
Blessings,
Kelly
Marshall and Amelia

Kelly Bennett, Marshall 11yo (18 months post BMT for Fanconi Anemia), Amelia 4 yo almost 5 (awaiting transplant for FA) and Nathan 20 mo NON FA. <the5bens@charter.net >
Covington, Louisiana - Tuesday, April 5, 2005 9:38 PM CDT
What excellent news about everything! Glad that Johnathan's feet aren't hurting as bad. That is so exciting that you won a trip. You deserve a break so that you can come back refreshed. I imagine you'll be missing your children a lot and worrying about them. You're their mother, I don't know how you could help but think and worry about them! Glad that they will be left in such capable hands. You'll have to let us know how it goes. God Bless!!

Love,
Teresa

www.caringbridge.com/or/emmarose <teresabelle@gmail.com>
Aloha, OR USA - Tuesday, April 5, 2005 5:37 PM CDT
Awesome news!! Go, go, Johnathan. And congratulations on winning the trip - sounds like just what the doctor ordered for YOU and Nathan. Johnathan, you remain in our prayers always!
::The Amazing Bailey Grace!::

Terri Peterson and family <terri@stribmail.com >
Ramsey, MN usa - Tuesday, April 5, 2005 7:17 AM CDT
Congratulations on the good news regarding Johnathan and congrats on your vacation. The two of you deserve it. We hope that you have a wonderful time :o)
Love and hugs,

the Widmers
Racine, WI USA - Monday, April 4, 2005 6:43 PM CDT
HAPPY BIRTHDAY JOHNATHON! IT WAS GREAT SEEING YOU RIDE AROUND ON YOUR BIKE DURING EASTER VACATION! ENJOY YOUR SPECIAL DAY. JEREMY DIDN'T CALL AS HE WAS GETTING OVER BEING SICK AND DIDN'T WANT TO TAKE ANY CHANCES AND PASS IT ON. SEE YOU AROUND AGAIN SOON.
Mary Jo Byrd and Jeremy Schull and Family <mrstwtybyrd@aol.com>
Oak Creek, Wi usa - Monday, April 4, 2005 9:02 AM CDT
Hello Ann and Johnathan,

Thank you both for your continued prayers for our little Jayden. This week as you well know will be a hectic one waiting for all of the test results. Thank you for helping us pray that he is still cancer free and on his way to being cured from leukemia. Johnathan, hang in there!! We will be praying for your symptoms of GVHD to subside (we know firsthand they are not fun!!) and for you to start feeling better soon. Take care and God Bless you both!!

Love,
LeJon, Jay and Jayden

LeJon Mayoral <jlmayoral@earthlink.net>
Littleton, CO 80127 - Sunday, April 3, 2005 12:49 AM CDT
Hi guys!
Just checking in on Johnathan. Glad to hear that he will resume going to classes very soon. Hard to believe another school year is drawing to an end! You continue to be in our thoughts and prayers daily.
Love and hugs to you all!

the Widmers
Racine, WI USA - Friday, April 1, 2005 11:28 PM CST
You are all in my prayers. Hang in there. Hope you are enjoying the spring weather!
Dianne

Dianne Ploetz <dianneploetz@aol.com>
St. Paul, MN - Wednesday, March 30, 2005 10:43 AM CST
Hi guys.. we are praying that the GVHD and rashes go away soon! We are also wishing you a very very blessed Easter!
Take care and keep up the good work!
Kris, Bren ,Sean and Greg

The Zimnys <zim4@charter.net>
Glenwood, MN USA - Saturday, March 26, 2005 4:12 PM CST
Dear Johnathan & Family - First of all, thank you Ann for sending me your new website address. I'm sorry I havn't written - we are having our own family crises with my Mom. She had a spinal fusion on Jan 3rd and is not doing well at all. She is in tremendous pain daily, so I can understand what Johnathan is going through. No matter what our circumstances are, we can be rest assured that Jesus is there and knows what we are going through. This Easter season is a reminder of the pain He endured for our sake. I will continue to pray for all of you. I am amazed at the strength your entire family exhibits daily. You have truly learned to trust in Him and to hold fast to his promises. Keep the faith and know that He is at the helm. The Bevers Family
Diane Bevers <dbevers@wi.rr.com>
Racine, WI USA - Saturday, March 26, 2005 4:03 PM CST
Hello Johnathan and Family,
Just checking in to see how you are doing. I often check, but I don't write as often as I'd like. Please know we are continually praying for you and your family as you continue on in the battle.
We will pray for a healing of the possible GVHD and an alleviation of the pain in your knees and the other painful ailments. You are constantly on my mind and always in my prayers...each of you.
I am so happy to hear you may be able to go back to school part-time. I know you would miss your friends. Hang in there Johnathan; the angels and the MOST HIGH GOD are on your side! :)
Love to you in HIS BEAUTIFUL NAME,
Nadine <><

Nadine <mgorniak2@wi.rr.com>
- Saturday, March 26, 2005 2:37 PM CST
Just wanted to stop in and say that we are thinking of you today and wanting to wish everyone a very happy and Blessed Easter. Hope to see continued improvemnet!!!!
Hugs and Blessings,
The Bennett's
Kelly, Tyren, Marshall (18 months post MUB BMT)Amelia (awaiting BMT)Nathan (non-FA)

Kelly Bennett and Family <the5bens@charter.net >
Covington , Louisiana - Saturday, March 26, 2005 1:23 PM CST
That's wonderful that his counts are staying stable. I hope they can figure out what is causing him problems - and hope it's nothing too serious! You've been through enough already!! We'll keep you in our prayers.

God Bless,
Teresa

www.caringbridge.com/or/emmarose <teresabelle@gmail.com>
Aloha, OR USA - Wednesday, March 23, 2005 2:41 AM CST
Wow! Great counts guys!!! We are jealous! I am praying that your tests will all have goodresults. We are anxiously awaiting Brennan's test results as well. It seems we are always on pins and needles about something, doesn't it! I will keep you in our prayers, especially at this Easter time...I will be playing church services all week, so I will have loads of time to reflect!
Love to your whole family! and thanks for all you support and prayers, we all truly appreciate it!
Kristi and BRen(5 1/2 months post transplant)

Zimnys <zim4@charter.net>
Glenwood, MN USA - Tuesday, March 22, 2005 8:36 PM CST
Ann, So happy to read that the prelims on the colonoscopy have come back negative so far. I know John must be ecstatic that he can return (half-days) to school after Spring Break. Is the peripheral neuropathy totally gone or is he still having difficulty with that?? Please know we continue to check on and pray for ya'll every day. {{{hugs}}}
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL US - Tuesday, March 22, 2005 6:39 PM CST
Just checking back to see if you journaled the results from yesterday Ann. Still praying that everything went well and the results are nothing but good news! Have a great weekend.
Love and hugs,

the Widmers
Racine, WI USA - Saturday, March 19, 2005 7:13 AM CST
We're thinking of you today, Johnathan, and praying for a good outcome on your endo/colonoscopy. And hoping the week wasn't too rough on you preparing for it!!! God Bless!
::The Amazing Bailey Grace!::

Terri Peterson and family <terri@stribmail.com >
Ramsey, MN usa - Friday, March 18, 2005 9:15 AM CST
Good luck today Johnathan! We pray that everything goes well for you today! We will be thinking of, and praying for you. God bless buddy.
the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Friday, March 18, 2005 6:29 AM CST
Wishing you well tomorrow - we will be thinking of you
Darlene Brunson Jordan's (FA) mom <darlene@m.millard.k12.ut.us>
Delta, Utah USA - Thursday, March 17, 2005 4:01 PM CST
We are praying that everything goes smoothly for Johnathan tomorrow. "Good luck".

Love and hugs,

the Widmers <dwidmer@wi.rr.com>
Racine, WI USA - Thursday, March 17, 2005 6:20 AM CST
We hope that everything goes fine and they can figure out what's wrong and fix it easily. You'll be in our thoughts and prayers;-)

Love,
Teresa

www.caringbridge.com/or/emmarose <teresabelle@gmail.com>
Aloha, OR USA - Wednesday, March 16, 2005 11:10 PM CST
Hello Ann & John,
Sending lots of prayers for you++++++++++++++
Praying that everything will go good on Friday.
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@Hotmail.com>
St.Cloud, MN - Wednesday, March 16, 2005 1:00 PM CST
Hi Johnathan and Ann,
We're praying for a quick and easy procedure and for it to shed light on your stomach issues so the doctors can get you back on course to fix it. Take good care and God Bless. You have many, many people who care and are praying you through to better days ahead!
::The Amazing Bailey Grace!::

Terri Peterson and family <terri@stribmail.com >
Ramsey, MN usa - Wednesday, March 16, 2005 6:33 AM CST
Dear Johnathan and Ann,
Thanks for the messages and prayers! We are sending our care and concern for you too. Hope you find the answers to all the latest issues. It seems there is always something, right?! Can't be much fun to be within running range of the bathroom for John. Sure hope it will clear up soon.

We go in Monday to check kidney function. We have had an elevated creatinine that is being watched. Still on TPN at night too, but it does help flush the kidneys having those additional fluids nightly.

Our teacher strike continues...Aaron has missed 4 weeks of school now. Adam is just starting to feel up to tackling some school work again, so I sure hope they find common grounds for a settlement soon. We have been considering home schooling for the boys if it continues much longer. They are getting substitute teachers in, who cross the picket line, but one grade level at a time and their focus started with elementary kids (which it should). This next week they are hoping to reinstate the junior and senior classes. Adam is continuing his course work on an independent study basis, so we'll just forge ahead with his studies this week.

Take care, and good luck with your clinics this week.

Andrea


andrea bedard <andrea_bedard_@hotmail.com>
crosby, mn - Sunday, March 13, 2005 8:32 PM CST
Hope you're all feeling well today - I've been checking in, but just today saw the photos page - Abby recognized both of your nurses...he does the best job on blood draws! We're so glad your counts are up - keep your spirits high!
Kim & Abby (3, FA - caringbridge.org/mn/abbywilliams)

Kim Williams <kimberly.williams@direcway.com>
Isanti, MN - Sunday, March 13, 2005 8:11 PM CST
Hi guys--Bren is in Mpls for tests this week, too. Hopefully for only one day then he and Greg will be home tomorrow.
Your counts look AWESOME!!! Bren would kill to have platelets in the triple digits again.
We are always praying for you and I made sure to light a candle for you at church this morning.
Hang in there and we hope your tummy is feeling better, I am sure Ann, it is frustrating! You hang in there, too!
God's love and blessings to you all!
have a safe trip!\
Love,
Kristi, Bren, Sean and Greg
(5 months post transplant tomorrow!!! YEH!)

Zimnys <zim4@charter.net>
Glenwood, MN USA - Sunday, March 13, 2005 7:51 PM CST
Checking in on you, John. I wondered about that rash the past few weeks. It sounds like your system is doing just what it needs to do, though, as ornery as it has been acting! And it sounds like your doctors are staying right on top of things. Your counts are awesome, so that is sure wonderful news. Our God is an awesome God!
::The Amazing Bailey Grace!::

Terri Peterson and family <terri@stribmail.com >
Ramsey, MN usa - Saturday, March 12, 2005 10:51 AM CST
8 monthes later thats awsome good job for the people around him
Aaaaarg Gephph <gephph@cox.net >
Phoenix, Az USA - Friday, March 11, 2005 11:18 PM CST
Hi Johnathan,
I wanted to let you know that everyone here at East misses you and we're looking forward to your coming back to school after Spring Break! You're in my thoughts and prayers. You're a super kid with a lot of courage to face the complications you've had. Everyone's really proud of you for your sense of determination. I know at least two of my STAR kids nominated you for Citizen of the Month last month based on your courage and positive attitude. You take care of yourself and we'll see you in a few weeks!

Ann Duquaine

Ann Duquaine <adbeag@aol.com>
Milwaukee, WI USA - Thursday, March 10, 2005 9:56 AM CST
Hi guys,
Just checking in to see how Johnathan and the rest of the family are doing! We are praying for Spring in our household too - the motto here is "no more snow" :o)
Continuing to pray for Johnathans complete healing and for him to get over this hurdle that he's been facing down over the past couple weeks. Praising God that his counts are remaining strong!
God is good all the time and all the time God is good!
Much love, hugs and prayers from our family to yours!

Diane, Paul, Jake and Sarah
Racine, WI USA - Wednesday, March 9, 2005 10:12 PM CST

The Prayer Bears

Prayers for "Bye Bye Virus! and Bye Bye GVHD!"
Bear Hugs as you heal,


Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, Va - Wednesday, March 9, 2005 11:17 AM CST
Hi Jon,
the groups are finishing up their videoes this week I plan to post them. I'll send you the address when I get that done. That should give you more than a few good laughs. I wish you could've been here to film, you group really could have used your help. Such goof balls. Looking forward to having you back after break. Take care.

Miss L. <l.lewis@oakcreek.k12.wi.is>
- Tuesday, March 8, 2005 1:47 PM CST
Hi-

Yes, Jonathan has come so far in the last 8 months. He has strength and determination! My son, Brendon is also 8 months post transplant and he is still dealing with very low blood counts.

You remain in our thoughts and prayers.
Patty McAllister

Patty McAllister <pattymca@charter.net>
La Crescent, MN USA - Monday, March 7, 2005 8:29 PM CST
Hi Ann and Johnathan,
I'm going to hang that same saying on my wall you received from Andrea! That just about sums it all up, doesn't it? I'm very glad to hear John's pain has subsided. We pray the cream takes care of the fungal infection on his skin (and it will!!) and his GVH stays well under control. His counts are nothing short of amazing, so you can feel very blessed with that continued great news! John remains in our prayers every morning and night (and a few times during the day, too!)
::The Amazing Bailey Grace!::

Terri Peterson and family <terri@stribmail.com >
Ramsey, MN usa - Monday, March 7, 2005 6:38 AM CST
Hey, Just wanted to checkin and see how you are doing. I am sorry that you are having such a hard time right now I Pray that your weekend and next week will be 100% better. Rememeber GOD will give you the strength to handle everything right now. JESUS loves you,Monica
Monica Martin <monie48m@lycos.com>
Livingston, Louisiana USA - Friday, March 4, 2005 9:41 PM CST
Johnathan & Ann -

Your faith despite the difficulties is inspiring - and can only come from the Holy Spirit giving you strength!! What would we do without the Lord? We can do ALL things through Christ our Lord who strengthens us!!!

We keep you in our prayers daily and sure hope things get much better for Johnathan SOON!! I want to hear about him back at school and playing like a normal teen!!

Wishing you all the best,
The Ross Family
Kyle 14 (non-FA), Karly 9 +2 years BMT
www.caringbridge.com/ca/karlyross

Nancy Ross <ross4family@cox.net>
Santee, CA - Friday, March 4, 2005 1:52 PM CST
Dear Ann and Johnathan,
Thank you for sending us the messages of encouragement. Sounds like you are seeing some positive progress for John and that makes us happy too. There are so many things to keep track of and manage. You are doing such an excellent job, Ann, just hang in there. A friend sent us the following message which hangs on my kitchen cupboard door. I see it when I reach for my morning coffee cup and it reads, "Good Morning! This is God, I will be handling all of your problems today. I will not need your help. So, relax and have a great day." When I write it to you, I realize we are a team with Him, we have to "help" support (our families) and carry (keep track of things) and humanly act out(focus, follow Dr.s orders) His plan on earth, but He does have the ultimate control and it's reasuring to know we can count on Him to direct the larger picture.

Thinking of you today, and everyday in prayer.

Andrea

andrea & adam-post day 219 <andrea_bedard_@hotmail.com>
crosby-the striking district, mn - Friday, March 4, 2005 9:25 AM CST
Just wanted to stop and say that I am thinking of you and say an extra special prayer for you tonight. I know as a mom just what you are feeling inside. Here is a very special saying that my grandmother had hanging on her wall for years and as a teenager I use to tell her it sounded so dumb and made no since....Well it is now hanging on my wall and makes more since to me today than I ever could have imanged!!!
"THERE IS MANY A TEAR IN THE HEART THAT NEVER REACHES THE EYES"
I am thinking of you today too!!!
Blessings,
Kelly Bennett

::Marshall & Amelia's Place:: <the5bens@charter.net>
Covington , La - Thursday, March 3, 2005 10:14 PM CST
Ann,
Gosh, it was so good to see you and your ENTIRE family in church on Sunday. What a wonderful sight :o)
Glad to hear that Johnathans counts remain steady. We continue to pray for this journey to get easier for you all. Gods timing is always perfect. When we think we've hit the end of our rope, He is there! Continue to have the faith and hold onto Gods promises for Johnathan. We love you guys,

Diane, Paul, Jake and Sarah <dwidmer@wi.rr.com>
Racine, WI USA - Tuesday, March 1, 2005 11:22 PM CST
Hello,
Just want you to know that your in our prayers.
Sending lots of prayers your way.+++++++++++++++++++++
Love LaKota and her mom Debbie.
God be with you.
~*~LaKota~*~

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@Hotmail.com>
- Tuesday, March 1, 2005 12:07 AM CST
Dear Ann and Johnathan,
We are so happy to hear the pain is lessening. It is such a good sign and such good news! I hope this will be the answer and John can continue to improve. I could feel the weight lift from your shoulders, Ann. You remain in our prayers, daily.
Andrea

andrea bedard <andrea_bedard_@hotmail.com>
crosby, mn - Sunday, February 27, 2005 1:51 PM CST
Hello All,

We are so happy the pain is diminishing and that Johnathan's health is doing so well. We are rejoicing with you all and will continue to pray for healing and 100% restoration! We love you and think of you so often. Continue on living your lives full of generous love toward one another...Jesus is glorified with each moment.

Love to you in HIS precious name,

Nadine <><

Nadine <mgorniak2@wi.rr.com>
Racine, - Saturday, February 26, 2005 3:52 PM CST
I Sure hope that this is just what the Doctor ordered for Johnathan. I hate to hear that it is the shingles, but so very glad that they are able to figure it out and how to treat it and that the pain is subsiding. I feel for him being in pain and nothing working, I know all about that!!! I will say an extra prayer for Johnathan to be up and running at full speed soon. And I will also say a prayer for you that you may get the much needed rest that you need!!!!
Hugs and Blessings.
*~*Marshall & Amelia's place*~*

Kelly Bennett <the5bens@charter.net>
Covington, La - Saturday, February 26, 2005 11:17 AM CST
So happy to hear that the pain is lessening on the antiviral. What a relief for you all that surely is. We continue to check on ya'll and keep you in our daily prayers. Stay tough John! We're so proud of you and excited to be following along in your footsteps as we begin transplant ourselves in a couple weeks.
Karen Magrath (www.caringbridge.org/fl/ty) <TeamTy@cfl.rr.com>
Melbourne, FL USA - Saturday, February 26, 2005 9:31 AM CST
Hi guys!
Bren just got off the Valtrex, acyclovir and famcyclovir for shingles. He got the pain near the end and the Neurotin has really helped with that. Good luck and know that this too shall pass...being home now i ma always worried about fevers,etc...I know John will do just fine!
Hang in there!
Love, Kristi

Zimnys <zim4@charter.net>
Glenwood, MN - Saturday, February 26, 2005 9:16 AM CST
Hi, Johnathan!
Just wanted to let you know that I am thinking about you. I miss seeing you in health class. I really hope that the doctors can get your pain under control so you can get back to school with all or your buddies. We miss you!!! Get better soon!!!

Mrs. Lori Walters <l.walters@oakcreek.k12.wi.us>
Racine, WI USA - Friday, February 25, 2005 8:14 PM CST

The Prayer Bears

Praying that Valtrex does the trick! Glad the counts are staying up there!

We sure could use your positive attitude in the Prayer Bears! Please consider it when things slow down for you!

Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, Va - Friday, February 25, 2005 8:19 AM CST
Hi all,
Just stopping in to check on Johnathan and the rest of the family. We are praying that Johnathan feels better very soon and that the doctors can get this "bug" to take a hike :o)
Johnathan, hang in their buddy. God has brought you so far in your journey over the past couple of months. He is with you each and every step of the way. This is just a setback but knowing your determination to beat this, I am sure you will be up and at it again soon!
Ann, we hope that you are doing better as well. We are praying for your strength to handle all that comes your (and Nates) way. Keep holding tight to Jesus! He has brought you and your family so far already. We pray that your lives would return to a wonderful "normalcy" very soon with less trips to the doctors for Johnathan.
Please know that we continue to pray for you and that you are on our minds each and every day.God bless!
Love and hugs,

Diane, Paul, Jake and Sarah
Racine, WI USA - Friday, February 25, 2005 6:09 AM CST
Just stopping by to say hi. Sorry we haven't written in a while. WE hope John gets this bug behind him. We think about you guys alot. We hope everything works for the best. Take care and keep in touch. The Wasson's
Brett,Becky,Chrisand Ben Wasson <was9810@aol.com>
West Salem, OHIO USA - Thursday, February 24, 2005 8:32 PM CST
Hello Ann and John,
We will be praying that the pain goes away real soon for John. You are always in our prayers.
LaKota and Steve said to tell everyone Hi from them.
Love LaKota and her mom Debbie.
God be with you.
~*~LaKota~*~

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@Hotmail.com>
St.Cloud, MN - Wednesday, February 23, 2005 8:26 PM CST
Get feeling better soon John everyone misses you at school.
Our thoughts and prayers are with you and your family. Jeremy and Kaylee Schull and their mom are wishing you well.

Mary Jo Byrd Jeremy and Kaylee Schull <mrsTwtybyrd@aol.com>
Oak Creek, Wi USA - Tuesday, February 22, 2005 7:23 PM CST
Wow. That would explain the pain, for sure. Bailey got shingles after transplant, too - they were external though. I sure hope the Valtrex does the trick. You're in our prayers always, Johnathan. I know it's hard to stay positive sometimes, but stay strong and you'll get through this and get it behind you. God Bless!
::The Amazing Bailey Grace!::

Terri Peterson and family <terri@stribmail.com >
Ramsey, MN usa - Tuesday, February 22, 2005 3:21 PM CST
Hi Ann and Johnathan!

Wish I could give you a big hug, Ann. You are doing such an awesome job of handling all this. I know you understand when I say, "I hate the imperfections of this transplant process!" There are so many ups and downs. We are sending you some warm, sunny affections hoping they lift and sustain you. Keep your chin up too, Johnathan. You and your family certainly have the prayers and support of so many.

Love, Andrea and Adam

andrea and adam bedard-day 209 post transplant <andrea_bedard_@hotmail.com>
crosby, mn - Tuesday, February 22, 2005 10:24 AM CST
Hi guys!
We are hoping that everything is going better for you. Bren finally got to go home for good. I don't think I have ever packed so fast! I still worry constantly about fevers, GVHD and that stuff, but he is feeling good and his counts were the best yet at clinic yesterday! Those prayers are sure working! We keep you and your whole family in our prayers daily!
Love to you all!
Kristi, Brennan, Sean and Greg Zimny

Zimnys <zim4@charter.net>
Glenwood, MN USA - Tuesday, February 22, 2005 8:20 AM CST
Hi Johnathan.
Haven't written in a while, but you are always on our minds and in our prayers. Robert missed seeing you at school last week. Hope the meds are helping with the pain. Stay strong, keep eating! and you'll be back at EMS with your buddies soon.

Robert and Rose Weis and family <weisguys@wi.rr.com>
Oak Creek, WI USA - Sunday, February 20, 2005 10:22 PM CST
Hi Ann
I am thinking of you and Johnathan - I hope that they can get the pain under control. Have a good weekend.

Darlene Brunson, Jordan's (FA) mom <darlene@m.millard.k12.ut.us>
Delta, UT USA - Friday, February 18, 2005 6:01 PM CST
I will continue to keep you all in my prayers!!
Dianne Ploetz <dianneploetz@aol.com>
St. Paul, MN - Friday, February 18, 2005 10:14 AM CST
Hi guys...
I hope they can get the pain under control. The Neurontin has done wonders for Brennan but makes him kinda shaky sometimes. Keep your eye on the prize and keep the faith. You guys have come so far and are an inspiration to our whole family!
Have a good weekend!
Kristi, Brennan, Greg and Sean Zimny

Teh Zimnys <zim4@charter.net>
Glenwood, MN - Friday, February 18, 2005 9:10 AM CST
Ann,
Sending you all hugs :o) We continue to pray for Johnathan and that his pain goes away. I know that he is having a rough time right now but God is continually watching over him and has everything under control! Continue to put your trust and faith in God :o) You are a strong lady Ann, and I know that you are doing just that!
Love, hugs and prayers to you!

Diane and family <dwidmer@wi.rr.com>
Racine, USA - Friday, February 18, 2005 6:05 AM CST
Ann {{{{{{{{{{{hugs}}}}}}}}}}}}}}. I know it's rough. I'm sorry it's so difficult. It's horrible seeing your child suffer. Try to keep in sight the end-result... a CURE! And know that God is in control at all times, even when we feel like we're spinning out of control. We're so proud of John (and you and the rest of his family)... brilliant examples of how to do all this transplant stuff. We're here for you!
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL USA - Thursday, February 17, 2005 5:42 PM CST
Ann,
Just wanted to check in on you all this morning! I am hoping that Johnathans pain is diminishing. What an amazing young man he is. What an amazing mother you are!We will continue to storm heaven on your families behalf. God is listening, He is fighting this battle with you! Stay strong and rest in Him.
Lots of love and hugs (and prayers),

Diane Widmer
Racine, WI USA - Wednesday, February 16, 2005 6:30 AM CST
Ann,
Hang in there. I truly kow how you feel. There are days I just don't even want to deal with all of the ups and downs, but God never gives us more than we can truly handle! I really believe that. You have been such a wonderful support for me and I hope I can do the same for you. It is draining, but these boys are worth every minute of it and they seem like they never complain!
I will say an extra prayers for you and your family tonight! Always know that you are never alone! Take time to have a long bubble bath and let it all out, it seems to work for me...
Love and friendship, loaded with lots of blessings!
Kristi Z.

The Zimnys <zim4@charter.net>
Glenwood, MN - Tuesday, February 15, 2005 5:19 PM CST


(((Squeeze))))) Feelem? They are coming your way! Hang in there!

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, Va - Tuesday, February 15, 2005 11:36 AM CST

Sending you a BIG HUG Ann. Know that God is always with you and He knows exactly what you are going through. He will continue to carry you.
You remain in our thoughts and prayers!
Love and hugs to you!

Diane
Racine, WI USA - Monday, February 14, 2005 9:52 PM CST
Dear Ann, Beautiful song you wrote. Thanks for sharing with us. I'm sorry things are still so tough for John. We continue to hold him and your entire family up in prayer. I know faith is helping to get you through... just hang on, don't quit (remember Jill Wolf's poem) :) {{{hugs}}}}
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL USA - Monday, February 14, 2005 6:04 PM CST
Hi Ann/
It's Carol Kuell . I'm sorry to hear about the pain John
is having . I'll call you soon .. You and your family are always in our prayers. Love Carol


Carol Kuell
Melbourne Beach , Fl Bearved - Monday, February 14, 2005 1:38 PM CST
Hi Ann and Johnathan! Checking in on you and sending prayers for the pain to go away. We made two trips to the University this week. Thurs. and Fri. Turns out Adam has the shingles. No fun! But, the good news is, we can stay at home and administer the medication here instead of a 10 day hospital stay...at least for now we can manage it. His shingles are on the scalp and are at about a 5 today, like Johnathan's pain. He gets really sleepy too on the pain medications, so he can relate, John. It is hard for him to concentrate on much. Our kitchen looks like a pharmacy with all the acyclovir they sent home with us! You probably know how that goes. Hang in there John! We're rooting for you too!

Love,
Andrea and Adam

andrea bedard <andrea_bedard_@hotmail.com>
crosby, mn - Saturday, February 12, 2005 7:10 PM CST
We're sending lots of prayers your way, Johnathan, for your pain issues to resolve and for you to get stronger and back on your feet again. Stay strong and positive, just like you are. This too shall pass!
::The Amazing Bailey Grace!::

Terri Peterson and family <terri@stribmail.com >
Ramsey, MN usa - Saturday, February 12, 2005 4:47 PM CST
John, How is it going buddy? This is Jayden Mayorals dad. I thought I would stop in and see how everything is going. Sounds like for the most part you are doing very well. Sorry you have to take so many Medications i cant even imagine what that would feel like. I know as weak as my stomach is I would be visiting the porcelin god about every 2 minutes. Keep up the good work and ill be looking for you on tv someday playing BBall.. give me a call if you ever need to talk or email me,. 303-619-3394. Keep up the the strong fight and the good work! Jayden is doing very well, He actually stop taking his CSA today and he wanted to celebrate it with a cake and candles. everyday is a celebration. Jayden just turned 4 on the 24th and that was a huge celebration. Well not quite as many people as we want but good enough. Anyway if you ever make your way this way maybe you can take a ride on his Horse santa gave him.

Well take care

God Bless
The Mayoral Family

Jay <jason.mayoral@level3.com>
Littleton, co - Saturday, February 12, 2005 7:42 AM CST
Stopping by to let you know that we are thinking of you and sending lots of prayers your way.++++++++++++++++++++++++++++++++++++++++++++++++++
Wishing you a very bless Valentine’s day!!!!!!!!!!
Love LaKota and her mom Debbie.
God be with you.

~*~LaKota~*~


http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@Hotmail.com>
St.Cloud, MN - Friday, February 11, 2005 2:23 PM CST
Glad to hear that your pain is better. We hope it will be all gone soon! We hope that Bren's pain will be relieved as well. Take Care and we keep praying for you!
Kristi, Greg and Brennan Zimny

Zimnys <zim4@charter.net>
Glenwood, MN - Friday, February 11, 2005 10:13 AM CST
Hoping and praying that all goes well at your clinic appointment today Johnathan.
Love and hugs,

the Widmers
USA - Friday, February 11, 2005 5:55 AM CST
Hi, Jonthan I hope that you are doing good. I am sooo excited that you will be able to go back to school next week, I know you must be really happy. Hope your weekend is Great. Jesus loves you, Monica
Monica Martin <monie48m@lycos.com>
Livingston, Louisiana USA - Thursday, February 10, 2005 4:49 PM CST
Teachers Rule the court!
The staff @ EMS
- Thursday, February 10, 2005 12:36 AM CST
We are happy you are home and going back to school.
.....love you very much.

Sending our prayers and lots of hugs.

Nani and Bumpa
Waterford, Wi U.S - Wednesday, February 9, 2005 12:33 AM CST
Congratulations Johnathan! So good to hear you are back home again. It must be wonderful for you too, Ann! We are always thinking good thoughts and hoping you will continue on a positive stretch now. We'll ask for that pain to vanish!

Andrea and Adam

Andrea Bedard <andrea_bedard_@hotmail.com>
Crosby, MN - Tuesday, February 8, 2005 6:19 PM CST
Sorry you've been back in the hospital, but home is great!!! I'm sure you know that! We'll keep praying for you all. Keep you chin up!

The Prayer Bears

Bear Hugs,

Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, Va - Monday, February 7, 2005 11:20 AM CST
Fabulous news!!! We are so glad that Johnathan is out of the hospital! Those fevers are a bummer. I am praying you will be back to school in no time!
Take Care and ahng in there!
Kristi and Brennan

Zimnys <zim4@charter.net>
Glenwood, MN USA - Sunday, February 6, 2005 8:38 AM CST
Great news! We pray Johnathan can get back to school next week! Happy homecoming again. God Bless!
Terri Peterson and family <terri@stribmail.com www.caringbridge.org/mn/baileygrace>
Ramsey, MN usa - Sunday, February 6, 2005 6:30 AM CST
Glad to hear that you all are home and on the mend. I am also glad that they might have the foot pain under control. Did You get my e-mail about how to put up other websites on yours if not I can re-mail you. Our email changed. I'll put it below.
Wated to stop in and say Hello and glad that you all are home. I will continue to keep everyone in my prayers ALWAYS!!
Take care and Blessings to all.
*~*Marshall & Amelia's Place*~*

Kelly Bennett <the5bens@charter.net>
Covington , La - Saturday, February 5, 2005 9:02 PM CST
Hello Eckstadts:
We are so happy to hear that Johnathan's fever broke and that he does not have to stay in the hospital any longer. The boys are looking forward to seeing him in school again. We pray for you to continue to get better.

David and Nancy Zawacki <nzawacki@ameritech.net>
Oak Creek, WI - Saturday, February 5, 2005 8:06 PM CST
Glad to hear that his fever broke. Hopefully his feet will get better too - glad they aren't so painful anymore. We'll hope and pray his gets better and can go back to school soon;-)

God Bless,
Teresa

www.caringbridge.com/or/emmarose <teresabelle@gmail.com>
Aloha, OR USA - Saturday, February 5, 2005 4:39 PM CST
Ann and John,
We all hope your fevers subside soon and that the pain will subside as well. You are in our pryaers that your healing will be swift!
Take Care, remember that you are an inspiration to so many!
Love and Blessings
Kristi and Brennan Z.

Zimnys <zim4@charter.net>
Glenwood, MN - Saturday, February 5, 2005 9:14 AM CST
Hi Johnathan and Ann!
Checking in on you. Hang in there John! Let your body rest and heal now. Adam is still having nausea. He laid around today, sleeping most of it away while I washed some windows. It is around 48 degrees outside, the snow is dripping and it feels like spring. I guess things are going to change tomorrow, back to regular colder weather for February. We got a couple movies for tonight (the new one with Resse Witherspoon-Vanity Fair and a football story-Friday Night Lights) while Aaron goes to the basketball game in town. It might be the last game for some time as our school is bracing for a teachers strike next week. They were going to strike today but a senior student, a classmate of Adam's, was killed in a traffic accident so they postponed the strike to help the kids through the tragedy. Her funeral is tomorrow. Adam wants to go, but we'll have to see what tomorrow brings.

We are thinking of you both and hope John's fever breaks SOON!

love,
Andrea


andrea and adam <andrea_bedard_@hotmail.com>
crosby, MN - Friday, February 4, 2005 5:03 PM CST
Hi Johnathan,

Just read about your most recent happenings and we are SO sorry for your pain. We will be praying for God to heal you quickly; HE knows the desire of your heart is to be surrounded by your friends; sometimes they are the Lords' help in nourishing your spirit and encouraging your heart.

HE may be protecting you from something at school that could set you back or something; HE is so sovereign and knows the plans He has for you. Plans to prosper you and not harm you, plans to give you hope and a future...(Jer. 29:11) We know you know all of this; it just seems to bring comfort to our family when life sends us little set backs. Hope it is an encouragement to you.

You and your family are so very precious to HIM; AND to us. Stay strong and keep, keepin' on. We are here if you need anything. Anything at all.

Love to you in HIS BEAUTIFUL NAME,
The Gorniak's <><

Nadine Gorniak <mgorniak2@wi.rr.com>
- Friday, February 4, 2005 2:37 PM CST
Johnathan,

Sorry to hear you're in so much pain. Everyone here at school misses having you and is praying for things to get better. Don't sweat it about school. You'll get caught up just fine. Concentrate on feeling better. Take care of yourself, kiddo!

Ann Duquaine <a.duquaine@oakcreek.k12.wi.us>
Milwaukee, WI USA - Friday, February 4, 2005 9:34 AM CST
Johnathan, Ouchie. We are praying hard that your c-dif and your pain hit the road so you can get back to school and back to your activities again. Bailey had a hard time with her CSA, too, especially the IV variety. It's a catch 22 with all the antibiotics, too, but they'll get you on one that will work and not contribute to your pain issues. THIS, TOO, SHALL PASS! Stay strong and positive. You'll be back on your feet again soon!
Terri Peterson and family <terri@stribmail.com www.caringbridge.org/mn/baileygrace>
Ramsey, MN usa - Friday, February 4, 2005 7:07 AM CST
Johnathan,
Praying that your fever and pain goes away real soon so that you can go home.
LaKota said to say hi to you, also tell your mom hi from me.
Love LaKota and her mom Debbie.
God be with you

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@Hotmail.com>
St.Cloud, MN - Thursday, February 3, 2005 9:27 PM CST
So sorry to hear that things are so tough right now. We'll continue to pray for relief for John's pain and for recovery from the C-Dif and any other bugs he's battling. Thanks for keeping us posted. Hugs.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL USA - Thursday, February 3, 2005 12:06 AM CST
John,
My prayers and thoughts are with you. Hang in there guy.


Linda Lewis
- Thursday, February 3, 2005 10:12 AM CST
John and Ann I hope this will pass quickly and that you will be out of the hospital soon. Keep up the fight. You are a strong young man and will do fine!
Love and blessings!
Kristi and Brennan(post transplant 112)

Zimnys <zim4@charter.net>
Glenwood, MN - Thursday, February 3, 2005 7:15 AM CST
Johnathan,
Sorry to hear that you are still battling the pain but glad that it is diminished by some degree. Praying that you are up and around (and back at school) soon!
Your Mom is right, take it one day at a time. The Bible tells us not to worry about tomorrow as tomorrow will take care of itself. Our God is able! He has everything under control..continue to trust in Him Johnathan to see you through.
Ann, keep the faith. There are many praying FOR you and WITH you. When you feel like your burden is too heavy, these prayers will sustain you! I cannot even begin to imagine the fear and anxiousness you and Nate must feel at times but take comfort in knowing that God is with you ALWAYS and will never leave you.
Love, hugs and prayers to you all,

Diane and family <dwidmer@wi.rr.com>
- Wednesday, February 2, 2005 9:06 PM CST
Hi Ann and Johnathan! Was so sorry to read the news about John's pain. I hope he is feeling some relief soon. Stay strong, Ann. It's awful to have someone you love in such pain. We're thinking of you both...you have made such wonderful strides to be back in school again, Johnathan. Hang in there and know we're asking for you to return home and back to school ASAP!

We are going to the University tomorrow morning. Adam has been able to keep food down for 48 hours so I think he is finally on the mend. It's so nice to have him successfully eat something! He will be getting IgG tomorrow, it's a four hour infusion, and then we'll be heading back home after a visit with Dr. Orchard.

I love your new pictures! We'll be checking up on you again soon.

Andrea and Adam <andrea_bedard_@hotmail.com>
Crosby, MN - Wednesday, February 2, 2005 7:49 PM CST
Thanks for letting us know John is in the hospital. We'll continue to pray that he is relieved of the foot pain (and SOON!) {{{hugs}}}
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL USA - Tuesday, February 1, 2005 8:48 PM CST
Hi all,
We are so sorry to hear that Johnathan has been admitted to the hospital but are sure that he is in good hands and will be able to get some pain relief! (Ann, if there is anything we can do, we are just a phone call away.)
We will continue to lift up Johnathans name in prayer. This is a bump in the road - God has brought you so far on this journey, He will never leave! Try not to get discouraged Johnathan, you'll be out in no time :o)
God bless you all tonite!
Love and hugs,

Diane, Paul, Jake and Sarah <dwidmer@wi.rr.com>
WI USA - Tuesday, February 1, 2005 7:55 PM CST
Dear Eckstadt Family,

I am so sorry to hear Johnathan is in the hospital tonight, however, I am so grateful he will have his pain eleviated. Our family will be praying for all of you and if there is anything at all we can do (tangibly) for you; please do not hesitate to call on us. We would love to be able to come along-side you and help in any way.

During these times, be encouraged and remember that new blessings are coming! Life in Him is our Hope in the valleys and our Joy on the mountain tops! God doesn't waste suffering - He uses it to make us more like Him...and Johnathan; you are lookin' MIGHTY good right now! He is glorified by you sweet Johnathan. We will be praying for the pain to be removed quickly.

Love to you in His Beautiful Name,
Matt, Nadine, Moriah, John and Kyle

Nadine <mgorniak2@wi.rr.com>
- Tuesday, February 1, 2005 6:43 PM CST
Hi guys! I finally got to your new site-love the background! We are happy to see you have such good counts. We hope your pain goes away soon and that you will be back on the court in no time. Take Care and know we pray for you!!!
Love,
Kristi and Brennan Zimny
Post Transplant Day 110

Zimnys <zim4@charter.net>
Glenwood, MN - Tuesday, February 1, 2005 3:47 PM CST
How frustrating that must be to have such painful feet! I hope that they are able to find something that works for the pain without causing him to throwup. Glad that someone brought over the foot soaker!! He's one determined guy to want to go to school through all of this! I bet he's just so tired of the hospital and of being sick and wants to get back to normal life. You have amazing faith. It's a strength to all of us.

God Bless,
Teresa

www.caringbridge.com/or/emmarose <teresabelle@gmail.com>
Aloha, OR USA - Tuesday, February 1, 2005 1:43 AM CST
Hi guys,
Just checking in to see how Johnathan is doing. We will continue to pray for his complete healing and that his pain goes away! Our God is able - He has proven that time and time again :o)
Love and hugs to you all,

Diane, Paul, Jake and Sarah <dwidmer@wi.rr.com>
Racine, WI USA - Monday, January 31, 2005 9:45 PM CST
Well Jonathan, those eighth grade teachers have all the luck, having you in their classes. I guess that I will just have to settle for seeing my favorite student from last year in the hallways (..a sad little sigh)..
You are ever in my prayers...your light shows others the way, and an appreciation for the life young people often take for granted..(and us older people too). Hang in there Sweetie, I know it will get better!! Oh yes, and have I told you what a GREAT MOM you have??

Huggies,

Ms. Evans

Ms. Julie Evans <ja.evans@oakcreek.k12.wi.us>
Milwaukee, WI USA - Monday, January 31, 2005 2:04 PM CST
So happy to hear that at least the warm foot soaks are helping with the feet pain. Gosh, what a drag, hm? We continue to hold you all up in prayers and look forward to hearing that all the discomfort is GONE soon.
Karen (www.caringbridge.org/fl/ty) <TeamTY@cfl.rr.com>
Melbourne, FL USA - Sunday, January 30, 2005 5:15 PM CST
Jon,
It is wonderful to have you back in school! Remember, you need to take it easy and relax about the schoolwork...we have an excellent team here to help you. I will keep lecturing you on this :) Enjoy your weekend, we will see you on Monday. What is mom packing us for lunch??

Ms. Wimmer
Oak Creek, Wi US - Saturday, January 29, 2005 10:27 AM CST
Dear Johnathon and Family:
Our thoughts and prayers are with you.
You like basketball, right? A family friend of ours has season tickets for box seats to the Portland Trail Blazers and gives us a set of game tickets every year. This year Roy & a family friend will be watching LA Lakers play the Blazers, or the Jail Blazers as some people call them after some of the players escapades.
Take care and Live Strong.
From your FA friends in Oregon,
Kay Proctor
Josie 24 FA
Julie 21
Roy 17 FA

Kay Proctor <mightymomma@hotmail.com>
Heppner, OR USA - Friday, January 28, 2005 11:09 PM CST
Hello Johnathan!
We are so rejoicing with you with all the accomplishments the LORD is enabling you to do! Wow! What a beautiful and loving Father we have! Know we are continuing to pray for angels to encamp about you and protect you at all times!

Love to you and your family,
Matt, Nadine, Moriah, John, and Kyle <><

Nadine Gorniak <mgorniak2@wi.rr.com>
- Friday, January 28, 2005 6:31 PM CST
We hope your pain goes away very soon. We are so happy that you are back in school and doing so well!
Take Care! Have a realxing weekend!
The Zimnys

Kristi Zimny <zim4@charter.net>
Glenwood, MN - Friday, January 28, 2005 4:26 PM CST
Hi Johnathan and Ann,
Thanks for the new website address! I was very worried when I clicked today and it said it didn't exist. Give yourself time to heal and recover, Johnathan. You are doing absolutely awesome, but it's really one day at a time for some stuff, like your legs getting back their strength. Once you're off a few more meds that pain will probably go away. Bailey had alot of burning in her feet, due to a couple of drugs she was on, and boy, she didn't like it one bit! And there didn't seem to be a concrete answer as to what was causing it or what to do about it. That, too, shall pass! Take care, God Bless!

Terri Peterson and family <terri@stribmail.com www.caringbridge.org/mn/baileygrace>
Ramsey, MN usa - Friday, January 28, 2005 4:25 PM CST
Hey Y'all,

Heard the great news about your blood counts! Hope you are doing better everyday. 2005 - expect the miraculous!

All our love and prayers,
Cousin Julie and our bunch of nuts (Buckeyes)

Julie Smucker <jrsmucker@aol.com>
Columbus, OH usa - Friday, January 28, 2005 10:31 AM CST
Hi Jon, this is your cousin from Michigan, Carolyn McKenzie. We have been praying for you and your family here.
We serve an awesome God that has done awesome things for you.

Carolyn McKenzie <ccmckenzie@juno.com>
Auburn Hills, MI USA - Friday, January 28, 2005 9:09 AM CST
Hi Jonathan,
I will be praying for the pain to go away and for your continued health and healing. God bless you.

Linda Buchholz <lindabuc@wi.rr.com>
Lake Geneva, WI - Friday, January 28, 2005 8:33 AM CST
Jon
Its great having you back at school. Cut yourself some slack. You've been thru a life saving/changing procedure. Don't sweat the small stuff. You are a great student, just relax and go with the flow.

L. L. Lewis
- Friday, January 28, 2005 7:47 AM CST
Hey, Buddy! It is so cool that you are "out and about". Playing basketball is so much fun -- especially in winter. I'm very proud of you. You are a real hero! Mrs. Posda
Janice Posda <posda@execpc.com>
Oak Creek, WI USA - Friday, January 28, 2005 7:33 AM CST
Johnathan,
We will be praying that your feet / leg pain goes away! Congratulations again on the big accomplishment of returning to school. If I am reading things right, you are back full days now?!? Wow, God is good all the time and all the time God is good!
Stay warm :o)
Love, hugs and prayers,

Diane, Paul, Jake and Sarah <dwidmer@wi.rr.com>
Racine, WI USA - Thursday, January 27, 2005 9:39 PM CST
I'll say my prayers for him !!
Darla Lindenmayer <DLinden73@aol.com www.caringbridge.org/in/angelbarneyboo>
Lexington, IN United States - Thursday, January 27, 2005 8:29 PM CST
Hello Johnathan,
Stopping by to wish you a wonderful weekend, and praying that the pain will go away.
Sending lots of prayers your way.++++++++++++++++++++

LaKota and Stev said to tell you hi from them so here is a big HI from them.

Love LaKota and her Father Steve, and her Mom Debbie.
God be with you.
~*~LaKota~*~

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@Hotmail.com>
St.Cloud, MN - Thursday, January 27, 2005 7:53 PM CST

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