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Welcome to Owens Journal. This was created as a way to keep you all updated on how he is doing. He was diagnosed on August 26,2003 with a mixed Leukemia of AML and ALL. Owen underwent an intense chemo therapy treatment to get him in remission and then had a bone marrow transplant was done on November 4,2003, from his 15month old brother Jacob.
Owen relapsed on January 20, 2006. Leukemia was found in his testicle. He will go through the standard ALL protocol that lasts 2-3 years. The first year is inpatient and outpaient chemo treatments and the second year is a maintenance plan - mostly outpatient and medicines at home. They say 2-3 years incase any cycles get delayed due to illness, or low counts or any other issues that get in the way. The reason to go this route is the thought is that the original transplant has taken care of the AML leukemia, but ALL generally likes a slower treatment plan. A close watch will be done to keep an eye out for a relapse or the AML and if it should appear Owen will undergo another Bone Marrow Transplant. Jake will once again step up to help his brother.
Owen COMPLETED treatment on 5/11/08!!!
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RFL 2009 Slide show
Journal
Wednesday, June 24, 2009 5:39 AM CDT Owen had his graduation ceremony last night for 6th grade. he is 'moving up' to the middle/high school. Union Springs has a different layout, K-3, 4-6, 7-12. So this was a big deal, next ceremony is high school graduation!!!!!
I sit here thinking back to almost 6 years ago (8/26/03) when we heard those devastating words 'Your son has Leukemia', then within days 'Your son has a very rare mixed form of leukemia with a poor prognosis'..... how our world spiraled and we couldn't even think about tomorrow. Last night I watched with so much happiness running through me as he crossed that stage 6 years later and received his diploma! Owen also received awards for Honor Roll, Never being in enforced Study Hall (which means he is very organized??? not sure how he got that one LOL!!), and also for maintaining a 90 average for the last 3 years!!!! WOW!! For somone who missed most of 4th and 5th, this is amazing!! He already says he will be on High Honor next year now that he is in school all the time!
What an amazing son I have. He makes me so proud. He has really come through this and gotten his life back. You can see how happy he is to be one of the group again!
So now I will have a child in each school! Jake - elementary, Tyler at AJ and Owen at the High school!!!
Tyler earned the 'Most Flexible Award' in gym this year!!! He was very proud, and he is definately flexible, I think he never lost that 'baby' bending ability! Tyler is now 'suppose' to wear glasses! He was very proud to get them and shows everyone his new glasses, then they come off and go in their case... not sure they are helping much there! I can see this will be a battle to get him to keep them on! Tyler is excited for summer and swimming!!! We can not keep him out of the pool - he loves it!
Jake is doing well, we are watching him for ADD. He has a very hard time focussing in school. He has been put on Adderall, a six hour dose of medication that just gets him through the school day. It has made a difference at school so we will continue to use it there. I do not have to use it at home, it can be given as needed. Jake was close to being held back this year, but we buckled down and really began reading alot at home and working on math skills, this seemed to help and while he is still behind he is catching up. Summer will be a time to keep re-enfocing and making sure he does not regress.
We leave in 2 weeks for British Columbia to vist Grandma and the rest of the Faynor bunch for 2 weeks!!! We are very excited! I have not been since the summer of 2005! Even my brother Steve is going out for a week. We are going to have a Faynor family reunion the second weekend we are there so this should be alot of fun!
Hope everyone is enjoying the weather that has FINALLY arrived!!! I hope it is here to stay!
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