Alpha Girls: Grace & Meghan Welcome to our web page where you can get info on our progress with Alpha-1 Antitrypsin Deficiency.
Alpha-1 is the 3rd most common serious genetic disorder in the world (behind Down Syndrome and Cystic Fibrosis) and can result in life-threatening liver disease in children and adults or in lung disease in adults. It affects the liver and can lead to liver failure at any time in life. It is the leading genetic cause of liver transplantation in children. Currently, the only cure for the liver disease of Alpha-1 is a liver transplant.
Journal
Tuesday, January 29, 2008 8:47 PM CST THANK YOU JEN!
I feel so blessed and honored that Gracie and Meghan have been matched again with Jen Davis, a runner in the Boston Marathon. Jen will train and run in the marathon while wearing Grace & Meghan's names on her back.
Last year, the American Liver Foundation raised over 1.2 million dollars in the Run for Research. I'm just so excited and honored that she is running for my girls. It makes me feel so good to know that an almost stranger can care so much, and do so much good for herself and others.
Jen, we will be cheering for you on April 21st. Thank you so much for your dedication to raising money for liver research. We appreciate it more than you'll ever know.
Please consider contributing to Jen's goal of raising funds for research, here is her online donation page: http://www.active.com/donate/liverteam08/alfJDavis
PS: I also have a blog at Unique But Not Alone
Read Journal History
Hospital Information: Children's Hospital of Wisconsin 9000 W. Wisconsin Avenue Milwaukee, WI 53201-1997 414-266-2000
Links: http://www.liverfamilies.net http://www.alphaone.org http://www.alpha1.org
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