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Owens Journal

Welcome to Owens Journal. This was created as a way to keep you all updated on how he is doing. He was diagnosed on August 26,2003 with a mixed Leukemia of AML and ALL. Owen underwent an intense chemo therapy treatment to get him in remission and then had a bone marrow transplant was done on November 4,2003, from his 15month old brother Jacob.

Owen relapsed on January 20, 2006. Leukemia was found in his testicle. He will go through the standard ALL protocol that lasts 2-3 years. The first year is inpatient and outpaient chemo treatments and the second year is a maintenance plan - mostly outpatient and medicines at home. They say 2-3 years incase any cycles get delayed due to illness, or low counts or any other issues that get in the way. The reason to go this route is the thought is that the original transplant has taken care of the AML leukemia, but ALL generally likes a slower treatment plan. A close watch will be done to keep an eye out for a relapse or the AML and if it should appear Owen will undergo another Bone Marrow Transplant. Jake will once again step up to help his brother.

Owen COMPLETED treatment on 5/11/08!!!
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Journal

Sunday, December 28, 2008 8:24 AM CST

We survived Christmas, the anticipation of it arriving was at an all time high for the few days leading up to it!!!

We had a several wonderful days before, spending them with the family which is really what this time is about- course the kids still want the presents!!!

We spent Sunday at Dad and Leannes with the Tortorici family. Which is the home photo here with all the Grandkids. Looks like 1st generation was girls and 2nd is boys!!!! We played the Yankee Christmas - where everyone brought a gift and we got to steal the presents from one another - that was a lot of laughs!!! The boys loved playing with Robert, they were all buddies in no time!

Christmas-eve was spent at Aunt Shelly's and Uncle Petes with Grandma Bonnie, Hank, Aunt Susie and of course PJ and Lexi! I told Lexi (2) how me and her would be shopping buddies because we both loved shoes!!! She had to show me her shoes many times!!! Shelly made a good-ol Polish feast which my husband loves!!!!! By the time we rolled out of there - we had some tired but excited boys on the ride home. Amazingly they all got ready for bed with the sparkle in their eye that Santa was soon coming.

Owen had the restless night. He woke several times, which means I woke several times so he could tell me how he couldn't sleep! At 6am he woke me to tell me he could hear Santa's sleigh bells and I had to come listen in the hall. I think all I heard was the fuzzy sleep in my head! Finally at 7 I gave up and Owen and I got up so he could browse the tree. Our tree looked quite pathetic this year, with all the 'little' gifts it was not over-flowing into the living room like normal, our boys are getting big :-( and the gifts are smaller.

At 8am I let Owen go up and wake up Tyler and Jake, who descended the stairs rubbing their eyes, but it took no time to wake up and get into full swing of the morning. There were many squeals of delight so I think Santa and Mom and Dad did a good job with the gifts!

The rest of the day was filled with Grandma Pat, Papa Fred, Grandma Lea, Papa W and Grandma Lee slowly fill up the house. We had a great afternoon filled with family and ended with dinner and everyone ready to relax and work off the excitement of the day.

We have spent the next few days opening all the new things, shopping with gift cards and just enjoying being home and together. Yesterday the boys and I went to see Bedtime Stories - which was really cute. Today will be a lazy day with some more time spent just enjoying the boys and then tomorrow is back to reality and work :-(

New Years is fast approaching and we hope to have a wonderful 2009. Owen will reach 1 year off treatment, Tyler will be 10 (OMG) and Jake will ... well probably be Jake - not sure what he will bring yet :-)

Wishing you all a great end to 2008 and Happy 2009!!!!!
Thankyou all for your continual support and well wishes for our family, we will never be able to tell you how much it has meant all these years - and it has been many - 5 years!!! Thankyou Thankyou Thankyou!!!

Love to you all - The Wawrzaszek Family!

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Links:

http://www.caringbridge.org/canada/dejahmilne/   Dejah Milne - cousin in Canada with Wilms Tumor
http://www.disneyphotopass.com/share.aspx?share=c049bee0-bc20-4b8b-9e00-5be462f6ec19&site=Default&c=PROFESSIONAL&a=ALL   DISNEY Pics online
http://www.caringbridge.org/wi/john/   John's site - AML/ALL like Owen


 
 

E-mail Author: awawrzaszek@hughes.net

 
 

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
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