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What's New In Jacob's World? 
Welcome to Jacob Irish's Web Page. Jacob was diagnosed with MPS1 - Hurler Syndrome in December 2001 and underwent an unrelated umbilical cord blood transplant at Duke University Hospital in May 2002 as treatment for his disease. He has had several other surgeries due to his disease including VP shunt, tonsil & adnoid removal, multiple PE tubes, hernia repair, carpal tunnel release, posterior spinal fusion, bilateral knee stapling, and c-spine decompression and fusion. There will more than likely be more surgeries to come, particularly in the orthopedic area. Jacob is a remarkably happy 8 1/2 year old who doesn't allow any of his medical issues to cause him any problems. Please feel free to sign Jacob's guestbook...we'd love to hear from you!
"Every blade of grass has its Angel that bends over it and whispers, "Grow, grow."
~The Talmud
Journal
Friday, March 20, 2009 9:52 PM PDT New photos!
Jacob is doing great! His c-spine is healing up very nicely. I will do a more thorough update when I have more time. :-) Take care ~ Mel, Steve, Jake, Matt, & Noah
Read Journal History
Hospital Information: Home
Links: http://cota.org Donations for Jacob's on-going medical care can be made to Cota for Jacob I. http://www.mpssociety.org This is the official site to learn more about Jacob's syndrome and other MPS disorders. http://www.cancer.duke.edu/PBMT Information on Duke's Transplant program.
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