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What's New In Jacob's World?

Welcome to Jacob Irish's Web Page. Jacob was diagnosed with MPS1 - Hurler Syndrome in December 2001 and underwent an unrelated umbilical cord blood transplant at Duke University Hospital in May 2002 as treatment for his disease. He has had several other surgeries due to his disease including VP shunt, tonsil & adnoid removal, multiple PE tubes, hernia repair, carpal tunnel release, posterior spinal fusion, bilateral knee stapling, and c-spine decompression and fusion. There will more than likely be more surgeries to come, particularly in the orthopedic area. Jacob is a remarkably happy 8 1/2 year old who doesn't allow any of his medical issues to cause him any problems. Please feel free to sign Jacob's guestbook...we'd love to hear from you!

"Every blade of grass has its Angel that bends over it and whispers, "Grow, grow."

~The Talmud

Journal

Friday, March 20, 2009 9:52 PM PDT

New photos!

Jacob is doing great! His c-spine is healing up very nicely. I will do a more thorough update when I have more time. :-) Take care ~ Mel, Steve, Jake, Matt, & Noah

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Hospital Information:

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Links:

http://cota.org   Donations for Jacob's on-going medical care can be made to Cota for Jacob I.
http://www.mpssociety.org   This is the official site to learn more about Jacob's syndrome and other MPS disorders.
http://www.cancer.duke.edu/PBMT   Information on Duke's Transplant program.


 
 

E-mail Author: melirish@wavecable.com

 
 

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
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